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Lost My Dad
First I want to say thanks to everyone who posts here. The stories of recovery kept me positive for my dad. He was 72 and had a brain aneurysm with SAH. My mom found him in the AM with his CPAP he was not responsive and had vomited in his CPAP. EMS came and cleared his airways he had aspirated and
First I want to say thanks to everyone who posts here. The stories of recovery kept me positive for my dad. He was 72 and had a brain aneurysm with SAH. My mom found him in the AM with his CPAP he was not responsive and had vomited in his CPAP. EMS came and cleared his airways he had aspirated and
kchamilton
in
Headway
9 years ago
My lovely Mum (Opti-flow and Bi-pap help pls)
Hi All, I've never posted on a website before, but my beloved Mum is really very poorly and I'm hoping that one of you lovely people might be able to shed some light on things for me... Mum was diagnosed with COPD 15 years ago, but despite going to her GP numerous times about her swollen legs and blackberry-coloured
Hi All, I've never posted on a website before, but my beloved Mum is really very poorly and I'm hoping that one of you lovely people might be able to shed some light on things for me... Mum was diagnosed with COPD 15 years ago, but despite going to her GP numerous times about her swollen legs and blackberry-coloured
wilko74
in
Lung Conditions Community Forum
9 years ago
ESA to Income Support ??
Can my husband who is my
carer
claim income
support
for both of us, he does not work, and i claim for both of us at the moment and also get full PIP on both . and if the answer is yes why am i putting myself through all of this????????? Hope someone can enlighten me please
Can my husband who is my
carer
claim income
support
for both of us, he does not work, and i claim for both of us at the moment and also get full PIP on both . and if the answer is yes why am i putting myself through all of this????????? Hope someone can enlighten me please
tasha2
in
Fibromyalgia Action UK
9 years ago
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IS IT JUST ME.
I was diagnosed with me about 6mth ago,after becoming my doctors new best friend i got to see her so much i know when her baby was due and about her husband and life. I have had Brain scans,mr scan blood test, been past from one specialist to another. To be honest i was so relieved to get a Diagnoses
I was diagnosed with me about 6mth ago,after becoming my doctors new best friend i got to see her so much i know when her baby was due and about her husband and life. I have had Brain scans,mr scan blood test, been past from one specialist to another. To be honest i was so relieved to get a Diagnoses
caz142
in
EDMESH
9 years ago
Hi all
I'm new to this site and I am looking for help and
support
I am a
carer
for my dad who has been diagnosed with copd but he refuses to give up smoking. We as a family are devestated and don't know what we can do to support him Has anyone had to deal with a very stubborn relative?
I'm new to this site and I am looking for help and
support
I am a
carer
for my dad who has been diagnosed with copd but he refuses to give up smoking. We as a family are devestated and don't know what we can do to support him Has anyone had to deal with a very stubborn relative?
Thetruemeaningoflove
in
Lung Conditions Community Forum
9 years ago
What to expect...
Some questions are difficult to ask, probably more difficult to answer, and may not be needed (yet), but the National Council for Palliative Care, Hospice UK and Sue Ryder have produced a a booklet that has been produced, called 'What to expect when someone close to you is dying'. You may well not
Some questions are difficult to ask, probably more difficult to answer, and may not be needed (yet), but the National Council for Palliative Care, Hospice UK and Sue Ryder have produced a a booklet that has been produced, called 'What to expect when someone close to you is dying'. You may well not
Hidden
Volunteer
in
OPA Palliative Care & Guidance
9 years ago
Advice regarding flying.
