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Hello All So...my dad has a 3cm adenocarcinoma in his lung and a 3cm secondary tumour on his spine. That is all. He has had radiotherapy on his spine to shrink that one and some stabilisation surgery. They are not doing anything on his lung until his performance status has improved...but if he can
Hello All So...my dad has a 3cm adenocarcinoma in his lung and a 3cm secondary tumour on his spine. That is all. He has had radiotherapy on his spine to shrink that one and some stabilisation surgery. They are not doing anything on his lung until his performance status has improved...but if he can
SJR43
in
The Roy Castle Lung Cancer Foundation
7 years ago
Renowned Doctor explains why even 18-year-olds should plan for the unexpected
Renowned palliative care physician, BJ Miller’s career trajectory was drastically altered when he suffered a life-threatening injury during his sophomore year of college. While horsing around with a friend, he climbed a commuter train parked at a rail station, the next thing he knew eleven-thousand
Renowned palliative care physician, BJ Miller’s career trajectory was drastically altered when he suffered a life-threatening injury during his sophomore year of college. While horsing around with a friend, he climbed a commuter train parked at a rail station, the next thing he knew eleven-thousand
joncarrbrown
Administrator
in
MyDirectives: Make your medical wishes known!
7 years ago
Some Words of Encouragement. Severe RA and No Meds. right now. The Benefits of a Healthier Microbiome
Hi All those with RA. Many of you on this site have recently been diagnosed with Rheumatoid Arthritis and your Medics are yet to find something to control the disease activity levels. That stage is very painful and very scary. This post is not about recommending what is right for you, or to encourage
Hi All those with RA. Many of you on this site have recently been diagnosed with Rheumatoid Arthritis and your Medics are yet to find something to control the disease activity levels. That stage is very painful and very scary. This post is not about recommending what is right for you, or to encourage
AARA
in
NRAS
7 years ago
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Couldn't Do Fourth Round Of Docetaxol: Husband Admitted To Hospital Tomorrow
Hi everyone. So today we couldn't do round 4 of Docetaxol. There was no doctor at the day ward so we are not sure what the reason was. Something was wrong with the bloods. The nurse said "liver is up so the professor wants to hold off", whatever that means. We saw the palliative care doctor, though,
Hi everyone. So today we couldn't do round 4 of Docetaxol. There was no doctor at the day ward so we are not sure what the reason was. Something was wrong with the bloods. The nurse said "liver is up so the professor wants to hold off", whatever that means. We saw the palliative care doctor, though,
MelaniePaul
in
Advanced Prostate Cancer
7 years ago
Rubbish -Leave liothyronine alone, Julie Woods and Simon Stevens should resign
Julie Woods chief Exec NHSCC and Simon Stevens should resign on this statement alone. How dare they suggest there are more cost effective products available than liothyronine. Unless they are referring to T4 of course, which is absolutele pug wash. This article just goes to show their lack of knowledge
Julie Woods chief Exec NHSCC and Simon Stevens should resign on this statement alone. How dare they suggest there are more cost effective products available than liothyronine. Unless they are referring to T4 of course, which is absolutele pug wash. This article just goes to show their lack of knowledge
Airmed
in
Thyroid UK
7 years ago
Lymphatic Reflexology
Hello ladies This afternoon I had a wonderful session of reflexology. I've been feeling pretty pooped lately and haven't been sleeping well for weeks so figured i'd treat myself. I've had reflexology before a few times and it was something i'd organise often for my darling Mum as part of her palliative
Hello ladies This afternoon I had a wonderful session of reflexology. I've been feeling pretty pooped lately and haven't been sleeping well for weeks so figured i'd treat myself. I've had reflexology before a few times and it was something i'd organise often for my darling Mum as part of her palliative
Mrs_Atko
in
My Ovacome
7 years ago
Update
My sister is still in hospital. She had a caecostomy as opposed to a colostomy or illeostomy. I can find very little information in caecostomies other than they are considered palliative. She is still experiencing leaking from the transverse colon and had a drain fitted but every time they move her the
My sister is still in hospital. She had a caecostomy as opposed to a colostomy or illeostomy. I can find very little information in caecostomies other than they are considered palliative. She is still experiencing leaking from the transverse colon and had a drain fitted but every time they move her the
Seavccg
in
My Ovacome
7 years ago
Nursing home woes
Hi all, Just a quick update on my dad. Having been approved for CHC Fasttrack funding a week or so ago - and having been in hospital for 3 weeks - we are now unable to find a nursing home willing to take him. He is considered a fall risk and, after assessing him, don't believe that they can offer
Hi all, Just a quick update on my dad. Having been approved for CHC Fasttrack funding a week or so ago - and having been in hospital for 3 weeks - we are now unable to find a nursing home willing to take him. He is considered a fall risk and, after assessing him, don't believe that they can offer
Mp100
in
PSP Association
7 years ago
Gleason 9 (5+4) 10+ years ago - widely metastatic cancer and running out of options!
