Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
Has anyone experienced swollen legs after Rituximab Infusion?
Had the second part of the infusion on the 5th of December. Was totally fine until the 20th when I woke up with swollen toes. The went down after a few hours but returned later that night. Long story short every day I woke up the swelling was getting bigger and bigger and going up my leg. By Christmas
Had the second part of the infusion on the 5th of December. Was totally fine until the 20th when I woke up with swollen toes. The went down after a few hours but returned later that night. Long story short every day I woke up the swelling was getting bigger and bigger and going up my leg. By Christmas
Paisley58
in
NRAS
4 years ago
Nephrotic Syndrome
I am new to this community. I would like advise on Nephrotic Syndrome. What can you positively do to improve nephrotic syndrome ? Following two Rituximab infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic
I am new to this community. I would like advise on Nephrotic Syndrome. What can you positively do to improve nephrotic syndrome ? Following two Rituximab infusions, I am on dialysis since 8 months. My albumin has improved. Can I come off dialysis if the neprotic syndrome improves? I am not diabetic
Potuar
in
Kidney Dialysis
4 years ago
Help with choosing the right Biologic
Hello. I have to choose between one of 3 biologics and I don’t know what to go for so any feedback would be welcomed. They are: Abatacept injections; Rituximab infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
Hello. I have to choose between one of 3 biologics and I don’t know what to go for so any feedback would be welcomed. They are: Abatacept injections; Rituximab infusions; Baricitinib tablets (Jak inhibitor). Thank you all for you thoughts xx
Aloquifiqie
in
NRAS
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Which biologic to take? Help!
Hello everyone. Looking for your collective wisdom and advice. Benapali has stopped working and I’ve been offered one of three biologic medications and I can choose! Bit which one? Any advice between Abatacept injections, Rituximab infusions or Baricitinib tables (jak inhibitor). Anyone got any good
Hello everyone. Looking for your collective wisdom and advice. Benapali has stopped working and I’ve been offered one of three biologic medications and I can choose! Bit which one? Any advice between Abatacept injections, Rituximab infusions or Baricitinib tables (jak inhibitor). Anyone got any good
Aloquifiqie
in
Arthritis Action
4 years ago
Information for CLL chemo
Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDOXON IS DONE.DOCTOR IS SUGGESTING TO START WITH IBUTRININ ORAL.SHOULD I GO WITH ANY HOMEOPATHY TREATMENT ALSO SIDE BY SIDE? First chemo was a combination of Rituximab and endoxon.Now he has suggested to go on oral.chemo..ibrutinin
Hi..my dad has been detected with CLL ,stage D.FIRST CHEMO OF RITUXIBIN AND ENDOXON IS DONE.DOCTOR IS SUGGESTING TO START WITH IBUTRININ ORAL.SHOULD I GO WITH ANY HOMEOPATHY TREATMENT ALSO SIDE BY SIDE? First chemo was a combination of Rituximab and endoxon.Now he has suggested to go on oral.chemo..ibrutinin
sweetromeet
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
Travel advice.
Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We are in Scotland. Read that it was not required to get injections however I’m wondering if in my condition it would be advisable. I’m coming up for 7 years post FCR. and so far doing really well. last checkup was 5 weeks
Hi folks. My good lady has booked a holiday to Mexico for my 60th birthday. We are in Scotland. Read that it was not required to get injections however I’m wondering if in my condition it would be advisable. I’m coming up for 7 years post FCR. and so far doing really well. last checkup was 5 weeks
Billys60
in
CLL Support
4 years ago
Neutropenia
I recently had to stop Cellcept as I became severely neutropenic and was admitted to hospital. My neutrophils are up and down, despite Neupogen injections, anybody else had a similar issue? I have a date for Rituximab infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil
I recently had to stop Cellcept as I became severely neutropenic and was admitted to hospital. My neutrophils are up and down, despite Neupogen injections, anybody else had a similar issue? I have a date for Rituximab infusion in 3 weeks but I may not be able to have it. The only meds I am on are plaquenil
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
My two year on ibrutinib check up
I find reading about the experience of others on the forum about their treatment experiences has been enormously helpful to me. Treatment is the big boogeyman for many of us and it helps to see how people work through. So I thought I would return the many favors and report on my two year ibrutinib anniversary
I find reading about the experience of others on the forum about their treatment experiences has been enormously helpful to me. Treatment is the big boogeyman for many of us and it helps to see how people work through. So I thought I would return the many favors and report on my two year ibrutinib anniversary
cajunjeff
in
CLL Support
4 years ago
Advice for 1st Rituximab?
Hi all After having allergic reactions to the first 2 biologics they tried, I’m having my first Rituximab infusion on Monday. I really want this to go well so is there anything I should do/take/expect? Any advice at all would be gratefully received. The rheumatologist has instructed that it be done really
Hi all After having allergic reactions to the first 2 biologics they tried, I’m having my first Rituximab infusion on Monday. I really want this to go well so is there anything I should do/take/expect? Any advice at all would be gratefully received. The rheumatologist has instructed that it be done really
mhlmom
in
NRAS
5 years ago
NEW TREATMENT: RITUXIMAB AND BENDAMUSTINE
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
Hello, After Ibrutinib stopped working for my partner, he will now be embarking on a new treatment. Rituximab and Bendamustine chemotherapy combination. Has anybody had any experience using these drugs together? Many thanks,
pollyg2016
in
Non Hodgkin's Lymphoma Friends
5 years ago
Truxima (Rituximab) Advice please?
