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Tapering down on Prednisone
18 months since I was diagnosed with PMR I’ve managed to taper down to 4,5 mg per day, tried several times to get to 4 mg.Find my arm joints and hips ache even more till I can’t walk.Taking Codeine also for the pain.Just wondering is it worth consulting my GP that’s if I can ever get through to the surgery.I
18 months since I was diagnosed with PMR I’ve managed to taper down to 4,5 mg per day, tried several times to get to 4 mg.Find my arm joints and hips ache even more till I can’t walk.Taking Codeine also for the pain.Just wondering is it worth consulting my GP that’s if I can ever get through to the surgery.I
Brears
in
PMRGCAuk
3 years ago
At my wits end
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldn’t carry on with no sleep. I’ve been on 1-2 Madopar for years but it just isn’t working now. As well as Madopar, I
I am from NZ and have been desperate with my RLS also for months, sometimes not getting to sleep till 4.30am!! I finally went back to my Dr saying something had to be done as I couldn’t carry on with no sleep. I’ve been on 1-2 Madopar for years but it just isn’t working now. As well as Madopar, I
Dunedinite
in
Restless Legs Syndrome
3 years ago
Advice please
Help I’m desperate at the moment I’ve had an awful day today my rls has been terrible. I took my Pregabalin 150mg and my pramipexole 0.088mg at 9pm and two paracetamol at 3pm and 7pm but my legs were so bad I couldn’t rest and it’s now midnight and I still can’t rest or sleep my legs have got the urge
Help I’m desperate at the moment I’ve had an awful day today my rls has been terrible. I took my Pregabalin 150mg and my pramipexole 0.088mg at 9pm and two paracetamol at 3pm and 7pm but my legs were so bad I couldn’t rest and it’s now midnight and I still can’t rest or sleep my legs have got the urge
Hoochybaby
in
Restless Legs Syndrome
3 years ago
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Insomnia
Hi my neurologist wrote to me a few days ago regarding the use is melatonin for insomnia she said it was licensed for short term use in adults over 55 years but in her experience it’s not a very effective treatment for insomnia. She added that a course of CBT was more effective. She added that she will
Hi my neurologist wrote to me a few days ago regarding the use is melatonin for insomnia she said it was licensed for short term use in adults over 55 years but in her experience it’s not a very effective treatment for insomnia. She added that a course of CBT was more effective. She added that she will
Hoochybaby
in
Restless Legs Syndrome
3 years ago
Endometriosis and FEt
I’m 35 and due to hopefully start a natural FET cycle this month. This is my first attempt after my first fresh cycle was cancelled due to sepsis following egg collection. Over the last 2 weeks I have been experiencing increasing lower pelvic pain consistent with my endometriosis requiring codeine and
I’m 35 and due to hopefully start a natural FET cycle this month. This is my first attempt after my first fresh cycle was cancelled due to sepsis following egg collection. Over the last 2 weeks I have been experiencing increasing lower pelvic pain consistent with my endometriosis requiring codeine and
Daisy0909
in
Fertility Network UK
3 years ago
Prednisone and Codeine
Just recovering from a visit to the emergency room after having some dental surgery procedure. The Dental Surgeon prescribed Tylenol 3 with Codeine for pain and swelling after i indicated my current drug therapy for GCA. Needless to say about 24 hr after taking the meds every 4 hours for the extreme
Just recovering from a visit to the emergency room after having some dental surgery procedure. The Dental Surgeon prescribed Tylenol 3 with Codeine for pain and swelling after i indicated my current drug therapy for GCA. Needless to say about 24 hr after taking the meds every 4 hours for the extreme
Carver63
in
PMRGCAuk
3 years ago
Hypothyroid with sore feet
I’m hypothyroid after RAI and during the last 18 months have developed an odd sensation in the metatarsals of both feet. They feel tight as if there’s a web pulling all the time, and are pretty uncomfortable with a burning tenderness. I’ve spoken with my Chiropedist who was baffled, trying to see my
I’m hypothyroid after RAI and during the last 18 months have developed an odd sensation in the metatarsals of both feet. They feel tight as if there’s a web pulling all the time, and are pretty uncomfortable with a burning tenderness. I’ve spoken with my Chiropedist who was baffled, trying to see my
Roulette26
in
Thyroid UK
3 years ago
7 weeks post op - still in pain?