Hi all ! Just wondering if anyone has any information that might help regarding a potential trip to Australia for my mum who has severe copd grade iv . My mum is lucky enough to have visited my brother previously in Australia she has had oxygen on the flight at 2 litres a minute during the flight but
Hi all ! Just wondering if anyone has any information that might help regarding a potential trip to Australia for my mum who has severe copd grade iv . My mum is lucky enough to have visited my brother previously in Australia she has had oxygen on the flight at 2 litres a minute during the flight but
Snippet
in
Lung Conditions Community Forum
10 years ago
Normal pressure hydrocephalus
Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it but given how similar the symptoms are I would like someone to at least consider the possibility ! P is getting worse by the day, mobility, falls
Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it but given how similar the symptoms are I would like someone to at least consider the possibility ! P is getting worse by the day, mobility, falls
NanBabs
in
PSP Association
10 years ago
50 years of PSP research
A few months ago (October 2014) a syllabus was drawn up to teach health professionals about PSP and the progress made in 50 years since the disease was described by the three doctors, Steele-Richardson-Olszewski. (John Steele is still alive). While most of the information in the 100 pages is too technical
A few months ago (October 2014) a syllabus was drawn up to teach health professionals about PSP and the progress made in 50 years since the disease was described by the three doctors, Steele-Richardson-Olszewski. (John Steele is still alive). While most of the information in the 100 pages is too technical
Hidden
in
PSP Association
10 years ago
Neurologist help
I have read so much on hear about neurologists visiting patients and I wondered how and if I could get this for my sister (81) fully dependant bed/chair bound now not communicating, Parkinson's nurse visited about 3 months and consultant but no plans for regular visits (sister in nursing home). Have
I have read so much on hear about neurologists visiting patients and I wondered how and if I could get this for my sister (81) fully dependant bed/chair bound now not communicating, Parkinson's nurse visited about 3 months and consultant but no plans for regular visits (sister in nursing home). Have
nannygoon
in
PSP Association
10 years ago
Just seen this in The Lancet
The Lancet Home Tables and Figures An unacceptable variation in the organisation and delivery of care for patients with chronic obstructive pulmonary disease (COPD) in England and Wales was the stark conclusion of the latest audit of acute units from the Healthcare Quality Improvement Partnership (HQIP
The Lancet Home Tables and Figures An unacceptable variation in the organisation and delivery of care for patients with chronic obstructive pulmonary disease (COPD) in England and Wales was the stark conclusion of the latest audit of acute units from the Healthcare Quality Improvement Partnership (HQIP
Hidden
in
Lung Conditions Community Forum
10 years ago
Worried carer
Fibroscan 25 u/s showing mildly coarse echotextor blood results.Ast41 Alt52 Alp79 Ggt132 Bill9 Inr1.1 resulting from long term fatty liver I am 72 years of age with a bmi of 29 and a full time
carer
to a wife who is totaly dependent on my
support
The liver specialist has put me on 6 monthly check
Fibroscan 25 u/s showing mildly coarse echotextor blood results.Ast41 Alt52 Alp79 Ggt132 Bill9 Inr1.1 resulting from long term fatty liver I am 72 years of age with a bmi of 29 and a full time
carer
to a wife who is totaly dependent on my
support
The liver specialist has put me on 6 monthly check
Gerryb20
in
British Liver Trust
10 years ago
Had a bit of bad news today
The doctors can't do anything else for Mum. They are withdrawing intervention and she will be treated by the palliative care team at home. They've said around two weeks left. I'm ok with it all actually, just thought I'd let my friends on here know x
The doctors can't do anything else for Mum. They are withdrawing intervention and she will be treated by the palliative care team at home. They've said around two weeks left. I'm ok with it all actually, just thought I'd let my friends on here know x
Suzie40
in
Mental Health Support
10 years ago
After watching a couple of commercials regarding cancer care centers (and I am not taking anything away from those awesome centers) I...
