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Carbidopa / Levodopa
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Calling for B6 test results in PD: Unveiling the dosage dilemma
It is remarkable that there is no known study where guidelines are given on the degree of B6 supplementation while a good B6 balance is crucial in PD treatment. Through HU, I have gathered a database of B6 test results from PD patients. Some from PWP without supplementation, and some with. Preliminary
It is remarkable that there is no known study where guidelines are given on the degree of B6 supplementation while a good B6 balance is crucial in PD treatment. Through HU, I have gathered a database of B6 test results from PD patients. Some from PWP without supplementation, and some with. Preliminary
Esperanto
in
Cure Parkinson's
9 months ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
8 months ago
Restless foot
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Hi ugly sick old men, lately I've had an annoying problem with my right foot, and especially in bed at night I can't keep it still. Definitely a form of dyskinesia caused by Levodopa. Tips for solving the problem? Thank you .
Axter
in
Cure Parkinson's
8 months ago
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Zandopa and insomnia?
Has anyone found that zandopa causes insomnia, more so than prescription
carbidopa
levodopa
or other forms of Mucuna?I have only tried zandopa a few times, but it seems that both times I had some wicked insomnia.
Has anyone found that zandopa causes insomnia, more so than prescription
carbidopa
levodopa
or other forms of Mucuna?I have only tried zandopa a few times, but it seems that both times I had some wicked insomnia.
Fireside15
in
Cure Parkinson's
1 year ago
trying to consolidate b6 facts
my neuro wants to watch my b6 levels and I am trying to glean what I can about b6 in this website. please correct me if I am wrong or add to this post as you see fit 1. There are 2 types of b6, pyroxidine and P5P 2. Too much pyroxidine can be toxic and may lead to neuropathy 3. Too much b6, either
my neuro wants to watch my b6 levels and I am trying to glean what I can about b6 in this website. please correct me if I am wrong or add to this post as you see fit 1. There are 2 types of b6, pyroxidine and P5P 2. Too much pyroxidine can be toxic and may lead to neuropathy 3. Too much b6, either
Jmellano
in
Cure Parkinson's
8 months ago
Ashwagandha for Parkinson's Symptoms?
www.ncbi.nlm.nih.gov/pmc/articles/PMC10147008/ https://acrobat.adobe.com/id/urn:aaid:sc:US:462498b0-b51b-4ccb-8fbe-4ee37f227272 https://mbdhwellness.com/blogs/all-posts/what-are-the-effects-of-ashwagandha-on-serotonin-and-dopamine https://hellopharmacist.com/questions/is-it-safe-to-take-ashwaganda-with-
carbidopa
-
levodopa
www.ncbi.nlm.nih.gov/pmc/articles/PMC10147008/ https://acrobat.adobe.com/id/urn:aaid:sc:US:462498b0-b51b-4ccb-8fbe-4ee37f227272 https://mbdhwellness.com/blogs/all-posts/what-are-the-effects-of-ashwagandha-on-serotonin-and-dopamine https://hellopharmacist.com/questions/is-it-safe-to-take-ashwaganda-with-
carbidopa
-
levodopa
pdpatient
in
Cure Parkinson's
10 months ago
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Here is what seems to work best: Dad takes some form of dopamine every 2 hours basically, a smaller dose of SINEMET ALTERNATING WITH A SMALLER DOSE OF ZANDOPA (Mucuna Pruriens, the Velvet Bean, a natural form of dopamine, that is kind of like taking
Levodopa
without the
Carbidopa
, as I understand it
Here is what seems to work best: Dad takes some form of dopamine every 2 hours basically, a smaller dose of SINEMET ALTERNATING WITH A SMALLER DOSE OF ZANDOPA (Mucuna Pruriens, the Velvet Bean, a natural form of dopamine, that is kind of like taking
Levodopa
without the
Carbidopa
, as I understand it
rsacdoolittle
in
Cure Parkinson's
10 months ago
Laurie Mischley on Using High DHA Fish Oil to Reduce Levodopa-Induced Dyskinesia (Updated)
https://youtu.be/piDgzpD7oOQ?si=hZfSiPMEqAAg_Kbc Dr Mischley also recommends citicoline. I strongly discourage anyone who is not already using citicoline from starting, because: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". For
https://youtu.be/piDgzpD7oOQ?si=hZfSiPMEqAAg_Kbc Dr Mischley also recommends citicoline. I strongly discourage anyone who is not already using citicoline from starting, because: "patients treated with citicoline experienced a significant worsening 45 days after the medication was discontinued". For
park_bear
in
Cure Parkinson's
8 months ago
Parkinson’s stategy: Embracing Hiking
Can long-distance trails be a remedy for PD? That is the lingering question after my previous personal experiences on the Vicentina trail in Portugal and the Camí de Ronda in Spain. In both cases, a dramatic start in the first week transformed into a remarkable improvement in my PD symptoms. Reetpetitio
Can long-distance trails be a remedy for PD? That is the lingering question after my previous personal experiences on the Vicentina trail in Portugal and the Camí de Ronda in Spain. In both cases, a dramatic start in the first week transformed into a remarkable improvement in my PD symptoms. Reetpetitio
Esperanto
in
Cure Parkinson's
8 months ago
spasms
I am on muscle relaxants and tramadol for pain and
carbidopa
/
levodopa
for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and the back of my head. Last night I had severe spasms and went to ER.