7 weeks post diagnostic laparoscopy with excision of Endometriosis. I haven't really taken note of if the pain has gotten better or worse as it's still early days. Today I am in so much pain in my lower belly, almost as if I'm about to start bleeding but I'm not due for another week. I don't take any
7 weeks post diagnostic laparoscopy with excision of Endometriosis. I haven't really taken note of if the pain has gotten better or worse as it's still early days. Today I am in so much pain in my lower belly, almost as if I'm about to start bleeding but I'm not due for another week. I don't take any
Hunter-23
in
Endometriosis UK
3 years ago
LOW ENDORPHRIN LEVELS
HI all can anyone tell me where I can purchase codeine phosphate without a prescription or any other med that will boost endorphrin levels as my gp informs me that my levels are low at times but refuses to prescribe anything.
HI all can anyone tell me where I can purchase codeine phosphate without a prescription or any other med that will boost endorphrin levels as my gp informs me that my levels are low at times but refuses to prescribe anything.
southerndrivergirl
in
Thyroid UK
3 years ago
Pain again
Hi all, thanks for replies. Posted reply earlier and put it on the wrong bit.!! The costachondria sounds very like it as had it on and off for 6 months. Getting a GP response is difficult. We are going away tomorrow for a couple of days then deal with it when we come back. I was given noratryptaline
Hi all, thanks for replies. Posted reply earlier and put it on the wrong bit.!! The costachondria sounds very like it as had it on and off for 6 months. Getting a GP response is difficult. We are going away tomorrow for a couple of days then deal with it when we come back. I was given noratryptaline
agnes-D
in
NRAS
3 years ago
Nand.
Hi all, has anyone experienced pain in rib/chest area. Pain is awful, difficult to breathe in as like a stabbing pain. It is variable in severity and frequency. Does ease a bit as day goes on and after codeine. Left side only. I honestly am thinking it is my RH. Any help appreciated. Thanks.
Hi all, has anyone experienced pain in rib/chest area. Pain is awful, difficult to breathe in as like a stabbing pain. It is variable in severity and frequency. Does ease a bit as day goes on and after codeine. Left side only. I honestly am thinking it is my RH. Any help appreciated. Thanks.
agnes-D
in
NRAS
3 years ago
help with results
hi there, can anyone help with my niece's blood results. she recently had a baby and has not been well. she has all the classic symptoms and she is being referred to an endocrinologist and there was mention of RAI which she doesnt want as she has three children all under the age of 6 TSH - 0.010 (RANGE
hi there, can anyone help with my niece's blood results. she recently had a baby and has not been well. she has all the classic symptoms and she is being referred to an endocrinologist and there was mention of RAI which she doesnt want as she has three children all under the age of 6 TSH - 0.010 (RANGE
thyroidnodules
in
Thyroid UK
3 years ago
ELEVATED LIVER ENZYMES AND TALK OF THYROIDECTOMY
Hi. Following my post about elevated liver enzymes on Saturday morning. My dr is asking me to do another blood test tomorrow (creatinine, electrolytes, TSH, T4 and T3 and full liver function testing). I will have stopped biotin for only 3 days when this test is done. If my liver enzymes are still elevated
Hi. Following my post about elevated liver enzymes on Saturday morning. My dr is asking me to do another blood test tomorrow (creatinine, electrolytes, TSH, T4 and T3 and full liver function testing). I will have stopped biotin for only 3 days when this test is done. If my liver enzymes are still elevated
NIKEGIRL
in
Thyroid UK
3 years ago
Augmentation
Hi I had a telephone consultation with my neurologist yesterday and I told her I was just about managing with my rls I take one 0.088 mg Pramipexole and two 75 mg pregabalin at 9pm and two codeine at bedtime I just get by although sometimes in the evening my legs are so bad I feel physically sick! Walking
Hi I had a telephone consultation with my neurologist yesterday and I told her I was just about managing with my rls I take one 0.088 mg Pramipexole and two 75 mg pregabalin at 9pm and two codeine at bedtime I just get by although sometimes in the evening my legs are so bad I feel physically sick! Walking
Hoochybaby
in
Restless Legs Syndrome
3 years ago
Can you help me interpret my results...
