Small cell lung cancer information and support

Hello Everyone,

We would very much value and appreciate your feedback on the development of an information product on small cell lung cancer. The following topics are being proposed for inclusion:

* What is small cell lung cancer?

* Signs and symptoms of small cell lung cancer

* Diagnosis of small cell lung cancer

* Stages of small cell lung cancer

* Treatment of limited small cell lung caner

* What treatment is available if my cancer is extensive?

* What can be done to stop my cancer spreading?

* Managing the practical and emotional impact

* Palliative care

* Want more information

From a patient perspective or someone who looks after someone with small cell lung cancer. Please can you tell us of any topics that you would like to see covered in this resource.

We are also keen to feature photographs and quotes of patients who currently have small cell lung cancer on the front over and in other appropriate places in this resource. If you would like to feature, please let me know.

Many thanks for all your help and support in the development of this information product.

Best wishes,

Ollie

Information Support Services Manager

Roy Castle Lung Cancer Foundation

4 Replies

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  • Hi Ollie

    Just reading your post, I think all the subjects listed are very important. I was diognosed November 2014 luckily operated on 24th December 2014 my surgeon was marvellous, said he managed to remove all the tumor which left me with 40% of my left lung. I had four session of chemo and am now after lots of other minor things starting to get my life back. I was 71 when I had he surgery. Apart from feeling breathless and tired quicker, I am doing well.

    What you propose to do is very good, I would like to see more about after surgery and chemo. What to expect living with limited breathing and stamina. Although I have to say on reading some of the posts on this site, they all seem such a lively lot, making the most of everything they have, and giving advice when they can to others.

    Thank you for taking the time to develop another product which will help people like myself. I forgot to say, I was a very fit lady before this, never smoked so was amazed when diognised, didn't realise that Lung Cancer had the leadt spent on research because of the smoking stigma attached. I think the attitude is changing now because this particular strain affects young people as well.

    Best of luck with your project.

    Hilde72

  • Hi Hilde 72,

    Thank you very much for your feedback regarding subjects listed to be included in the small cell information resource. Your feedback is invaluable and very much appreciated. Good news indeed about your progress following your surgery. Hope that you are able to manage your breathless. We do provide information on Breathlessness and Tiredness (fatigue) which can be found in our Managing lung cancer symptoms booklet. You can order copies of this information at roycastle.org/ordersupplies, via the website or by calling us on 0333 323 7200 (option 2) or e-mail info@roycastle.org if you need any further information or support. Thank you very much for sharing your views and the topics that you would like to see included. Your views, as someone affected by lung cancer, will help us shape our services. If you would like to become more involved in sharing your experience and being one of our lung cancer Voices or Volunteers do get in touch.

    We are also keen to feature photographs and quotes of patients who currently have small cell lung cancer on the front over and in other appropriate places in this resource. If you would like to feature, please let me know.

    We wish you all the best and if we can be of any help in the future or you want to share more of your experience with us please do get in touch.

    Best wishes

    On behalf of the Information and Support team

  • Hi Ollie,

    I think an information pack would be great. I was diagnosed with lung cancer in 2013, my tumour was an andenocarcinoma, but following tests it was also 10 percent small cell. I had surgery to remove mid and lower lobes of right lung followed by six sessions of chemo and ten sessions of profalacit cranial radiotherapy. I have been back at work for nearly two years and feel well. Walk at least four miles every day and only really get breathless walking up hill. Good luck with your project.

    Regards gaynor

  • HI Gaynor,

    Thank you very much indeed for your feedback regarding the information pack that we are developing on small cell lung cancer. Excellent to hear of the progress that you are making following your surgery and chemo and profalacit cranial radiotherapy treatment. Good luck with you recovery.

    Please contact us via the website, HealthUnlocked or by calling our free helpline on 0333 323 7200 (option 2) if you need any further information or support. Thank you for sharing your views and experience, as someone affected by lung cancer, to help us shape our services. If you would like to become more involved in sharing your experience and being one of our lung cancer Voices or Volunteers do get in touch.

    We wish you all the best and if we can be of any help in the future or you want to share more of your experience with us please do get in touch.

    Best wishes,

    Ollie

    On behalf of the Information and Support team

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