Search
Search
About
Log in
Join
Experiences with
Carer support
Posts
Communities
781 public posts
Filter results
blood test results and uncomfortable decisions
That is position i find myself in .. blood test results and uncomfortable decisions. Could disease illness be any worse .. Well some might remember my dad had horrific time in hospital over xmas with poor care pneumonia aki and sepsis. He come out of hospital doing well after my intervention AND things
That is position i find myself in .. blood test results and uncomfortable decisions. Could disease illness be any worse .. Well some might remember my dad had horrific time in hospital over xmas with poor care pneumonia aki and sepsis. He come out of hospital doing well after my intervention AND things
Hidden
in
Lung Conditions Community Forum
7 years ago
Final update
My 2nd line treatment of carboplatin/Caelyx did not work. After 3 treatments the cancer has grown and has caused multiple bowel obstructions. I was offered weekly taxol and told this would have a 50% chance of bringing some relief but would be unlikely to resolve the bowel obstructions. I declined. I
My 2nd line treatment of carboplatin/Caelyx did not work. After 3 treatments the cancer has grown and has caused multiple bowel obstructions. I was offered weekly taxol and told this would have a 50% chance of bringing some relief but would be unlikely to resolve the bowel obstructions. I declined. I
Janine57
in
My Ovacome
7 years ago
The vagaries of PSP
Back in March V was sent home from the hospice and my daughter and I were told to prepare ourselves as they thought V would only survive ten days to a fortnight . Well here we are in late May , once again back in Topsham on the Exe estuary taking in the sea air and sitting in the sun
Back in March V was sent home from the hospice and my daughter and I were told to prepare ourselves as they thought V would only survive ten days to a fortnight . Well here we are in late May , once again back in Topsham on the Exe estuary taking in the sea air and sitting in the sun
Georgepa
in
PSP Association
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Carers week 12th - 18th June
You may not even think of yourself as a
carer
or be aware of the
support
you can have to help you through this difficult time. Key people who can help you are- Your medical team at the hospital. Clinical Nurse Specialist - ask your Consultant to introduce you to them.
You may not even think of yourself as a
carer
or be aware of the
support
you can have to help you through this difficult time. Key people who can help you are- Your medical team at the hospital. Clinical Nurse Specialist - ask your Consultant to introduce you to them.
LCNurse
in
Leukaemia Support
7 years ago
Women with advanced breast cancer are surviving longer, study says
From the Washington post: http://wapo.st/2qxXt5c "The number of women living with advanced breast cancer is rising substantially in the United States, reflecting improved survival among all ages, according to a study published Thursday. The study found that between 1992 and 1994, and 2005 and 2012,
From the Washington post: http://wapo.st/2qxXt5c "The number of women living with advanced breast cancer is rising substantially in the United States, reflecting improved survival among all ages, according to a study published Thursday. The study found that between 1992 and 1994, and 2005 and 2012,
joann86
Administrator
in
SHARE Metastatic Breast Cancer
7 years ago
First dose of methotrexate last evening!
Morning people, Just thought I'd say hi and update as I havent been able to post for a while. Finally sorted metho prescription out after messing up having chest xray 😕 (would you believe my rheumy consultant very kindly posted the prescription through my door for me herself to make sure I got it!!!
Morning people, Just thought I'd say hi and update as I havent been able to post for a while. Finally sorted metho prescription out after messing up having chest xray 😕 (would you believe my rheumy consultant very kindly posted the prescription through my door for me herself to make sure I got it!!!
Julied24
in
NRAS
7 years ago
Fluoxetine side-effects
I also have a lot of stress going on too - PIP assessment and ex-husband seriously deteriorating with MS and trying to
support
my son who is his main
carer
. Life, eh??
I also have a lot of stress going on too - PIP assessment and ex-husband seriously deteriorating with MS and trying to
support
my son who is his main
carer
. Life, eh??
Hamble
in
Mental Health Support
7 years ago
Q&A with XTL Biopharmaceuticals CEO Josh Levine on a Promising New Treatment for Lupus
Lupus, a chronic debilitating inflammatory autoimmune disease, impacts 1.5 million people, mostly women, in the U.S. and 5 million worldwide. With a 10 year survival rate of 90%, patients suffer with a disease for which there is no effective treatment. Current drugs like immunosuppressants only provide
Lupus, a chronic debilitating inflammatory autoimmune disease, impacts 1.5 million people, mostly women, in the U.S. and 5 million worldwide. With a 10 year survival rate of 90%, patients suffer with a disease for which there is no effective treatment. Current drugs like immunosuppressants only provide
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Night Shift starts now.
Due to my job as a healthcare
support
carer
and senior, I am trained to help my friend. Please pray for her. Good night all.
Due to my job as a healthcare
support
carer
and senior, I am trained to help my friend. Please pray for her. Good night all.
