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Restrictive lung disease and copd.
Hello, I'm new here or to any online group. I've been fighting restrictive lung disease and copd along with asthma since 2004. Along the way I developed congested heart failure. I've had good years and bad months. Although I've been hospitalized twice in the last 4 months. I'm 45 and not ready to give
Hello, I'm new here or to any online group. I've been fighting restrictive lung disease and copd along with asthma since 2004. Along the way I developed congested heart failure. I've had good years and bad months. Although I've been hospitalized twice in the last 4 months. I'm 45 and not ready to give
db5570
in
Lung Conditions Community Forum
9 years ago
Where to start??!!
Hi, been reading the posts on here for a while now, thought it was about time I posted. My dad got told 18 months ago he had Parkinson's plus, later changed to PSP, he's 85 and not doing great. Doctors came in last weeks after he fought 2 lots of pneumonia in 3 weeks and told us that there will come
Hi, been reading the posts on here for a while now, thought it was about time I posted. My dad got told 18 months ago he had Parkinson's plus, later changed to PSP, he's 85 and not doing great. Doctors came in last weeks after he fought 2 lots of pneumonia in 3 weeks and told us that there will come
Hidden
in
PSP Association
9 years ago
Hello All of you
Hi, until now the only thing I have posted has had stamps. Birds tweet and I have never photographed my dinner . So, this is a first, as is PSP. My wife, Bugs, has had problems of double vision, falls, choking/swallowing for over 5 years and about 18 months ago her speech became more mumbled/quiet. This
Hi, until now the only thing I have posted has had stamps. Birds tweet and I have never photographed my dinner . So, this is a first, as is PSP. My wife, Bugs, has had problems of double vision, falls, choking/swallowing for over 5 years and about 18 months ago her speech became more mumbled/quiet. This
Tokki
in
PSP Association
9 years ago
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Small cell lung cancer information and support
Hello Everyone, We would very much value and appreciate your feedback on the development of an information product on small cell lung cancer. The following topics are being proposed for inclusion: * What is small cell lung cancer? * Signs and symptoms of small cell lung cancer * Diagnosis of small
Hello Everyone, We would very much value and appreciate your feedback on the development of an information product on small cell lung cancer. The following topics are being proposed for inclusion: * What is small cell lung cancer? * Signs and symptoms of small cell lung cancer * Diagnosis of small
OllieScott
in
The Roy Castle Lung Cancer Foundation
9 years ago
update
after 2 years and 2 months when I was told I had 6 months to live its finally caught up with me I have copd & pulmonary fibrosis and have phseudamonus infection. I was admitted to hospital was on iv antibiotics for 3 days sent home on4th day with antibiotics seen consultant told no more treatment as
after 2 years and 2 months when I was told I had 6 months to live its finally caught up with me I have copd & pulmonary fibrosis and have phseudamonus infection. I was admitted to hospital was on iv antibiotics for 3 days sent home on4th day with antibiotics seen consultant told no more treatment as
teaky-19
in
Lung Conditions Community Forum
9 years ago
Urinary incontinence
Hello, I'm on palliative care only for Liver Disease and as the time has gone on I have now become 24/7 bladder incontinence and to get them to work for example a convene sheath. The day and night time bags which are mostly the same no matter who the maker of them is but the issue is that no matter
Hello, I'm on palliative care only for Liver Disease and as the time has gone on I have now become 24/7 bladder incontinence and to get them to work for example a convene sheath. The day and night time bags which are mostly the same no matter who the maker of them is but the issue is that no matter
Steve-N
in
British Liver Trust
9 years ago
Bitter Sweet meeting with my son?
