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Eye pain
Has anyone had eye pain that improved once they began treatment? I have eye pain in only right eye, I have seen ophthalmologist. retina specialist, and neurologist. I’ve been treated for migraines, but a dull pain still remains, My MPN specialist said it may be side effect from MPN ? Any thoughts?
Has anyone had eye pain that improved once they began treatment? I have eye pain in only right eye, I have seen ophthalmologist. retina specialist, and neurologist. I’ve been treated for migraines, but a dull pain still remains, My MPN specialist said it may be side effect from MPN ? Any thoughts?
Bears23
in
MPN Voice
1 year ago
Advice about hair loss please
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Hi, so diagnosed with sub hypo 2 months ago with very raised antibodies. I've been on 50mg levo which was raised due to symptoms after a few weeks so now on 75mg. But while I have seen an improvement in other symptoms my hair is shedding even more. Can anyone advise how long does it take to calm down
Catsrock23
in
Thyroid UK
1 year ago
What I see where my vision is impaired
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
Alberni79
in
Macular Society
1 year ago
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Glaucoma suspect
Please let me know if high IOC can suddenly cause headaches even though not diagnosed with Glaucoma. Waking up with headaches sweating dry mouth last week since attending eye clinic. Dont know if connected to eyes or just stress after consultant telling me to start eye drops as preventative. Appreciate
Please let me know if high IOC can suddenly cause headaches even though not diagnosed with Glaucoma. Waking up with headaches sweating dry mouth last week since attending eye clinic. Dont know if connected to eyes or just stress after consultant telling me to start eye drops as preventative. Appreciate
Emerneurosis
in
Glaucoma UK
1 year ago
Confused about reliability of visual fields tests results
Hello everyone,I'm feeling confused about how visual fields tests relate to real life experience of visual changes. I'm wondering how to communicate with consultants etc if what I experience, and what their tests say, don't match up. Today at my glaucoma clinic appointment I did a visual fields test
Hello everyone,I'm feeling confused about how visual fields tests relate to real life experience of visual changes. I'm wondering how to communicate with consultants etc if what I experience, and what their tests say, don't match up. Today at my glaucoma clinic appointment I did a visual fields test
Iona57
in
Glaucoma UK
1 year ago
Tissue Press Method for Instilling Eyedrops
Hello from Canada. While I am new here, I am not new to glaucoma. I’ve been taking drops for 10 years and have had two SLT surgeries. Covid delays have really slowed testing and seeing an opthamologist so I am really not sure about the progression of my glaucoma. I have to wait until April for a visual
Hello from Canada. While I am new here, I am not new to glaucoma. I’ve been taking drops for 10 years and have had two SLT surgeries. Covid delays have really slowed testing and seeing an opthamologist so I am really not sure about the progression of my glaucoma. I have to wait until April for a visual
Blackie1234
in
Glaucoma UK
1 year ago
Houston Research Organization Successfully Treats 24 Patients in FDA-Authorized Parkinson’s Study
In this Phase II, double blind, placebo-controlled study, 24 patients received six intravenous infusions of 200 million stem cells each over a 32-week period, or approximately 1.2 billion cells total. The trial is the first globally to administer pure mesenchymal stem cells, an adult stem cell harvested
In this Phase II, double blind, placebo-controlled study, 24 patients received six intravenous infusions of 200 million stem cells each over a 32-week period, or approximately 1.2 billion cells total. The trial is the first globally to administer pure mesenchymal stem cells, an adult stem cell harvested
Farooqji
in
Cure Parkinson's
1 year ago
scaredycat!
Hi everyone my consultant is wanting me to have a cataract and stent op to bring my pressures down but iam terrified of being awake for any eye op. I actually asked him if he could put me to sleep and do it!!How does anyone get over this fear and anxiety. Have thought of nothing else for weeks. Surely
Hi everyone my consultant is wanting me to have a cataract and stent op to bring my pressures down but iam terrified of being awake for any eye op. I actually asked him if he could put me to sleep and do it!!How does anyone get over this fear and anxiety. Have thought of nothing else for weeks. Surely
callie77
in
Glaucoma UK
1 year ago
Dry Eye Masks
Hi, can you use a dry eye mask if you have had both eyes operated with the Preserflo Microshunt. Had my eyes tested at the opticians and they suggested using one. Surely the hospital would have also suggested it? It’s the thought of putting something warm on both eyes and then the instructions to wipe
Hi, can you use a dry eye mask if you have had both eyes operated with the Preserflo Microshunt. Had my eyes tested at the opticians and they suggested using one. Surely the hospital would have also suggested it? It’s the thought of putting something warm on both eyes and then the instructions to wipe
Flowergirl24
in
Glaucoma UK
1 year ago
Unhappy experience with Specsavers
My elderly father visited Specsavers as instructed by the DVLA for his 3 yearly field test (he has glaucoma but this condition has been stable for years); my father is not computer literate and equates the field test equipment as a computer causing a lot of stress. The staff did not inform him he could
My elderly father visited Specsavers as instructed by the DVLA for his 3 yearly field test (he has glaucoma but this condition has been stable for years); my father is not computer literate and equates the field test equipment as a computer causing a lot of stress. The staff did not inform him he could
E853
in
Glaucoma UK
1 year ago
Iopidine after SLT
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
As I am so allergic to most eye drops yesterday I had SLT as the pressure has been going up. I read that after having this you can have a pressure spike and was really worried because after my cataract surgery the pressure went from 20 to34 and I had to take Acetazolamide for two weeks which made me
booktwo
in
Glaucoma UK
1 year ago
Concern about getting more Covid-19 vaccines.
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
I was diagnosed under 2 years ago. I guess I’ve had it since 2007. Just wondering about getting more Covid-19 vaccines. I have believed it is a good idea to get them. But every time I have I get some very odd things I’ve never experienced before. Rash. Sore in my eye. Eye infection. I cut my arm and
Y5cc8j
in
CLL Support
1 year ago
Scared to death
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Had my laser iridotomy today.Anxious all day.Had it done wasn't too bad.However my pressure spiked at 39. Started shaking. Doctor was fab.Gave me medication loads of drops Got to take tablets for 3 days and immflammatory drops for 7 days. Going to go back tomorrow to get pressuees checked.tablets run
Paula1710
in
Glaucoma UK
1 year ago
Glycine
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
is glycine powder safe for Rls ? To use at night before bed? It helps me as well as magnesium glycinate but I am not using for rls. Anyone know?
RCHD
in
Restless Legs Syndrome
1 year ago
Mixed up with recent diagnosis
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Hi everyone. It has been so good to read all the different posts about Glaucoma and Glaucoma suspect and interocular eye pressure. I was with private consultant here in Ireland just three days ago who did visual field test and put in the dye etc. to exam my optic nerve. She said optic nerve seemed normal
Emerneurosis
in
Glaucoma UK
1 year ago
Eye side effects on biologics for rheumatoid arthritis
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Has anyone else has very dry and sore eyes on biologics? Did it get better over time or did you have to stop/ switch to an alternative? I had this with adalimumab (Amgevita) so switched to etanercept (Benepali) but the same thing is happening again. I’m so keen to get better but my eyes are very sore
Cocobean1
in
NRAS
1 year ago
APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
1 year ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
1 year ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
1 year ago
Hi fellow sufferers.
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
Mando007
in
Macular Society
1 year ago
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