Sonsafc
in
Lung Conditions Community Forum
7 years ago
Giving up
I am beginning to think that my cancer might be returning, after 6 goes of carbo/taxol and 8 doses of Avastin. I was NED in January, and had begun to feel better generally, but in the past fortnight I have had persistent pain in my right groin, and increasing tiredness. I am 70 next Monday. I am
I am beginning to think that my cancer might be returning, after 6 goes of carbo/taxol and 8 doses of Avastin. I was NED in January, and had begun to feel better generally, but in the past fortnight I have had persistent pain in my right groin, and increasing tiredness. I am 70 next Monday. I am
Rachael47
in
My Ovacome
7 years ago
Mum
Mum has been put on to EOLC now as her condition is so severe they have given mum a few months I have the hospice palliative care nurses in now mum doesn't understand as how do you tell your mum that sort of news but I think she knows in her own way mums dementia has also deteriorated and her skin condition
Mum has been put on to EOLC now as her condition is so severe they have given mum a few months I have the hospice palliative care nurses in now mum doesn't understand as how do you tell your mum that sort of news but I think she knows in her own way mums dementia has also deteriorated and her skin condition
Chezzyy66
in
Lung Conditions Community Forum
7 years ago
Aged 49, newly diagnosed, - An Update
Hi Guys, I was diagnosed 1 year ago today. I wanted to give an update on my journey and hopefully get some pointers along the way. April 10th, 2016 - Diagnosed after TRUS biopsy, 12 cores, 11 with cancer, Gleason 8 to 10 for all samples. April 17th, 2016 - Bone scan revealed multiple bone mets, but none
Hi Guys, I was diagnosed 1 year ago today. I wanted to give an update on my journey and hopefully get some pointers along the way. April 10th, 2016 - Diagnosed after TRUS biopsy, 12 cores, 11 with cancer, Gleason 8 to 10 for all samples. April 17th, 2016 - Bone scan revealed multiple bone mets, but none
paulofaus
in
Advanced Prostate Cancer
7 years ago
Getting worse
That was a few years ago and with help from
support
groups and
carer
visits three times a day I'm still here...
That was a few years ago and with help from
support
groups and
carer
visits three times a day I'm still here...
CrAzYcRiPpLe
in
Mental Health Support
7 years ago
Government compensation
Just got through reading about the cost of the Tomahawk missiles the US just dropped on Syrians, some military and some civilians. The estimated cost of each missile varies between $1.4 million and 1.59 million dollars. Using an average, why doesn't the US give each of us $1.5 million dollars while letting
Just got through reading about the cost of the Tomahawk missiles the US just dropped on Syrians, some military and some civilians. The estimated cost of each missile varies between $1.4 million and 1.59 million dollars. Using an average, why doesn't the US give each of us $1.5 million dollars while letting
Stevewithpsp
in
PSP Association
7 years ago
Respiratory Patient-Carer Network North East event - How to get your voice heard
On the day we’ll be looking at: - Your experiences of involvement in influencing - How to use the media (including social media) to get your voice heard - Identifying a regional respiratory campaign You may already be involved as a patient or
carer
representative, attend a
support
group, or just
On the day we’ll be looking at: - Your experiences of involvement in influencing - How to use the media (including social media) to get your voice heard - Identifying a regional respiratory campaign You may already be involved as a patient or
carer
representative, attend a
support
group, or just
BevWears
in
Lung Conditions Community Forum
7 years ago
Month Long #KnowAboutMe Campaign Launched
Dying Matters has launched a month long social media campaign on Twitter #Knowaboutme (not to be confused with the band or the free expression movement). It is being co-ordinated by Dying Matter an off shot of The National Council for Palliative Care and has the full endorsement of MyDirectives...so
Dying Matters has launched a month long social media campaign on Twitter #Knowaboutme (not to be confused with the band or the free expression movement). It is being co-ordinated by Dying Matter an off shot of The National Council for Palliative Care and has the full endorsement of MyDirectives...so
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
8 years ago
What You Need to Discuss With Your Doctor
If you are living with serious illness or are simply planning ahead for your own or a loved one’s future, having a frank discussion with your doctor is a good idea. Puttinng things into words, getting more information, and asking questions can help you get the kind of care you want. Listed below are
If you are living with serious illness or are simply planning ahead for your own or a loved one’s future, having a frank discussion with your doctor is a good idea. Puttinng things into words, getting more information, and asking questions can help you get the kind of care you want. Listed below are
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
8 years ago
Call for National Standard for End of Life Care in NHS
Baroness Finlay, the chair of the National Council for Palliative Care and a supporter of MyDirectives' goals brought out a powerful report last week calling for national standards for end of life care in England. Inevitably the report also highlighted poor communication and planning around end of life
Baroness Finlay, the chair of the National Council for Palliative Care and a supporter of MyDirectives' goals brought out a powerful report last week calling for national standards for end of life care in England. Inevitably the report also highlighted poor communication and planning around end of life
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
8 years ago
Possible secondary cancer
Hi there, Went today for scan results 11months after Ivor Lewis where i was T1 all clear. Told they have found some enlarged lymph nodes in chest on scan. How shocked my daughter and i were. Been given option of waiting 6 weeks and having further scan or starting on another type of chemo which will
Hi there, Went today for scan results 11months after Ivor Lewis where i was T1 all clear. Told they have found some enlarged lymph nodes in chest on scan. How shocked my daughter and i were. Been given option of waiting 6 weeks and having further scan or starting on another type of chemo which will
kiddy
in
Oesophageal & Gastric Cancer
8 years ago
Advanced Prostate Cancer: Research Update
Another WebMD interesting post. motosue From treatment vaccines to changes in the medicines you're taking right now, scientists are working to find new treatments for prostate cancer. They build on the "complete revolution in the treatment of advanced prostate cancer" in recent years, says Gary
Another WebMD interesting post. motosue From treatment vaccines to changes in the medicines you're taking right now, scientists are working to find new treatments for prostate cancer. They build on the "complete revolution in the treatment of advanced prostate cancer" in recent years, says Gary
motosue
in
Advanced Prostate Cancer
8 years ago
1
...
28
29
30
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
100 results
PSP Association
95 results
Lung Conditions Community Forum
77 results
View top 10 communities
Sort by
Most Relevant
Newest