I am on muscle relaxants and tramadol for pain and
carbidopa
/
levodopa
for Pakinson like symptoms, none of which helped 2 nights ago and I ended up falling hitting my back and the back of my head. Last night I had severe spasms and went to ER.
horseandwolf
in
PSP Association
1 year ago
carbidopa, levodopa and anal/rectal pain
I know this might be a little bit of TMI for some of you, but I have to know if anyone of you out there has ever experienced severe anal/rectal pain from using
carbidopa
levodopa
? Especially from the time you take it until the time it seems to start to work?
I know this might be a little bit of TMI for some of you, but I have to know if anyone of you out there has ever experienced severe anal/rectal pain from using
carbidopa
levodopa
? Especially from the time you take it until the time it seems to start to work?
MissRita
in
Cure Parkinson's
2 years ago
Fava Beans for Parkinson's
Here is a case of a Parkinson's patient who accidentally overdosed on Levodopa after eating Fava Beans. https://www.elsevier.es/en-revista-neurologia-english-edition--495-articulo-broad-bean-vicia-faba-consumption-S2173580815000887 EDIT : Added a relevant video. https://youtu.be/2QefWbTj2QI
Here is a case of a Parkinson's patient who accidentally overdosed on Levodopa after eating Fava Beans. https://www.elsevier.es/en-revista-neurologia-english-edition--495-articulo-broad-bean-vicia-faba-consumption-S2173580815000887 EDIT : Added a relevant video. https://youtu.be/2QefWbTj2QI
pdpatient
in
Cure Parkinson's
8 months ago
Vitamin B6 Toxicity: Available Testing of B6 Plasma Level Does NOT Tell You What You Need to Know
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
[u]
Background
[/u]: Vitamin B6 participates as a coenzyme in over 100 different biochemical reactions. When it does so it is converted to the inactive form, pyridoxine. The body contains a recycling loop that restores the pyridoxine to the active form, P5P. Vitamin B2 is required for this process
park_bear
in
Cure Parkinson's
8 months ago
Motivational Vigor in Parkinson's Disease Requires the Short and Long Duration Response to Levodopa
https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29659
https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29659
Farooqji
in
Cure Parkinson's
9 months ago
Levodopa just for exercise?
Here's a question for you. Is anyone on or know of anyone that's on levodopa just for exercise and not on it the rest of the time? I'm on neupro which has helped live a regular daily life but still very dystonic and stiff for full on exercise and wondering if I could get a temporary boost to get through
Here's a question for you. Is anyone on or know of anyone that's on levodopa just for exercise and not on it the rest of the time? I'm on neupro which has helped live a regular daily life but still very dystonic and stiff for full on exercise and wondering if I could get a temporary boost to get through
Jefferami
in
Cure Parkinson's
9 months ago
Vitamin B2 Deficiency Can Cause B6 Toxicity! PWP Are Commonly Deficient In B2.
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
park_bear
in
Cure Parkinson's
9 months ago
Dietary Approaches to Improve Efficacy and Control Side Effects of Levodopa Therapy in Parkinson's Disease: A Systematic Review
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
I was researching supplement BCAA provided by my husband's functional medicine MD. I was surprised to find one of the ingredients was listed as a major contraindication with levodopa. L-Phenylalanine. Dug a little deeper and it related to protein and impact on levodopa. Found an interesting article
Sydney75
in
Cure Parkinson's
9 months ago
The fateful "off" moment.
When they arrive it's like hitting a wall. You become a non-person. It's as if all the symptoms , which until then had remained compressed inside you thanks to Levodopa, as if by magic they come out to shout all their strenght and turn you into a zombie. There is no gradualness. It is necessary to
When they arrive it's like hitting a wall. You become a non-person. It's as if all the symptoms , which until then had remained compressed inside you thanks to Levodopa, as if by magic they come out to shout all their strenght and turn you into a zombie. There is no gradualness. It is necessary to
Fed1000
in
Cure Parkinson's
9 months ago
Using B1 therapy
HI, Everyone. I'm hoping you can help analyze our problem. My PwP was diagnosed 2 years ago. He has never taken prescription medications for PD. He started on sublingual B1 in November ’22 at one tablet a day. After 2 weeks we gradually saw some improvements. Then in January ’23, he showed overdose
HI, Everyone. I'm hoping you can help analyze our problem. My PwP was diagnosed 2 years ago. He has never taken prescription medications for PD. He started on sublingual B1 in November ’22 at one tablet a day. After 2 weeks we gradually saw some improvements. Then in January ’23, he showed overdose
Parkwarrior
in
Cure Parkinson's
9 months ago
Real-time measurement of glucose as a proxy for levodopa concentration?
Goud et al. write [1]: "because dose optimization is currently based on patients’ report of symptoms, which are difficult for patients to describe, the management of PD is challenging. We report on a microneedle sensing platform for continuous minimally invasive orthogonal electrochemical monitoring
Goud et al. write [1]: "because dose optimization is currently based on patients’ report of symptoms, which are difficult for patients to describe, the management of PD is challenging. We report on a microneedle sensing platform for continuous minimally invasive orthogonal electrochemical monitoring
johntPM
in
Cure Parkinson's
10 months ago
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