... began thinking why can't there be similar centers for PSP (and other related illnesses) patients. Is there even such a thing? Home care, palliative care and even end of life care is not cutting it. At least not for me. There has to be something more for our loved ones, for our families, for us
... began thinking why can't there be similar centers for PSP (and other related illnesses) patients. Is there even such a thing? Home care, palliative care and even end of life care is not cutting it. At least not for me. There has to be something more for our loved ones, for our families, for us
jessybx19
in
PSP Association
10 years ago
Devastated
Hi unfortunately it has been a terrible Christmas and New Year for our family as my husbands oesophageal cancer has spread. He had his op in Feb 14 and fought so hard 2 get well. He had pneumonia in Sept 14 and had a scan done with clear results and now it is in 3 other places. we are devastated! He
Hi unfortunately it has been a terrible Christmas and New Year for our family as my husbands oesophageal cancer has spread. He had his op in Feb 14 and fought so hard 2 get well. He had pneumonia in Sept 14 and had a scan done with clear results and now it is in 3 other places. we are devastated! He
Janex
in
Oesophageal & Gastric Cancer
10 years ago
I need a direction to the rest of my life journey …
I am not sure if I know which way to go: should I continue the rest of my journey without Chemo or go back to the forth line: Advance stage (4) OC and tumor nodules all over the abdomen and one year of different type of chemo without any positive response. Currently the general goal of therapy is palliation
I am not sure if I know which way to go: should I continue the rest of my journey without Chemo or go back to the forth line: Advance stage (4) OC and tumor nodules all over the abdomen and one year of different type of chemo without any positive response. Currently the general goal of therapy is palliation
Eyman1
in
My Ovacome
10 years ago
CARER SUPPORT
Hi does anyone know about how many hour do I have to put for my husband to care for me, as he has to help me now a part of daily chores. I am unable to have a shower on my own, cook my meal, hover the house nor driving or shopping, I understand that if he applies for carer allowance they will take a
Hi does anyone know about how many hour do I have to put for my husband to care for me, as he has to help me now a part of daily chores. I am unable to have a shower on my own, cook my meal, hover the house nor driving or shopping, I understand that if he applies for carer allowance they will take a
B2WC
in
Fibromyalgia Action UK
10 years ago
Carer needing support
Hi all, sorry just, needed to whinge & this is the only place I can. As some of you may know me & hubby were in a RTA 15 months ago where he suffered a severe TBI. He is doing ok I suppose, but having stayed strong most of the time myself, things seem to b falling apart. Really struggling with sleep
Hi all, sorry just, needed to whinge & this is the only place I can. As some of you may know me & hubby were in a RTA 15 months ago where he suffered a severe TBI. He is doing ok I suppose, but having stayed strong most of the time myself, things seem to b falling apart. Really struggling with sleep
dillyd
in
Headway
10 years ago
Are you a carer of a person with ME? Are you getting support you are entitled to? ..... New Rights Guide published! Free to download!
If you are a
carer
and not getting all the
support
you're entitled to the below may well help you. Even if you are getting what you are entitled to, the helpline and general carers' support via the website below could still be valuable in times of particular difficulty - or any time.
If you are a
carer
and not getting all the
support
you're entitled to the below may well help you. Even if you are getting what you are entitled to, the helpline and general carers' support via the website below could still be valuable in times of particular difficulty - or any time.
Starbys
in
Myalgic Encephalomyelitis Community
10 years ago
IN CASE THIS IS OF INTEREST TO ANYONE.
May 01, 2014 | Cancer Management By Colleen M. Feltmate, MD, Paul Sabbatini, MD, and Akila N. Viswanathan, MD, MPH . I SAW THIS IN THE CANCER NETWORK, HOME OF THE JOURNAL ONCOLOGY (from May 2014). It is a long old read but maybe some will find some useful info: OVARIAN CANCER Management
May 01, 2014 | Cancer Management By Colleen M. Feltmate, MD, Paul Sabbatini, MD, and Akila N. Viswanathan, MD, MPH . I SAW THIS IN THE CANCER NETWORK, HOME OF THE JOURNAL ONCOLOGY (from May 2014). It is a long old read but maybe some will find some useful info: OVARIAN CANCER Management
thehusband
in
My Ovacome
10 years ago
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