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APs and Fatigue
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Hi I have had APS since 2016, living in Norway and have “fatigue”. This is by far the most demanding problem with my APS. I read on the APS support UK page the following recommendation: “Take 200-400g hydroxychloroquine daily. This drug has long been used to treat fatigue and joint pain in autoimmune
Jonr
in
Hughes Syndrome APS Forum
2 years ago
Not diagnosed yet, suffering for many years
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
Hi everyone, My name is Kimberly, I live in Northwestern United States. I have been struggling with symptoms for years and had no idea this could be MS. I’ve had a hard time going up stairs as well as walking on flat ground for several months, maybe a year. My legs feel as though they weigh a hundred
GrmaK
in
My MSAA Community
2 years ago
Itchy eyes
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
I know that glaucoma makes our eyes sensitive, and I do use lubricating eye drops SO many times during the day, but I still find that my eyes - especially inner eye, and around the base of the lids - gets really itchy. And of course we can't scratch our eyes. So does anybody else find this, and if so
PBX142
in
Glaucoma UK
2 years ago
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EMDR !
Hey guys ! I had my second session today for EMDR therapy for some trauma healing and I feel like it’s not working at all . Should I have more patience with this ? Thanks
Hey guys ! I had my second session today for EMDR therapy for some trauma healing and I feel like it’s not working at all . Should I have more patience with this ? Thanks
Sushi2345
in
My OCD Community
1 year ago
Hi fellow sufferers.
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
I am new here but have suffered from wet AMD since January 2021 and have had several injections of Eylea in both eyes since. I am currently stable and on an 8 week re-check each time. I also suffer from diplopia (double vision) and this eye problem conflicts with the AMD disease making it difficult
Mando007
in
Macular Society
2 years ago
Ocular hypertension
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
I have ocular hypertension and narrow angles. I have had a successful iridotomy but my pressures remain between 20-30 . Never higher and never lower. My glaucoma consultant whom I saw this week is happy. My eyes are stable. Good visual fields. No optic nerve damage. I use Tiopex and Latanopost drops
EthelPledge94
in
Macular Society
2 years ago
mtx and adalimumab/ Idacio
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
Hi please could anyone let me know if they have changed from mtx tablets to Idacio ? I was told that you still have to take mtx tablets but at a lower dose with Idacio ? I was told biologics can work within a couple of weeks ?? I don't know if I want to go down the biologics route yet, I am a bit
lindyloo2018
in
NRAS
2 years ago
Amlopidine
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
Hi all...a few weeks ago there was a thread on here about a possible connection between high eye pressure/eye conditions and Amlopidine blood pressure tablets I have since attended two appointments at Kings College Hospital ....glaucoma clinic (I'm a glaucoma suspect) and medical retina clinic (
EthelPledge94
in
Glaucoma UK
2 years ago
Just diagnosed
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
HiI've just been diagnosed with Primary Angle closure.Opthamologist says no glaucoma.Im on pilocarpine drops.Eye pressure both eyes 25.Apparantley my eyes are small.Have dry eyes too Bit scared to be honest having anxiety I'm having laser peripheral iridotomy I was shaking today getting the tests nearly
Paula1710
in
Glaucoma UK
2 years ago
EMDR therapy for depression?
https://my.clevelandclinic.org/health/treatments/22641-emdr-therapy Anyone experienced EMDR therapy? Would you give it a try? Thoughts?
https://my.clevelandclinic.org/health/treatments/22641-emdr-therapy Anyone experienced EMDR therapy? Would you give it a try? Thoughts?
Renizzle2023
in
Anxiety and Depression Support
1 year ago
It's too much. All the medical procedures. Homesick. Getting into hospital on Monday
For my nose not mental health. But it's one hell of a time booking it all, going through all kinds of proffesionals. In Bulgaria something hurts you, you go to doc 1 , they send you to doc 2, they send you to doc 3, they send you to tests. You end up either okay or hospitalised or worse from all those
For my nose not mental health. But it's one hell of a time booking it all, going through all kinds of proffesionals. In Bulgaria something hurts you, you go to doc 1 , they send you to doc 2, they send you to doc 3, they send you to tests. You end up either okay or hospitalised or worse from all those
Against_the_current
in
Anxiety and Depression Support
1 year ago
Seeing an MPN Specialist tomorrow!