Hi all, I'm fairly new to this forum, and to trying to interpret my results. A little background: diagnosed with Graves disease in early 20's, levels came back to normal using Block and Replace therapy (I think that's what its called). Fine for a few years and then Graves came back in in my mid-late
Hi all, I'm fairly new to this forum, and to trying to interpret my results. A little background: diagnosed with Graves disease in early 20's, levels came back to normal using Block and Replace therapy (I think that's what its called). Fine for a few years and then Graves came back in in my mid-late
HypoSarah
in
Thyroid UK
3 years ago
WILL T4 HELP ME?
Hi. Firstly thank you for reading. I am a Graves patient. What I would like to know is will a replacement therapy of levothyroxine help me? When my T4 gets low I feel very sad, depressed. My T4 to T3 ratio is high and what has been happening is my T4 gets to the bottom of the range and my T3 is still
Hi. Firstly thank you for reading. I am a Graves patient. What I would like to know is will a replacement therapy of levothyroxine help me? When my T4 gets low I feel very sad, depressed. My T4 to T3 ratio is high and what has been happening is my T4 gets to the bottom of the range and my T3 is still
NIKEGIRL
in
Thyroid UK
3 years ago
Elaine Moore's Cancer Diagnosis
Some of you may be aware of Elaine Moore and her excellent website about Graves Disease and Autoimmune Disease. On the 3rd June, Elaine posted about her health: As promised, I'm sharing my health information. According to a large recent study radioiodine for Graves' disease is known to cause several
Some of you may be aware of Elaine Moore and her excellent website about Graves Disease and Autoimmune Disease. On the 3rd June, Elaine posted about her health: As promised, I'm sharing my health information. According to a large recent study radioiodine for Graves' disease is known to cause several
lynmynott
Thyroid UK
in
Thyroid UK
3 years ago
TSI Results
High TSI usually means that the Graves Disease is surviving and thriving in us correct? Now with my thyroid that was ablated via RAI in Jan 2020 will these high antibodies attack something else in my system? Should I worry about TED? This disease has changed me mentally already never had constant nervousness
High TSI usually means that the Graves Disease is surviving and thriving in us correct? Now with my thyroid that was ablated via RAI in Jan 2020 will these high antibodies attack something else in my system? Should I worry about TED? This disease has changed me mentally already never had constant nervousness
Shaf3938
in
Graves Disease Support
3 years ago
TSI information
Hello, I was diagnosed with Graves Disease end of 2019 and had RAI in Feb 2020! I just want more info on TSI results so with this value it means it’s surviving and thriving in my body! Now with high numbers like this I will be prone to get other diseases right? Is there anyway to get these numbers
Hello, I was diagnosed with Graves Disease end of 2019 and had RAI in Feb 2020! I just want more info on TSI results so with this value it means it’s surviving and thriving in my body! Now with high numbers like this I will be prone to get other diseases right? Is there anyway to get these numbers
Shaf3938
in
Thyroid UK
3 years ago
Augmentation
Hi I have come to some sort of impasse with my battle with rls having gone through the whole gambit with da’s and opioids as we’ll as supplements as well as suffering from augmentation over the year. I now take one 0.088mg pramipexole and two 75mg Pregabalin two to three hours before bedtime and sometimes
Hi I have come to some sort of impasse with my battle with rls having gone through the whole gambit with da’s and opioids as we’ll as supplements as well as suffering from augmentation over the year. I now take one 0.088mg pramipexole and two 75mg Pregabalin two to three hours before bedtime and sometimes
Hoochybaby
in
Restless Legs Syndrome
3 years ago
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