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Carbidopa / Levodopa
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Help! Please!
I am begging for help. My father is 89 and was diagnosed with Parkinsons last summer. Since going on carbo levodopa he has gotten worse. The first neurologist upped his dose quickly. The second lowered it. The third, a movement disorder specialist said she would very slowly raise it. He has been
I am begging for help. My father is 89 and was diagnosed with Parkinsons last summer. Since going on carbo levodopa he has gotten worse. The first neurologist upped his dose quickly. The second lowered it. The third, a movement disorder specialist said she would very slowly raise it. He has been
lady54
in
Cure Parkinson's
12 years ago
Can Our Meds Give Us The Shakes?
Sometimes it seems like I get tremors 'n shakes after I take my
carbidopa
/
levodopa
. Anyone else have this problem?
Sometimes it seems like I get tremors 'n shakes after I take my
carbidopa
/
levodopa
. Anyone else have this problem?
Joealt
in
Cure Parkinson's
12 years ago
Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
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I am taking (Carbidopa-Levodopa and my skin is really gritty feeling. Has anyone else had this?
Estelle
in
Cure Parkinson's
12 years ago
Interesting response to my PD symptoms
In my profile pic I'm playing with my parrot, Lily. She's just about 2 years old-a baby in the parrot world. I got her when she was not quite 5 months old. She was (and is) sweet sweet sweet. However there was a notable pattern to her interactions with me. I started levodopa shortly after she
In my profile pic I'm playing with my parrot, Lily. She's just about 2 years old-a baby in the parrot world. I got her when she was not quite 5 months old. She was (and is) sweet sweet sweet. However there was a notable pattern to her interactions with me. I started levodopa shortly after she
chrismw
in
Cure Parkinson's
12 years ago
Dopamine Disregultion Syndrome .
HI I haven't been told i have read it on a letter sent to my GP and a cope has been sent to me which says i have DDP . In the letter she uses words l like He denies any elation from l-dopa. AND denies any mood swings . My question is this. IF any body think,s I have DDP. How can i prove I don't
HI I haven't been told i have read it on a letter sent to my GP and a cope has been sent to me which says i have DDP . In the letter she uses words l like He denies any elation from l-dopa. AND denies any mood swings . My question is this. IF any body think,s I have DDP. How can i prove I don't
export
in
Cure Parkinson's
12 years ago
I am 39 and taking 2 to 4 Madopar tablets a day do you think I will end up with dyskinesia?
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
I am starting Pramipexole .52mg per day prolonged release in the morning as Requip XL 6mg is not working out. The idea is that I take the lower dosage of dopamine agonist and top it up with Madopar. I am worried that I will end up with dyskinesia due to my age and how early I am taking Levodopa.
Yogibear
in
Cure Parkinson's
12 years ago
Is it me or is it my meds?
He increased my Requip XL to 8 mg daily from 6, and I take 4
Carbidopa
/
Levodopa
25/100 tablets daily. He wants me to try the increase in Requip XL for 2 weeks, then check back in with him. He may, at that time change the
Carbidopa
/
Levodopa
to Stalevo. I feel like I'm going crazy.
He increased my Requip XL to 8 mg daily from 6, and I take 4
Carbidopa
/
Levodopa
25/100 tablets daily. He wants me to try the increase in Requip XL for 2 weeks, then check back in with him. He may, at that time change the
Carbidopa
/
Levodopa
to Stalevo. I feel like I'm going crazy.
CheriH
in
Cure Parkinson's
12 years ago
Just another day without Grace
Ha--not feeling so syrupy and dramatic today--fooled ya. I shook the pity party hangover blues and learned a good lesson. . .when my 6 year old daughter said "Mommy why are you crying? And why are you sitting on the floor?" I thought "why the heck am I crying???" (I was on the floor for very legitimate
Ha--not feeling so syrupy and dramatic today--fooled ya. I shook the pity party hangover blues and learned a good lesson. . .when my 6 year old daughter said "Mommy why are you crying? And why are you sitting on the floor?" I thought "why the heck am I crying???" (I was on the floor for very legitimate
chrismw
in
Cure Parkinson's
12 years ago
Are Sinemet and Madopar the same thing - L-Dopa ?