Went to another hospital with my son and daughter in law to discuss the transplant plan for my son's AML. The Doctor was describing it all with utter compassion and in a way that was easily understood. It is such a process that they have to have him as fit as they can but they have to flatten all that
Went to another hospital with my son and daughter in law to discuss the transplant plan for my son's AML. The Doctor was describing it all with utter compassion and in a way that was easily understood. It is such a process that they have to have him as fit as they can but they have to flatten all that
Offcut
in
Lung Conditions Community Forum
9 years ago
In My Bed
This might be of interest. It comes from Sydney, Australia, and is a doctor reflecting on issues surrounding palliative care at home. So some things will be different because it is another part of the world, but some issues are the same. Hospices are well geared up to tackle these issues by the
This might be of interest. It comes from Sydney, Australia, and is a doctor reflecting on issues surrounding palliative care at home. So some things will be different because it is another part of the world, but some issues are the same. Hospices are well geared up to tackle these issues by the
Hidden
Volunteer
in
OPA Palliative Care & Guidance
9 years ago
Upcoming surgery
Hello All I've got my surgery coming up in a few weeks time. While I'm looking forward to it being over, I am feeling a bit scared I have to say. Is it that bad? I've had five caesareans in the past, and never worried about these, but just feeling really apprehensive. Also, I've been told by the palliative
Hello All I've got my surgery coming up in a few weeks time. While I'm looking forward to it being over, I am feeling a bit scared I have to say. Is it that bad? I've had five caesareans in the past, and never worried about these, but just feeling really apprehensive. Also, I've been told by the palliative
phia
in
My Ovacome
9 years ago
Some Breast Cancer Survivors Feel Like 'New Species'
As some patients with metastatic breast cancer live beyond their expected survival, they must deal with an unprepared healthcare profession, prejudice, and threats to their treatment from cost-cutting measures, according to experts speaking here at the Advanced Breast Cancer Third International Consensus
As some patients with metastatic breast cancer live beyond their expected survival, they must deal with an unprepared healthcare profession, prejudice, and threats to their treatment from cost-cutting measures, according to experts speaking here at the Advanced Breast Cancer Third International Consensus
roxboxfox
RadiationOncologist
in
Breast Cancer India
9 years ago
Not my last Chemo
Arrived at hospital today to begin my last chemo on carbo and to have a PET scan.due to staff shortages , I was later than usual getting chemo and they were awaiting an age for bloods to come back,So I started drinking the contrast dye while on chemo and the nurse rang radiology told them I wouldn't
Arrived at hospital today to begin my last chemo on carbo and to have a PET scan.due to staff shortages , I was later than usual getting chemo and they were awaiting an age for bloods to come back,So I started drinking the contrast dye while on chemo and the nurse rang radiology told them I wouldn't
annieH1
in
OvaCare
9 years ago
Richard Isaacs MD: California HealthCare Foundation Announces Fellows for Health Care Leadership Program
CHCF has announced the selection of 30 health professionals for the ninth class of its Health Care Leadership Program. The California HealthCare Foundation (CHCF) has announced the selection of 30 health professionals for the ninth class of its Health Care Leadership Program. The program equips talented
CHCF has announced the selection of 30 health professionals for the ninth class of its Health Care Leadership Program. The California HealthCare Foundation (CHCF) has announced the selection of 30 health professionals for the ninth class of its Health Care Leadership Program. The program equips talented
fenellasparks
in
Thyroid Cancer Support
9 years ago
"But you look so well, why are you on steroids?!"
Hello all: I had that question come down the phone the other day from one of my oldest, best friends who is more like a brother (& his wife is like a sister). I just paused, thinking: even he doesn't get it...after all these decades & all my illness.😖 So, I said to him: come on, you know that I'm
Hello all: I had that question come down the phone the other day from one of my oldest, best friends who is more like a brother (& his wife is like a sister). I just paused, thinking: even he doesn't get it...after all these decades & all my illness.😖 So, I said to him: come on, you know that I'm
Barnclown
in
LUPUS UK
9 years ago
Carbimozole and sleep apnea?
