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Carbidopa / Levodopa
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A Curmudgeonly Approach to Supplements and Research "Progress." 😊
They always circled back to that dreaded
carbidopa
levodopa
stuff even though it had horrible side effects and they weren't particularly encouraging or enlightening.
They always circled back to that dreaded
carbidopa
levodopa
stuff even though it had horrible side effects and they weren't particularly encouraging or enlightening.
jimcaster
in
Cure Parkinson's
3 years ago
FDA OKs Phase 2 Trial of Oral NE3107 in Easing Inflammation
The Phase 2 trial will be a double-blind, placebo-controlled study of NE3107’s safety and efficacy given with
levodopa
/
carbidopa
to adult patients.
The Phase 2 trial will be a double-blind, placebo-controlled study of NE3107’s safety and efficacy given with
levodopa
/
carbidopa
to adult patients.
Hidden
in
Cure Parkinson's
3 years ago
Levodopa
My husband has been prescribed Levodopa but has MSA -C . I appreciate we are all different but wondered what experiences people have had ? Side affects ? Benefits etc . He has been to take 150mg daily , is it usual to start low and gradually increase ?
My husband has been prescribed Levodopa but has MSA -C . I appreciate we are all different but wondered what experiences people have had ? Side affects ? Benefits etc . He has been to take 150mg daily , is it usual to start low and gradually increase ?
Nichod100
in
Multiple System Atrophy Trust
3 years ago
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B6 recommended with carbidopa levodopa.
I am 2.5 years dx with Pd and just started
carbidopa
levodopa
. It helped quite a bit and took b6 (for depression) this morning and was amazed at how good I felt. Like I was 100 percent normal. I took too much as I have read.
I am 2.5 years dx with Pd and just started
carbidopa
levodopa
. It helped quite a bit and took b6 (for depression) this morning and was amazed at how good I felt. Like I was 100 percent normal. I took too much as I have read.
38yroldmale
in
Cure Parkinson's
3 years ago
Probiotic, Solace PS128, Eases ‘Off’ Periods, Motor Symptoms in Trial (PRWEB) NOVEMBER 08, 2021
The active agent in Solace PS128, a probiotic sold by Oryx Biomedical, eased disease symptoms and improved life quality in 25 people with Parkinson’s disease given the supplement in a small, open-label clinical trial. “Solace PS128 is the result of more than 20 years of scientific research,” David Lee
The active agent in Solace PS128, a probiotic sold by Oryx Biomedical, eased disease symptoms and improved life quality in 25 people with Parkinson’s disease given the supplement in a small, open-label clinical trial. “Solace PS128 is the result of more than 20 years of scientific research,” David Lee
Hidden
in
Cure Parkinson's
3 years ago
Dose Adjustment
My Dose
Carbidopa
levodopa
IR 25/100 (2) Thiamine hcl 4 grams daily. Tentatively
Carbidopa
levodopa
IR 25/100 (1) Thiamine hcl 6 grams daily.
My Dose
Carbidopa
levodopa
IR 25/100 (2) Thiamine hcl 4 grams daily. Tentatively
Carbidopa
levodopa
IR 25/100 (1) Thiamine hcl 6 grams daily.
Hidden
in
Cure Parkinson's
3 years ago
Video on the microbiome and how it relates to PD. Also, recruiting for (remote) trial.
Very interesting information about various things related to the microbiome and PD. If you want to jump to the trials they're recruiting for, go to timestamp 25:00. This video was posted in March 2021, so it might be too late for the trial. I'll come back here and update this once I hear back from them
Very interesting information about various things related to the microbiome and PD. If you want to jump to the trials they're recruiting for, go to timestamp 25:00. This video was posted in March 2021, so it might be too late for the trial. I'll come back here and update this once I hear back from them
JAS9
in
Cure Parkinson's
3 years ago
RLS Improving, Insomnia Worsening
My husband has suffered from RLS for 30 years. A few years ago, he started on Mirapex which did wonders at the time. It started to augment this spring, even causing him to fall asleep in an instant when driving. Withdrawal was a nightmare. Since mid-July, he's been on 600 mg. Gabapentin, taken at
My husband has suffered from RLS for 30 years. A few years ago, he started on Mirapex which did wonders at the time. It started to augment this spring, even causing him to fall asleep in an instant when driving. Withdrawal was a nightmare. Since mid-July, he's been on 600 mg. Gabapentin, taken at
DreamerTED
in
Restless Legs Syndrome
3 years ago
The Uric Acid Failure: Lessons Learned
RR = relative risk
Lesson one: Association ≠ Causation!
Mistaking association for causation is a major source of medical misunderstanding. It comes with real consequences, as we shall see. Observational studies can only find associations. Proving causation requires interventional studies
RR = relative risk
Lesson one: Association ≠ Causation!
