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I had an idea for my post and now i have forgotten what it was about......
The good things in my life...... 1, My darling hubby who is my
support
and my
carer
.
The good things in my life...... 1, My darling hubby who is my
support
and my
carer
.
sylvi
in
NRAS
8 years ago
Choices?
So here is were we are at now. Following a bout of Pneumonia after he aspirated. Dad should have had his op to insert a PEG on Wednesday, after initial investigation with a camera down the throat (which agitated Dad greatly even under sedation) doctors could not go ahead, as they said his stomach was
So here is were we are at now. Following a bout of Pneumonia after he aspirated. Dad should have had his op to insert a PEG on Wednesday, after initial investigation with a camera down the throat (which agitated Dad greatly even under sedation) doctors could not go ahead, as they said his stomach was
DottieDora
in
PSP Association
8 years ago
CHC Funding all day...Ugh
Walk on by folks - Just a PSP
Carer
ventilating. We have been getting care
support
from the Community Care Group on the Fast Track route. It lacks flexibility and increasing care is slow. So back in March I asked to be transferred back onto the Personal Budget Pathway.
Walk on by folks - Just a PSP
Carer
ventilating. We have been getting care
support
from the Community Care Group on the Fast Track route. It lacks flexibility and increasing care is slow. So back in March I asked to be transferred back onto the Personal Budget Pathway.
Kevin_1
in
PSP Association
8 years ago
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Struggling a bit here
No Marie Curie nurses for two weeks now as they have had an influx of palliative care cases so 4 nights a week on call with V's erratic sleeping patterns means very disturbed nights . I was getting them at least once sometimes twice a week . V seems to have deteriorated very
No Marie Curie nurses for two weeks now as they have had an influx of palliative care cases so 4 nights a week on call with V's erratic sleeping patterns means very disturbed nights . I was getting them at least once sometimes twice a week . V seems to have deteriorated very
Georgepa
in
PSP Association
8 years ago
Heartbreaking IPF
My dad broke his hip last August, stopped work and was finally diagnosed with COPD and has gone downhill ever since, with a more recent diagnosis of IPF. He has pretty much been house bound and on Oxygen 24/7. After battling water retention, his legs, arms, back and tummy were fit to burst, a constant
My dad broke his hip last August, stopped work and was finally diagnosed with COPD and has gone downhill ever since, with a more recent diagnosis of IPF. He has pretty much been house bound and on Oxygen 24/7. After battling water retention, his legs, arms, back and tummy were fit to burst, a constant
Picandmix
in
Lung Conditions Community Forum
8 years ago
I Pad or Tablet?
Which one should I buy? I currently use a lap top, but as my mobility decreases (I am palliative care only) been thinking maybe I should get either an I pad or tablet - just don't know which one?
Which one should I buy? I currently use a lap top, but as my mobility decreases (I am palliative care only) been thinking maybe I should get either an I pad or tablet - just don't know which one?
butterfly31851
in
Lung Conditions Community Forum
8 years ago
Harriet
I was a
support
worker and
carer
myself I worked with many service users with varied difficulties so i feel I should know. I suppose I thought it would be ok tomorrow. The last thing I want to do is go behind Dr sens back who has been fantastic. I go to Nuffield as well to see various Dr's.
I was a
support
worker and
carer
myself I worked with many service users with varied difficulties so i feel I should know. I suppose I thought it would be ok tomorrow. The last thing I want to do is go behind Dr sens back who has been fantastic. I go to Nuffield as well to see various Dr's.
cclive35
in
Ataxia UK
8 years ago
Peg
I wanted to ask you all what you think about having a peg fitted, the pros and cons of having one. We have heard so many different stories about having a peg fitted, George is going down that route, couple of the children are saying not a good idea, please I need some advice on this, I am feeling really
I wanted to ask you all what you think about having a peg fitted, the pros and cons of having one. We have heard so many different stories about having a peg fitted, George is going down that route, couple of the children are saying not a good idea, please I need some advice on this, I am feeling really
Yvonneandgeorge
in
PSP Association
8 years ago
Carers thinking of taking a University Course
Given the current mood of the Benefits Agency I cannot see that being reinstated after she finishes the course, so until retirement that means we will lose £38,400 To compound the issue, our Income
support
is dependent on being a
Carer
, so now we lose that as well and also the mortgage relief.
Given the current mood of the Benefits Agency I cannot see that being reinstated after she finishes the course, so until retirement that means we will lose £38,400 To compound the issue, our Income
support
is dependent on being a
Carer
, so now we lose that as well and also the mortgage relief.