But listening to my body, I just know something is wrong; I was given a formal diagnoses of having an over active thyroid in May 2015, and having a lot of antibodies appeared to be because of Graves Disease triggered by stress (I'm a single parent and
carer
of my two autistic sons, with no hands on
support
But listening to my body, I just know something is wrong; I was given a formal diagnoses of having an over active thyroid in May 2015, and having a lot of antibodies appeared to be because of Graves Disease triggered by stress (I'm a single parent and
carer
of my two autistic sons, with no hands on
support
JackieOR
in
Thyroid UK
9 years ago
Here's a way we patients can get doctors to do what we want, e.g. palliative care, rather than what they want, e.g. more operations
Atul Gawande is the surgeon/author who,after dealing with the final illness of his father, wrote the bestseller, Being Mortal, in which he meditates on how we can better deal with age-related frailty, serious illness and approaching death. He is a wonderful writer and thinker. Overkill, his most recent
Atul Gawande is the surgeon/author who,after dealing with the final illness of his father, wrote the bestseller, Being Mortal, in which he meditates on how we can better deal with age-related frailty, serious illness and approaching death. He is a wonderful writer and thinker. Overkill, his most recent
gleeson
in
Cure Parkinson's
9 years ago
end of life .
well after picking up my fathers palliative care box today i felt like i had been given a loaded gun. I know bits of my thinking this isnt right then i look at my father and say to my self it wont be used for a while i hope however, We all know copd is a very nasty and fast developing seeing someone
well after picking up my fathers palliative care box today i felt like i had been given a loaded gun. I know bits of my thinking this isnt right then i look at my father and say to my self it wont be used for a while i hope however, We all know copd is a very nasty and fast developing seeing someone
stevewebb
in
Lung Conditions Community Forum
9 years ago
Carer Support Appointment.. Long overdue x
After 3.5 years I am seeing someone through the NHS for me as the wife of someone with a brain injury. It's booked for 4th Sept & as you can imagine well overdue. My husband has had to move out as we can't live together atm & it's breaking my heart :( Has anyone else had this kind of experience -
After 3.5 years I am seeing someone through the NHS for me as the wife of someone with a brain injury. It's booked for 4th Sept & as you can imagine well overdue. My husband has had to move out as we can't live together atm & it's breaking my heart :( Has anyone else had this kind of experience -
mowgli123
in
Headway
9 years ago
Relatives of Cancer
Hi there, its day 2 of our family being hit by the hardest news ever, that my dad has advanced lung cancer which has spread into his bones. I live in Ireland and my Dad in the UK. I saw him last weekend before diagnosis and he looked like a frail old man, hes only 66. I just knew inside last weekend
Hi there, its day 2 of our family being hit by the hardest news ever, that my dad has advanced lung cancer which has spread into his bones. I live in Ireland and my Dad in the UK. I saw him last weekend before diagnosis and he looked like a frail old man, hes only 66. I just knew inside last weekend
dcryan77
in
Lung Conditions Community Forum
9 years ago
Fungal infection Trust Scottish patient information Forum for aspergillosis
Our regional groups aim to provide local
support
to people living with aspergillosis (patient &
carer
) by providing social
support
and support from NAC resources.
Our regional groups aim to provide local
support
to people living with aspergillosis (patient &
carer
) by providing social
support
and support from NAC resources.
fcag2001
in
Aspergillosis and Rare Fungal Infection Support
9 years ago
RESEARCH SURVEY: James Lind Alliance: Adults with Fibromyalgia Survey, Have you got the time to take part?
Hi everyone
:)
Here's an opportunity to help the direction of future research studies into the 'Priorities of Adults with Fibromyalgia.
[i]Taken from the James Lind Alliance: Adults with Fibromyalgia Survey this explains the basic details of the study that can be found on the link given
Hi everyone
:)
Here's an opportunity to help the direction of future research studies into the 'Priorities of Adults with Fibromyalgia.
[i]Taken from the James Lind Alliance: Adults with Fibromyalgia Survey this explains the basic details of the study that can be found on the link given
Hidden
in
Fibromyalgia Action UK
9 years ago
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