Mistaking association for causation is a major source of medical misunderstanding. It comes with real consequences, as we shall see. Observational studies can only find associations. Proving causation requires interventional studies
park_bear
in
Cure Parkinson's
3 years ago
Mucuna dosage question
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
I am into my sixth year of PD. Up until now, I have avoided taking any PD drugs, relying entirely on supplements, in particular high dose B1. About 10 days ago, I started taking mucuna. I have been taking capsules from piping rock, one in the morning and one in the evening. Not feeling any particular
Vt11
in
Cure Parkinson's
3 years ago
The Value Of Carbidopa Levodopa Demonstrated in Two Signatures
One of the first decisions a PwP must make is when (or whether) to begin taking medication. There is no correct answer and we all know how PD varies from person to person. I held off for 2 1/2 years after my diagnosis, but a relatively minor event today caused me to pause and think about how well sinemet
One of the first decisions a PwP must make is when (or whether) to begin taking medication. There is no correct answer and we all know how PD varies from person to person. I held off for 2 1/2 years after my diagnosis, but a relatively minor event today caused me to pause and think about how well sinemet
jimcaster
in
Cure Parkinson's
3 years ago
Time for a sea change?
I see that we are still advising people (seniors no less) to taper off prami - the worst of the worst. To me that’s equal to jumping in front of a freight train. The suffering is too great. I have unilaterally decided that the only way to do this is to first switch to Neupro, get the person comfortable
I see that we are still advising people (seniors no less) to taper off prami - the worst of the worst. To me that’s equal to jumping in front of a freight train. The suffering is too great. I have unilaterally decided that the only way to do this is to first switch to Neupro, get the person comfortable
Hidden
in
Restless Legs Syndrome
3 years ago
B1 overdose?
I hadn't had success with HDT when I used thiamine HCL. Recently there was a post describing the poster's success with thiamine mononitrate. I was encouraged to give this other form of thiamine a try. Starting October 4th I have done one 100mg sublingual tablet in the morning each day. It's been
I hadn't had success with HDT when I used thiamine HCL. Recently there was a post describing the poster's success with thiamine mononitrate. I was encouraged to give this other form of thiamine a try. Starting October 4th I have done one 100mg sublingual tablet in the morning each day. It's been
Zardoz
in
Cure Parkinson's
3 years ago
Levodopa incidence
“In conclusion, our results are relevant to current practice. It is reassuring that early levodopa initiation and appropriately maximal tolerated dose do not appear to predispose to major, disabling dyskinesia.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6329327/?fbclid=IwAR3cBU8HRtHndGoqLJ_X9x2nhr7o1
“In conclusion, our results are relevant to current practice. It is reassuring that early levodopa initiation and appropriately maximal tolerated dose do not appear to predispose to major, disabling dyskinesia.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6329327/?fbclid=IwAR3cBU8HRtHndGoqLJ_X9x2nhr7o1
Hidden
in
Cure Parkinson's
3 years ago
Equivalence between C/L meds and Mucuna Pruriens.
Does anyone have any knowledge or information on the enhancing effect of
carbidopa
in Sinemet-type medications compared to
levodopa
found in Mucuna? I believe I've read somewhere 4 or 5 times, is that approximately right?
Does anyone have any knowledge or information on the enhancing effect of
carbidopa
in Sinemet-type medications compared to
levodopa
found in Mucuna? I believe I've read somewhere 4 or 5 times, is that approximately right?
puretone
in
Cure Parkinson's
3 years ago
Sinemet / carbidopa levodopa
“In 1988, the U.S. Food and Drug Administration (FDA) is recommended that the daily dose of Sinemet should not exceed 800 mg per day, and as of 2013, this recommendation has not been revised. In 2018 the labeling of Sinemet recommends not exceeding a levodopa total daily dose of 2,000 mg per day. As
“In 1988, the U.S. Food and Drug Administration (FDA) is recommended that the daily dose of Sinemet should not exceed 800 mg per day, and as of 2013, this recommendation has not been revised. In 2018 the labeling of Sinemet recommends not exceeding a levodopa total daily dose of 2,000 mg per day. As
Hidden
in
Cure Parkinson's
3 years ago
Annoying Toe curling
What causes toe curling in Parkinson’s disease? Is it too much or too little levodopa?
What causes toe curling in Parkinson’s disease? Is it too much or too little levodopa?
nourilo
in
Cure Parkinson's
3 years ago
Mucuna puriens 1000mg
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
My new neurologist suggested I try mucuna puriens 1000 mg. because of side effects of sinemet ER 25/100 which I take at night. I also take Asian herbs prescribed by my acupuncturist which contains some levodopa three times a day. I took one 1000 MP capsule and my blood pressure and pulse shot up and
Lin1950
in
Cure Parkinson's
3 years ago
It is settled then. Everyone is supportive of bringing focus to our Zoom meetings. Meeting will be formatted & shortened to 1 hour.
Greetings Zoomers, Discussion items for our next meeting: 1) All things Levodopa: When were you diagnosed, when did you start C/L, how much C/L do you take now, for which symptoms, how did you titrate up, do you have side effects, and have you ever reduced your dose? 2) We all wrestle with keeping
Greetings Zoomers, Discussion items for our next meeting: 1) All things Levodopa: When were you diagnosed, when did you start C/L, how much C/L do you take now, for which symptoms, how did you titrate up, do you have side effects, and have you ever reduced your dose? 2) We all wrestle with keeping
MBAnderson
in
Cure Parkinson's
3 years ago
gut problems and medication effectiveness
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
hi all http://www.sci-news.com/medicine/gut-bacteria-levodopa-07328.html just read this and found it interesting, I definitely have major problems with medication effectiveness and digestive issues. When first diagnosed i had no stomach issues 5 and half years in i have problems with my digestion not
Todd-pw
in
Cure Parkinson's
3 years ago
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