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Doing good
DOING GOOD Morning all. I haven't posted for a while but have been following all the advice from this site. I felt that my Dr gave up on me as i havent heard from her in 8 weeks now. I decided to pay privately to see a rheumatologist as it seems most of you were sent to one. What a relief to talk
DOING GOOD Morning all. I haven't posted for a while but have been following all the advice from this site. I felt that my Dr gave up on me as i havent heard from her in 8 weeks now. I decided to pay privately to see a rheumatologist as it seems most of you were sent to one. What a relief to talk
Cosmos22Marigold
in
PMRGCAuk
3 years ago
Dry Eyes and humidity
Since we have had the warm weather recently my eyes have been very comfortable. I assume it is because of the humidity inside and out. I have also done a lot of washing to hang indoors , so the humidity is over 50 %. It is a change to have to remember to install the lubricant drops, usually it is difficult
Since we have had the warm weather recently my eyes have been very comfortable. I assume it is because of the humidity inside and out. I have also done a lot of washing to hang indoors , so the humidity is over 50 %. It is a change to have to remember to install the lubricant drops, usually it is difficult
muddledme
in
Glaucoma UK
3 years ago
Pupil Very Dilated and Sore...
I had injections yesterday as my pressure was too low and vision was blurry. Vision has improved a lot although still slightly blurry but my eye is very red and a bit painful and pupil is enormous. Has anyone experienced this after injections?
I had injections yesterday as my pressure was too low and vision was blurry. Vision has improved a lot although still slightly blurry but my eye is very red and a bit painful and pupil is enormous. Has anyone experienced this after injections?
Hidden
in
Glaucoma UK
3 years ago
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Sore mouth
I’ve been having B12 injections every 2 weeks I’m now on my fourth, I’ve found a real improvement in most of my symptoms but still have burning feet and a really sore tongue and mouth, will this eventually improve?
I’ve been having B12 injections every 2 weeks I’m now on my fourth, I’ve found a real improvement in most of my symptoms but still have burning feet and a really sore tongue and mouth, will this eventually improve?
Hidden
in
Pernicious Anaemia Society
3 years ago
Light at the end of the tunnel
I've been waiting to post about my recent experiences until I could say don't be disheartened when reading this as my experience isn't typical and does have a good outcome so I hope others will find something to help them. I've known for many years I have glaucoma in my right eye, have lost quite a lot
I've been waiting to post about my recent experiences until I could say don't be disheartened when reading this as my experience isn't typical and does have a good outcome so I hope others will find something to help them. I've known for many years I have glaucoma in my right eye, have lost quite a lot
Eahldt
in
Glaucoma UK
3 years ago
The eyes have it?
Afternoon all, Has anyone with an MPN every had VMT of the eyes, I have just been told after a second scan that my blurred vision is what the problem is, and being referred urgently, with the possibility of an operation to remove the gel that is detaching itself from the retina in both eyes. They told
Afternoon all, Has anyone with an MPN every had VMT of the eyes, I have just been told after a second scan that my blurred vision is what the problem is, and being referred urgently, with the possibility of an operation to remove the gel that is detaching itself from the retina in both eyes. They told
Superwoman
in
MPN Voice
3 years ago
Cataract procedure
I have just had a call from the eye clinic to book me in for a cataract op in two weeks time. This will be my first, so am feeling pretty terrified. I am going the week before that for a scan, measurements etc. I have been told I can have distance or reading strengths, had hoped for something in-between
I have just had a call from the eye clinic to book me in for a cataract op in two weeks time. This will be my first, so am feeling pretty terrified. I am going the week before that for a scan, measurements etc. I have been told I can have distance or reading strengths, had hoped for something in-between
Engima
in
Glaucoma UK
3 years ago
SIBO and Elevated Liver Enzymes
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
Pain12345
in
Pernicious Anaemia Society
3 years ago
Effects of Pfizer.
Has anybody else had this problem? I was on Pegasys and then after my first Pfizer injection all my blood counts, haem, whites and platelets dropped dramatically. So my consultant stopped my Pegasys. This happened in January and my cc is still all low. My counts have been perfect for years before this
Has anybody else had this problem? I was on Pegasys and then after my first Pfizer injection all my blood counts, haem, whites and platelets dropped dramatically. So my consultant stopped my Pegasys. This happened in January and my cc is still all low. My counts have been perfect for years before this
Anita53
in
MPN Voice
3 years ago
FEEL LIKE I’M GOING BLIND!