My husband was diagnosed in 2007 at age 57, Gleason 9 (5+4), PSA 18. [PSA at age 50 was 10 - a 3 core biopsy showed nothing so he was told he simply had a high baseline PSA]. He started ADT in late 2007 and had iodine brachytherapy in 2008. PSA rose rapidly after surgery. Combidex scan in Holland
My husband was diagnosed in 2007 at age 57, Gleason 9 (5+4), PSA 18. [PSA at age 50 was 10 - a 3 core biopsy showed nothing so he was told he simply had a high baseline PSA]. He started ADT in late 2007 and had iodine brachytherapy in 2008. PSA rose rapidly after surgery. Combidex scan in Holland
23casa
in
Advanced Prostate Cancer
7 years ago
Metastasize Melanoma
It is very hard when you have cancer. I had 3 different skin cancers in 2015. One being Melanoma. I saw my primary doctor in Dec 2016. I kept telling her I wasn't feeling well. I was tired, felt sick that I just couldn't explain the way I felt. She went through all my lab work and set me up to see
It is very hard when you have cancer. I had 3 different skin cancers in 2015. One being Melanoma. I saw my primary doctor in Dec 2016. I kept telling her I wasn't feeling well. I was tired, felt sick that I just couldn't explain the way I felt. She went through all my lab work and set me up to see
Danna
in
Melanoma UK
7 years ago
Cirrhosis
I have followed the posts for a few months but never actually posted. I don't have a specific questions I just wanted to share some of our experiences. My mother was diagnosed with cirrhosis last August after many many years of test and nobody being able to come up with an answer. She continually had
I have followed the posts for a few months but never actually posted. I don't have a specific questions I just wanted to share some of our experiences. My mother was diagnosed with cirrhosis last August after many many years of test and nobody being able to come up with an answer. She continually had
Clouston22
in
British Liver Trust
7 years ago
Mom is not breathing good, unable to speak and
My mother will turn 75 years old and has been battling with PSP for probably 7 years. She has had pneumonia twice and can barely be understood when she tries to speak. It is painful for me to even be near her as she is such a shadow of her former self. We are living in Mexico where she has wonderful
My mother will turn 75 years old and has been battling with PSP for probably 7 years. She has had pneumonia twice and can barely be understood when she tries to speak. It is painful for me to even be near her as she is such a shadow of her former self. We are living in Mexico where she has wonderful
mperlman
in
PSP Association
7 years ago
NiCCC BIBF1120 trial
Hello Ladies, Does anyone have experience of the above trial? Two weeks ago I went for my end of chemo CT scan and follow up. I wasn't expecting the news I received, despite optimal debulking a tumour has regrown in my small bowel and the lesions in my liver which I was told were benign are solid tumours
Hello Ladies, Does anyone have experience of the above trial? Two weeks ago I went for my end of chemo CT scan and follow up. I wasn't expecting the news I received, despite optimal debulking a tumour has regrown in my small bowel and the lesions in my liver which I was told were benign are solid tumours
Tigsy52
in
My Ovacome
7 years ago
palliative care suggesting new meds
Dad's neurologist had him see palliative care for evaluation, basically they said there is nothing medically they can do. The doctor in palliative care was very nice, listened and appeared genuinely concerned but offered nothing really in the way of help. She does want to try a different med called
Dad's neurologist had him see palliative care for evaluation, basically they said there is nothing medically they can do. The doctor in palliative care was very nice, listened and appeared genuinely concerned but offered nothing really in the way of help. She does want to try a different med called
Dadshelper
in
PSP Association
7 years ago
Palliative care - transition