sospan
in
Headway
8 years ago
Deteriorating
Mum seems to be deteriorating she is pooling saliva in her throat and sound horrendous sometimes with the gurgling she does manage to swallow it with difficulty she has a peg feed for medication but refuses to have food n drink down the peg (which I don't blame her) she has thickened fluid and pureed
Mum seems to be deteriorating she is pooling saliva in her throat and sound horrendous sometimes with the gurgling she does manage to swallow it with difficulty she has a peg feed for medication but refuses to have food n drink down the peg (which I don't blame her) she has thickened fluid and pureed
richmond1
in
PSP Association
8 years ago
IPF
Hi I am new to the group my father has IPF now for over 4 years and was doing well but recently has started to deteriorate rapidly he is sleeping much more during the day and the doctors have started palliative care for him. I know he is near the end of life but I am struggling to understand how I can
Hi I am new to the group my father has IPF now for over 4 years and was doing well but recently has started to deteriorate rapidly he is sleeping much more during the day and the doctors have started palliative care for him. I know he is near the end of life but I am struggling to understand how I can
DavidSnow
in
Lung Conditions Community Forum
8 years ago
My dad passed away
Hi everyone - my dad passed away on Tuesday around 4 PM Pakistan time The burial happened at 8:30 PM (as Muslims, we try and bury within a day) It's been a bit hard for me to post earlier since I know there are many patients going through the disease and their caregivers are taking care of them while
Hi everyone - my dad passed away on Tuesday around 4 PM Pakistan time The burial happened at 8:30 PM (as Muslims, we try and bury within a day) It's been a bit hard for me to post earlier since I know there are many patients going through the disease and their caregivers are taking care of them while
sammy90210
in
PSP Association
9 years ago
MRI RESULTS
Today I met with the rad. oncologist, and I don't have to have surgery!! Hallelujah!! Good news on Good Friday!! I'm to have a series of 20 radiation treatments to the prostate to shrink it and stop the invasion of the bladder and rectum, and reduce the pain. So today they had me
Today I met with the rad. oncologist, and I don't have to have surgery!! Hallelujah!! Good news on Good Friday!! I'm to have a series of 20 radiation treatments to the prostate to shrink it and stop the invasion of the bladder and rectum, and reduce the pain. So today they had me
CERICWIN
in
Advanced Prostate Cancer
9 years ago
PAIN & NAUSEA --is there a role for Marijuana?
Poster's comment :- Below is the verbatim published commentary on the latest research study whose results were given in the Journal Of American Medicine 17 March 2016. If anyone would like the full scientific study (with or without references) please let me know and I will be happy to email it to you
Poster's comment :- Below is the verbatim published commentary on the latest research study whose results were given in the Journal Of American Medicine 17 March 2016. If anyone would like the full scientific study (with or without references) please let me know and I will be happy to email it to you
gutlesswonder
in
Oesophageal & Gastric Cancer
9 years ago
Hepatic Encephalitis
She is having difficulty getting
support
, as a
carer
, locally so if there is anyone on the site who has experience of this I can direct her to the site.
She is having difficulty getting
support
, as a
carer
, locally so if there is anyone on the site who has experience of this I can direct her to the site.
rankjac
in
Headway
9 years ago
Update on my mum
Hi all My mum is deteriorating fast! She got rushed to hospital on Saturday as she was totally out of it & was in a lot of pain. They said that her level of calcium in her blood is extremely high & are trying to bring it down. I don't even recognise her she is still so confused & does'nt really know
Hi all My mum is deteriorating fast! She got rushed to hospital on Saturday as she was totally out of it & was in a lot of pain. They said that her level of calcium in her blood is extremely high & are trying to bring it down. I don't even recognise her she is still so confused & does'nt really know
1charliebarney
in
The Roy Castle Lung Cancer Foundation
9 years ago
Infection again
Hi My dad is in late stages of PSP - he acquired an infection again (the last time it was a chest infection, the docs are not sure this time) - I understand it varies from patient to patient but how many infections should a patient fight? He has had 2 anti-biotic courses in the past 5 weeks - 5 days
Hi My dad is in late stages of PSP - he acquired an infection again (the last time it was a chest infection, the docs are not sure this time) - I understand it varies from patient to patient but how many infections should a patient fight? He has had 2 anti-biotic courses in the past 5 weeks - 5 days
sammy90210
in
PSP Association
9 years ago
Been a while.
Hi all, it's been a good few months since I posted. To those who have PM me thank you for caring, please accept my apologies if I did not get back to you. It's been an up & down few months. The new Chemotherapy regime is taking its toll, I just about recover in time for the next cycle which has made
Hi all, it's been a good few months since I posted. To those who have PM me thank you for caring, please accept my apologies if I did not get back to you. It's been an up & down few months. The new Chemotherapy regime is taking its toll, I just about recover in time for the next cycle which has made
Cibble
in
British Liver Trust
9 years ago
New
Hello, my name is Carol and I'm stage 4 breast cancer in palliative care. Not had the best experience of my journey.
Hello, my name is Carol and I'm stage 4 breast cancer in palliative care. Not had the best experience of my journey.
carolrip
in
Hunts Community Cancer Network
9 years ago
Restrictive lung disease and copd.
Hello, I'm new here or to any online group. I've been fighting restrictive lung disease and copd along with asthma since 2004. Along the way I developed congested heart failure. I've had good years and bad months. Although I've been hospitalized twice in the last 4 months. I'm 45 and not ready to give
Hello, I'm new here or to any online group. I've been fighting restrictive lung disease and copd along with asthma since 2004. Along the way I developed congested heart failure. I've had good years and bad months. Although I've been hospitalized twice in the last 4 months. I'm 45 and not ready to give
db5570
in
Lung Conditions Community Forum
9 years ago
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