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Currently taking Requip XL but they're starting to wear off . Have tried Sinemet but they made my tremour worse !! Doc has recommended trying Madopar (dissolvable ones) but a low dose once a day to start with as i struggle with mornings (don't we all?) Anyone have experience of this drug "cocktail" (
Helshubby
in
Cure Parkinson's
12 years ago
New therapies
These include adenosine 2a (A2a) antagonists (istradefylline, preladenant, and SYN115),
levodopa
/
carbidopa
intestinal gel (LCIG), IPX066-an extended-release formulation of
carbidopa
/
levodopa
, XP21279-a sustained-release
levodopa
prodrug, ND0611-a
carbidopa
subcutaneous patch, safinamide-a
These include adenosine 2a (A2a) antagonists (istradefylline, preladenant, and SYN115),
levodopa
/
carbidopa
intestinal gel (LCIG), IPX066-an extended-release formulation of
carbidopa
/
levodopa
, XP21279-a sustained-release
levodopa
prodrug, ND0611-a
carbidopa
subcutaneous patch, safinamide-a
Hidden
in
Cure Parkinson's
12 years ago
Bach's Rescue Remedy spray seems to help
I have been trying the Bach's rescue spray for several days and I think it helps. I have been experiencing anxiety then depression as my levodopa wears off. Sometimes this is much more disconcerting than the physical symptoms. Occasionally I don't seem to recover the rest of the day. I have tried
I have been trying the Bach's rescue spray for several days and I think it helps. I have been experiencing anxiety then depression as my levodopa wears off. Sometimes this is much more disconcerting than the physical symptoms. Occasionally I don't seem to recover the rest of the day. I have tried
etterus
in
Cure Parkinson's
12 years ago
Protein found in Parkisons
Protein Identified That Contributes To Symptoms Of Parkinson's Disease Scientists at the Gladstone Institutes, an independent and nonprofit biomedical-research organization, have identified a protein that exacerbates symptoms of Parkinson's disease - a discovery that could one day lead
Protein Identified That Contributes To Symptoms Of Parkinson's Disease Scientists at the Gladstone Institutes, an independent and nonprofit biomedical-research organization, have identified a protein that exacerbates symptoms of Parkinson's disease - a discovery that could one day lead
Hidden
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
in
Cure Parkinson's
12 years ago
Do some meds make it worse - Levodopa Worsens Gait in Some Patients
Levodopa Worsens Gait in Some Patients In this weeks Neurology Dr. Espay and Bloem examine a rare PD manifestation when levodopa can actually worsen freezing and gait in a few patients. Over the years one trick I have learned is to ask patients if they are better with walking before their first
Levodopa Worsens Gait in Some Patients In this weeks Neurology Dr. Espay and Bloem examine a rare PD manifestation when levodopa can actually worsen freezing and gait in a few patients. Over the years one trick I have learned is to ask patients if they are better with walking before their first
Hidden
in
Cure Parkinson's
12 years ago
AM I GETTING ENOUGH CO-BENELDOPA?
Here in the uk the maximum L-DOPA tablets is 8 per day which I am on. I spend more time off than on. I would like 12 tablets . Even ten would make me happy. My question is if i need them which I do . Do I have the right to take more than the maximum dose ? YOURS EXPORT.
Here in the uk the maximum L-DOPA tablets is 8 per day which I am on. I spend more time off than on. I would like 12 tablets . Even ten would make me happy. My question is if i need them which I do . Do I have the right to take more than the maximum dose ? YOURS EXPORT.
export
in
Cure Parkinson's
12 years ago
Scary New Sympton Continued
They had me on 10 mg's of Valium 3 times a day along with 1 mg of azilect,3 doses
carbidopa
25mg/
levodopa
100 mg, requip xl 4 mg and 1
carbidopa
50/
levodopa
200 cr at bedtime. They seem to think the blackouts were from the valilum and now want to cut them to 5 mg's dailey.
They had me on 10 mg's of Valium 3 times a day along with 1 mg of azilect,3 doses
carbidopa
25mg/
levodopa
100 mg, requip xl 4 mg and 1
carbidopa
50/
levodopa
200 cr at bedtime. They seem to think the blackouts were from the valilum and now want to cut them to 5 mg's dailey.
Boots1
in
Cure Parkinson's
12 years ago
Anybody experience pain when making a fist?
Hello everybody. After a few weeks making little comments here and there, I am ready to post a question that is very important to me. First, however, the clinical snapshot; skip if you are sick of reading these accounts. History and treatment: My first unequivical symptom (micrografia) showed
Hello everybody. After a few weeks making little comments here and there, I am ready to post a question that is very important to me. First, however, the clinical snapshot; skip if you are sick of reading these accounts. History and treatment: My first unequivical symptom (micrografia) showed
Parkinson_Schmarkinson
in
Cure Parkinson's
12 years ago
Symptoms Advancing or something else?
The increase in the
carbidopa
-
levodopa
has given me auditory hallucinations. My tremors have increased and are now on my right side as well. Sometimes my whole body - head to legs shake. I'm just looking for input or something if anyone can.
The increase in the
carbidopa
-
levodopa
has given me auditory hallucinations. My tremors have increased and are now on my right side as well. Sometimes my whole body - head to legs shake. I'm just looking for input or something if anyone can.
Therese
in
Cure Parkinson's
12 years ago
Yesterday & Tomorrow
All fellow travelers on this boat called Parkinson's we have written in stone in our memory and soul a date: the day of diagnosis. That day changed everything. There is a before and after in our lives on that day. The person who entered the office of the neurologist only looks like that one who
All fellow travelers on this boat called Parkinson's we have written in stone in our memory and soul a date: the day of diagnosis. That day changed everything. There is a before and after in our lives on that day. The person who entered the office of the neurologist only looks like that one who
FulvioC
in
Cure Parkinson's
13 years ago
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