I usually think of transition from primary to secondary school but I'm finding the transition to palliative care hard as it's tough to leave the oncology team and get to know a new crowd. I'm wondering if there's a way it could be made easier. I'd visited the hospice before (helped with their LGBTI
I usually think of transition from primary to secondary school but I'm finding the transition to palliative care hard as it's tough to leave the oncology team and get to know a new crowd. I'm wondering if there's a way it could be made easier. I'd visited the hospice before (helped with their LGBTI
LesleyGreengran
in
My Ovacome
7 years ago
Struggle and stress
You will ALL know about this !! Some stress cannot be removed obviously , but some is totally unnecessary. Been struggling to get a doctor from surgery to visit, my husband has not seen a GP in 4 years, Zopiclone kept being denied on repeat prescription, without this my husband calls all night to get
You will ALL know about this !! Some stress cannot be removed obviously , but some is totally unnecessary. Been struggling to get a doctor from surgery to visit, my husband has not seen a GP in 4 years, Zopiclone kept being denied on repeat prescription, without this my husband calls all night to get
gypsywoman1947
in
PSP Association
7 years ago
OMG!!!!!! CHC
My god.what a rollercoaster week. Nurse from chc came to see if ger had enough "A"s to trigger assessment. He did so I started to get ready for next few months trauma with all the rest. But NO. Monday afternoon Macmillan palliative care nurse came prompted by our local hospice. Saw ger, spoke gently
My god.what a rollercoaster week. Nurse from chc came to see if ger had enough "A"s to trigger assessment. He did so I started to get ready for next few months trauma with all the rest. But NO. Monday afternoon Macmillan palliative care nurse came prompted by our local hospice. Saw ger, spoke gently
Duffers
in
PSP Association
7 years ago
Which blogger makes a difference to your life?
Health management:
A blog that helps others to manage or
support
their own health better.
blog: A blog focusing on the role of carers, the difficulties and experiences they face. It may be written by someone who is a carer, does work around carers or someone that is cared for.
Health management:
A blog that helps others to manage or
support
their own health better.
blog: A blog focusing on the role of carers, the difficulties and experiences they face. It may be written by someone who is a carer, does work around carers or someone that is cared for.
AlexaHU
in
HealthUnlocked Latest
7 years ago
Engagement Is Survival: My Take on ASCO 2017
Here's an insightful article from Dr. Don Dizon, who hosted our first ever AMA a couple days ago, on the important role that doctors can play in their patient's treatment. "The American Society of Clinical Oncology (ASCO) Annual Meeting wrapped up early in June, and what a meeting it was. In addition
Here's an insightful article from Dr. Don Dizon, who hosted our first ever AMA a couple days ago, on the important role that doctors can play in their patient's treatment. "The American Society of Clinical Oncology (ASCO) Annual Meeting wrapped up early in June, and what a meeting it was. In addition
joann86
Administrator
in
SHARE Ovarian Cancer Support
7 years ago
What's happening with me
I would like to thank the people who posted concerns of how I'm doing after Bevvy posted about me .The last few weeks have been a bit difficult things seem to be hard T spiralling a bit out of my control .Last week I had a visit from a doctor who works palliative care in the community and in the hospice
I would like to thank the people who posted concerns of how I'm doing after Bevvy posted about me .The last few weeks have been a bit difficult things seem to be hard T spiralling a bit out of my control .Last week I had a visit from a doctor who works palliative care in the community and in the hospice
Time_2_drink
in
Lung Conditions Community Forum
7 years ago
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