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
I have an appointment at Stanford with an MPN Specialist tomorrow. Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of Pegasys once a week. We are in a transitional period right now and I will eventually just be taking Pegasys and aspirin. Took my 4th dose
Zeppelin11
in
MPN Voice
2 years ago
Levothyroxine for Underactive thyroid
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
I cannot tolerate Levothyroxine and wondered what other options are available to me. I have not taken any medications for nearly five years now. I also have Ehlers-Danlos Syndrome and Mast Cell Activation Syndrome. I am confused what symptoms are connected with Hypothyroidism and what can be attributed
Vallinkinpark
in
Thyroid UK
2 years ago
Microcystic Edema in glaucoma patient
Hi, my mother has had microcystic edema in both eyes discovered. Have been told there is a possibility that taking Xalatan drops could be connected. Wondered if anyone else has this condition and any talk of these drops being linked to it? Thanks.
Hi, my mother has had microcystic edema in both eyes discovered. Have been told there is a possibility that taking Xalatan drops could be connected. Wondered if anyone else has this condition and any talk of these drops being linked to it? Thanks.
Lionella
in
Glaucoma UK
2 years ago
Trabeculectomy and theme parks
I had a trab done in one eye following trauma induced high IOP last June. Pressures have been stable since November at around 14.I'm going to a theme park soon (Disney Paris - very excited!) - does anyone know if there are restrictions on roller-coasters with trabs? I'm going with kids, so won't be doing
I had a trab done in one eye following trauma induced high IOP last June. Pressures have been stable since November at around 14.I'm going to a theme park soon (Disney Paris - very excited!) - does anyone know if there are restrictions on roller-coasters with trabs? I'm going with kids, so won't be doing
MatthewC
in
Glaucoma UK
2 years ago
Mild Sjogrens? Is that a thing?
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
I've googled it and I still have no idea. Lots of cross over symptoms with thyroid but I've started pondering on my dry eyes and mouth. Neither are dry to the point of pain but my husband has noticed I've developed an eye 'tic'. I'm sort of rolling my eyes and opening my eyes wide; I've realised
Hidden
in
Thyroid UK
1 year ago
question for those with sight loss…….
can I ask of those that have experienced sight loss, has this been since your GCA diagnosis (and possibly already getting treatment) or was it part of the problem(s) that made you seek help….if you get what I mean ? I have had a “lazy” eye since birth, with limited vision (can’t see in detail) the other
can I ask of those that have experienced sight loss, has this been since your GCA diagnosis (and possibly already getting treatment) or was it part of the problem(s) that made you seek help….if you get what I mean ? I have had a “lazy” eye since birth, with limited vision (can’t see in detail) the other
Cfmad298601
in
PMRGCAuk
2 years ago
Trab after failed shunt
Hello. This is my first post so please bear with me. About a year ago I had a shunt inserted which I thought would be an end to my problems. After a lot of delayed appointments my IOP has started to creep back up, and my doctor has suggested a trab. My next visit is in 6 months, which I think is
Hello. This is my first post so please bear with me. About a year ago I had a shunt inserted which I thought would be an end to my problems. After a lot of delayed appointments my IOP has started to creep back up, and my doctor has suggested a trab. My next visit is in 6 months, which I think is
PeteJones
in
Glaucoma UK
2 years ago
timing of your medication monitoring blood tests
good morning all and thank you all for your kind and caring responses to my previous question. My query today is: has anyone ever found that having a blood test close to methotrexate day (or within two weeks of having a wee Drinkie…) impacts the liver reading? I normally ensure this doesn’t happen
good morning all and thank you all for your kind and caring responses to my previous question. My query today is: has anyone ever found that having a blood test close to methotrexate day (or within two weeks of having a wee Drinkie…) impacts the liver reading? I normally ensure this doesn’t happen
Bon1
in
NRAS
2 years ago
Glaucoma - dealing with glare.
Hello, I was diagnosed several years ago. I use Monoprost drops in my right eye and had a trab in my left a few years ago. Left is getting worse slowly, right is quietly developing a cataract. I'm also bothered by blepharitis, dry eye and being aged 73 - lol. In other words, nothing unusual going on.
Hello, I was diagnosed several years ago. I use Monoprost drops in my right eye and had a trab in my left a few years ago. Left is getting worse slowly, right is quietly developing a cataract. I'm also bothered by blepharitis, dry eye and being aged 73 - lol. In other words, nothing unusual going on.
Quiet_Lin
in
Glaucoma UK
2 years ago
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