My anxiety and depersonalization are really bad at the moment… Yesterday I had a panic attack, and since then my vision has been kinda weird… I don’t know how to describe it, but I can’t focus on anything… My eyesight is “off” and I feel like I can’t see… I’m sure I’m going blind! I can’t focus on anything
My anxiety and depersonalization are really bad at the moment… Yesterday I had a panic attack, and since then my vision has been kinda weird… I don’t know how to describe it, but I can’t focus on anything… My eyesight is “off” and I feel like I can’t see… I’m sure I’m going blind! I can’t focus on anything
Anneber04
in
Anxiety Support
3 years ago
CBD Oil
I am new to this and after following the posts for sometime I thought someone may have some advice. I have had AF for 3 years now without any major drama's so far but do suffer from a Sjogrens Syndrome which has numerous issues. I would like to try CBD oil for pain and anxiety but unsure of the effects
I am new to this and after following the posts for sometime I thought someone may have some advice. I have had AF for 3 years now without any major drama's so far but do suffer from a Sjogrens Syndrome which has numerous issues. I would like to try CBD oil for pain and anxiety but unsure of the effects
dorisbtn
in
AF Association
3 years ago
Update from Sunshine
I had a thought, as you do that I ought to contact the eye clinic and pose the following question - I have been given two dates, July 13th for biopsy on lower right eyelid and July 23rd for cataract on right eye, so is it ok to have the both procedures so close? The consultant phoned and said if I had
I had a thought, as you do that I ought to contact the eye clinic and pose the following question - I have been given two dates, July 13th for biopsy on lower right eyelid and July 23rd for cataract on right eye, so is it ok to have the both procedures so close? The consultant phoned and said if I had
Sunshine88888888
in
Glaucoma UK
3 years ago
Eye feels weak/barely there
I'm about 7 weeks post tube shunt surgery and have been getting very low pressures around 2-4 causing blurry vision. I had gel injections in the eye yesterday to get the pressure up. This has resulted in a decrease in the blurryness (although still not 100%) but on the negative side my eye feels very
I'm about 7 weeks post tube shunt surgery and have been getting very low pressures around 2-4 causing blurry vision. I had gel injections in the eye yesterday to get the pressure up. This has resulted in a decrease in the blurryness (although still not 100%) but on the negative side my eye feels very
Hidden
in
Glaucoma UK
3 years ago
I feel i’ve caught MRSA at my Infusion Clinic. Anyone else had this?
I sometimes read the posts on here. But i’m not a ‘regular’. I’ve had RA since i was 21. (Turned 50 last month!) I have an Infliximab infusion every 6 weeks. I have iritis & glaucoma too. I’ve been getting serious ear infections since Nov 2019. Recurring all the bloody time. I’ve been feeling exhausted
I sometimes read the posts on here. But i’m not a ‘regular’. I’ve had RA since i was 21. (Turned 50 last month!) I have an Infliximab infusion every 6 weeks. I have iritis & glaucoma too. I’ve been getting serious ear infections since Nov 2019. Recurring all the bloody time. I’ve been feeling exhausted
Vixen2
in
NRAS
3 years ago
Reducing Pegasys dose?
Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platelets down to 480 on last count. Because side effects are an issue for me (mostly just soooo tired of feeling tired!) I’m wondering about reducing the dose to see if fatigue improves 🤔 Obviously will talk to my haematologist
Hi gang! I’m currently on 90mcg Pegasys weekly and responding well with platelets down to 480 on last count. Because side effects are an issue for me (mostly just soooo tired of feeling tired!) I’m wondering about reducing the dose to see if fatigue improves 🤔 Obviously will talk to my haematologist
IrishSarah
in
MPN Voice
3 years ago
Miralax
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Shumbah
in
Restless Legs Syndrome
3 years ago
Interesting article from Beverley Hunt regarding DOACs in APS
Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and unprovoked venous thromboembolism: a single centre experience Andrew J. Doyle, Beverley J. Hunt, Anicee Danaee, Gavin Ling, Michael J. Desborough, Pulin
Apologies, the link didn’t work … you will have to look it up ;) Ray x Direct oral anticoagulant use in patients with antiphospholipid syndrome and unprovoked venous thromboembolism: a single centre experience Andrew J. Doyle, Beverley J. Hunt, Anicee Danaee, Gavin Ling, Michael J. Desborough, Pulin
RazD
in
Hughes Syndrome APS Forum
3 years ago
Are my side effects from adalimumab normal and will they fade?
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
I’ve recently been put on adalimumab for my RA. The first injection seemed like a wonder drug as I could feel the difference almost immediately and was moving in ways I haven’t for years. The second injection doesn’t seem to have done anything except show me some unfortunate side effects. Racing heart
Blkstaffy
in
NRAS
3 years ago
Vitamin B3 trial results
Results of a pilot study of 2 low doses (100 & 250mg) of Niacin (vitamin B3 derivative) in 47 people with #Parkinsons; 3-month double-blinded (vs placebo) run-in + 12 month open label study; 3.5 point average improvement in the UPDRS III, inflammation https://www.frontiersin.org/articles/10.3389/fnagi
Results of a pilot study of 2 low doses (100 & 250mg) of Niacin (vitamin B3 derivative) in 47 people with #Parkinsons; 3-month double-blinded (vs placebo) run-in + 12 month open label study; 3.5 point average improvement in the UPDRS III, inflammation https://www.frontiersin.org/articles/10.3389/fnagi
Farooqji
in
Cure Parkinson's
3 years ago
A long journey, getting too tired..
I've been managing my anxiety and depression on my own pretty much done I was 4 and had my first panic attack. I've gone through I grew treatment centers but the only thing I learned was how to fool the staff to get out so I could go back in solitude at my (abusive) home. Now I have kids of my own
I've been managing my anxiety and depression on my own pretty much done I was 4 and had my first panic attack. I've gone through I grew treatment centers but the only thing I learned was how to fool the staff to get out so I could go back in solitude at my (abusive) home. Now I have kids of my own
Anonymous202
in
Anxiety and Depression Support
3 years ago
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