mild struggles

[Corin850]

hi. It’s been seven years since I was on this site. Diagnosed 2007. FCR. Then again in 2012. Various treatments. 2014 ibrutinib. 2016 Venetoclax and obinutuzumab on trial. It worked. 2021 CLL back in bone marrow. Now starting to grow slowly. Haemaglobin only 13. I like more. I’m 54. Seem to constantly have colds. Chronic and recurrent sinusitis. Bowel trouble too. Antibiotics don’t really help beyond immediately. Next leukaemia doctor chat in three months time. Had covid jab today on top of sinus infection. Tired! Feeling a bit low physically and emotionally. Just so hard to keep up with people who don’t have CLL felt like posting. Sorry to all the people who are really struggling. I know my issues are relatively trivial.

[SofiaDeo]

Chronic recurring sinusitis can really affect one, having a near constant headache. Plus the other problems. Any chance you can get your immune globulins checked? If they are too low, it could be a big reason you feel awful, in addition to the anemia. Hope you can get something sorted out sooner than 3 months.

[lankisterguy Volunteer]

Hi Corin850,

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The issues you are experiencing are very familiar, and I agree with SofiaDeo you should explore whether IVIG infusions might control your frequent infections. See:

healthunlocked.com/cllsuppo...

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And for your fatigue- please look at this very recent discussion (and follow the links in those replies): healthunlocked.com/cllsuppo...

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Len