Hello and Happy New Year! I had two Rituximab infusions in December, these were my 5th cycles. I’ve been feeling a bit more blurgh than usual after these infusions and just put it down to the Christmas rush prep etc, I’ve just pulled out my alert card and it says I was treated with Truxima (Rituximab
Hello and Happy New Year! I had two Rituximab infusions in December, these were my 5th cycles. I’ve been feeling a bit more blurgh than usual after these infusions and just put it down to the Christmas rush prep etc, I’ve just pulled out my alert card and it says I was treated with Truxima (Rituximab
3LittleBirds2
in
NRAS
5 years ago
Antiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights & Diagnostic . .
Front Cell Neurosci. 2019; 13: 107.
Published online 2019 Mar 19. doi: 10.3389/fncel.2019.00107 A
ntiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights and Diagnostic Challenges
Chiara D’Angelo,1,2,3 Oriol Franch,4 Lidia
Front Cell Neurosci. 2019; 13: 107.
Published online 2019 Mar 19. doi: 10.3389/fncel.2019.00107 A
ntiphospholipid Antibodies Overlapping in Isolated Neurological Syndrome and Multiple Sclerosis: Neurobiological Insights and Diagnostic Challenges
Chiara D’Angelo,1,2,3 Oriol Franch,4 Lidia
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Osteo causing RA problems?
Just noticed an osteoarthritis bump coming up on my finger. Had one raise its head a few weeks ago. My question is would this be causing me to flare. Going to hospital on the 9th January for rituximab infusion (4th set). Because of this flare had steroid injection only worked for 10 days. So stiff and
Just noticed an osteoarthritis bump coming up on my finger. Had one raise its head a few weeks ago. My question is would this be causing me to flare. Going to hospital on the 9th January for rituximab infusion (4th set). Because of this flare had steroid injection only worked for 10 days. So stiff and
28maggie11
in
NRAS
5 years ago
Greetings of the season!
Hello all — I wanted to share holiday wishes and a healthy new year with everyone on this group! Newly diagnosed in March, you’ve given me so much information and support. I don’t post often— to be honest my response to Ibrutinib has been so rapid and deep that I feel a little guilty. Combined with
Hello all — I wanted to share holiday wishes and a healthy new year with everyone on this group! Newly diagnosed in March, you’ve given me so much information and support. I don’t post often— to be honest my response to Ibrutinib has been so rapid and deep that I feel a little guilty. Combined with
Jcalichi
in
CLL Support
5 years ago
Rituximab infusion cont..
Thank you all so much for responding to me , with your own personal experience of Rituximab infusions ( it means so so much ) this is great news ; Many Thanks Again.
Thank you all so much for responding to me , with your own personal experience of Rituximab infusions ( it means so so much ) this is great news ; Many Thanks Again.
weymouth321
in
NRAS
5 years ago
Ineffective Rituximab Infusions Anyone ?
Baricitinib 4 mg ( last year - and now Rituximab infusions , first x2 session ( October and begin November 2019 ) neither having worked . Wish to know of anyone out there experience same / similar. Feeling pretty unwell is symptom top of list , followed by fatigue. ( ra of 10 years ) Then bouts of intermittent
Baricitinib 4 mg ( last year - and now Rituximab infusions , first x2 session ( October and begin November 2019 ) neither having worked . Wish to know of anyone out there experience same / similar. Feeling pretty unwell is symptom top of list , followed by fatigue. ( ra of 10 years ) Then bouts of intermittent
weymouth321
in
NRAS
5 years ago
Cll suport
Hi i have cll. Treated 7x fcr 15 month ago. I have advised ibrutinib. Any one tll me his experince about ibrutinib. Any one tell me about avilibility.
Hi i have cll. Treated 7x fcr 15 month ago. I have advised ibrutinib. Any one tll me his experince about ibrutinib. Any one tell me about avilibility.
Dpt517
in
CLL Support
4 years ago
YABTKi or Yet Another BTK inhibitor - the A to Z list of Bruton's Tyrosine Kinase Inhibitors for CLL following Ibrutinib's success
I'll admit that YABTKi is not a recognised CLL related acronym, (acronym lists are here https://healthunlocked.com/cllsupport/posts/private/134932756/cll-abbreviations-in-one-post ), but perhaps it should be! I've attempted in this post to keep tabs on the growing list of BTK inhibitor (BTKi) drugs
I'll admit that YABTKi is not a recognised CLL related acronym, (acronym lists are here https://healthunlocked.com/cllsupport/posts/private/134932756/cll-abbreviations-in-one-post ), but perhaps it should be! I've attempted in this post to keep tabs on the growing list of BTK inhibitor (BTKi) drugs
AussieNeil
Partner
in
CLL Support
5 years ago
Catch up
Hi All it’s been a while again hope your all ok and welcome to new posters Just a catch up while sat in my hospital bed I suffered a heart attack recently and following yesterday’s tests it seems I will be undergoing an open heart bypass I’m expecting a visit from the consultant this morning hopefully
Hi All it’s been a while again hope your all ok and welcome to new posters Just a catch up while sat in my hospital bed I suffered a heart attack recently and following yesterday’s tests it seems I will be undergoing an open heart bypass I’m expecting a visit from the consultant this morning hopefully
phil_54
in
NRAS
5 years ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest