T-CELLs Collected: Firstly, may I thank everyone... - CLL Support

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T-CELLs Collected

casanova profile image
22 Replies

Firstly, may I thank everyone for their good wishes and interest in my first post concerning my CAR-T journey.Well, after a rocky start searching for suitable veins, I am happy to report that my day of T-Cell collection (Apheresis) went well with approximately 250ml collected. Photo of my little bag of 'hope".

At the initial assessment of my veins a few weeks ago, it was intermated a femoral line may be needed as I do not have the best of veins. However, on arrival at the Apheresis Room I was told the Team would try to cannulate me first as this is the preferred option. To this end a portable ultrasound machine and a nurse very experienced in cannulation using this piece of tech, joined the Apheresis Team to assist in my cannulation. Even so, it took a long time and six attempts to find a vein in each arm that the cell separator machine "liked" and my vein didn't give up on. The skill needed to carry out the procedure was impressive.

It was a long day and tiring but what a result!

I was back at hospital the following day to discuss the bridging treatment whilst we wait for the cells to be genetically modified and returned. I am to resume taking Venetoclax, which was paused for the week prior to the T-Cell collection, and I am to have a weekly infusion of Rituximab during this period. There will be more visits to hospital and more blood work will need to be done (poor veins) but the clock is ticking to Day 0 when my T-Cells are returned to me.

I will do my best to post when there is further progress.

Maureen - UK

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22 Replies
Tangolover profile image
Tangolover

Good to hear from you and wishing you all the best!

newyork917 profile image
newyork917

Glad to hear it went well. Best of luck on the next step! You got this!

noeagaman profile image
noeagaman

I am so glad to hear that this first step eventually went well! I pray for continued success for you and good health down the road...:)

Chris

cajunjeff profile image
cajunjeff

Sounds good so far Maureen. I definitely am looking forward to reading more about your Car T adventure. Best of luck to you.

spi3 profile image
spi3

Sounds so exciting for you - love your spirit and tenacity to give us all hope. I'm wishing and most importantly praying for the best for you - you are in my prayers ❤️

Feelsolow profile image
Feelsolow

Sending love and best wishes x

Jackpot profile image
Jackpot

Thank you for sharing your experience with us. I will be following your progress closely and am sending healing wishes your way from Canada.

Poodle2 profile image
Poodle2

First step done, all the best Maureen.

Ballyhoo777 profile image
Ballyhoo777

🙏

prbs2707 profile image
prbs2707

You a real trooper Maureen. As my dear old dad used to say when I did something he thought impressive "Oh well done you"Good luck with all the other tests and stuff ahead. I really look forward to hearing all about it. Great first steps. Patrick

spi3 profile image
spi3

So glad that your rocky start is getting smoother. I'm wishing you the best and you will be in my prayers. Thank you for keeping us informed too!

Dahlia7 profile image
Dahlia7

You are strong mentally. An inspiration for us. Good luck. Tony

Cllsller profile image
Cllsller

Best of luck. Please keep us posted.

nvp815 profile image
nvp815

So happy this big first step is over Maureen!! Looking forward to your follow-up posts. Sending lots of positive vibes and good thoughts to you.

Nan

ErieSailor profile image
ErieSailor

how many days do they tell you before you get your super T cells back ?

casanova profile image
casanova in reply to ErieSailor

They say about 4/5 weeks.

Maureen UK

New-bee-cell profile image
New-bee-cell

Glad to hear that the procedure efforts were not in vein 😁

(I apologize. Terrible pun. Couldn’t seem to help myself.)

BarneyFife profile image
BarneyFife

Wow, that's great. Keep us posted. Best wishes going forward.

RSixtyThree profile image
RSixtyThree

Best of luck going forwards!

Dinasantos profile image
Dinasantos

🙏🙏🙏

Lovely67 profile image
Lovely67

All the best Maureen

casanova profile image
casanova

Thank you all for your lovely comments {and pun 😀}

Maureen

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