ELEVATED LIVER ENZYMES AND TALK OF THYROIDECTOMY

[NIKEGIRL]

Hi. Following my post about elevated liver enzymes on Saturday morning. My dr is asking me to do another blood test tomorrow (creatinine, electrolytes, TSH, T4 and T3 and full liver function testing). I will have stopped biotin for only 3 days when this test is done. If my liver enzymes are still elevated then the dr is going to stop the PTU and I will be asked to take RAI or surgery. My dr called the endocrinologist about giving me T4 at my request and the dr was declined my request and also the endocrinologist remarked this situation had gone on too long. It’s been a year since diagnosis. Thought that was an unnecessary comment and that’s me being polite.

My LFT results on Friday afternoon were

Birilium 10 range 2-20

Alk Phosphatase 131 range 30-150

GGT 55 range 10-35

ALT 153 range 0-30

AST 105 range 10-50

The ALT is the most elevated. Dr not concerned with GGT or AST as they r just over 2 times. Currently on 150mg PTU daily. 50mg x 3.

New Zealand do not prescribe T3 or NDT. We r strictly T4 only. Yikes is being polite. We r in the Stone Age here. I don’t think I’ve been more scared.

[Cavapoochonowner]

Sorry no-one has replied to your post.I have no experience with your situation but just wanted to wish you all the best for tomorrow. I can't have RAI due to thyroid eye disease but from what I've read on here about RAI I would choose surgery anyway.Unfortunately circumstances seem to have you backed into a corner ,I hope someone more experienced will message you with advice . Best wishes to you.

[NIKEGIRL in reply to Cavapoochonowner]

Hi. That’s ok. I do feel like my choices are being made for me by my body. If the electrician enzymes didn’t make me feel sick I wouldn’t be worried so much but I feel unwell with nausea and loss of appetite. I am doing my blood test later today. Thanks

[nellie237 in reply to NIKEGIRL]

Hi Nikegirl,

I was the person who'd had similar LFT results in 2012 (your post Saturday), but are now OK.

I didn't have nausea when my liver results were crap, but I did have severe nausea and gastric pain with kidney injury earlier this year........no kidney pain. My kidney function dropped from 82% to 29% in about 10 days due to an increase in blood pressure meds. Two months later it was back up to 73%......due for another test this wk. Try and drink lots of fluids.

I really feel for you, you've tried so hard to avoid losing your thyroid. I wish you the very best of luck tomorrow. 🤗

[NIKEGIRL in reply to nellie237]

Hi. Well that’s actually interesting. Over the last week I think I have been going to the bathroom for number ones a bit more than usual. Enough for me to stop and think about it. No pain. My dr did a small exam yesterday and my stomach and left were the most tender and he has ordered creatinine and electrolytes but silly me put the blood work form in my prescription bag and when I got home I put the paper bag with the blood form in the log burning fire without thinking about it so I will have to call for a new one and look like an idiot more than I normally do. Aaarrrgh

[nellie237 in reply to NIKEGIRL]

Phew, I was a bit worried that I'd scare you even more. Yes, I was going to loo more frequently.

Ooops 🤣.

[NIKEGIRL in reply to nellie237]

No I haven’t frightened me. All good. Trying to stay calm and hope that it’s something f other than the PTU and like u said maybe a kidney issue. I’ll know on Wednesday. Thank you for your insight.

[nellie237 in reply to NIKEGIRL]

I was thinking more along the lines of the PTU might be the reason for a kidney concern. Sorry.

[NIKEGIRL in reply to nellie237]

Yeah I don’t know about that but PTU has a black warning for liver failure and I knew that when I started it because the carbimazole was intolerable so it was either PTU, RAI or surgery so I picked the PTU. My dr commented that it I tolerated it for 10 weeks ok before I took a break.

[nellie237 in reply to NIKEGIRL]

I would have made the same choice and I will be wishing your TFT results come back good for you.🤗

[NIKEGIRL in reply to nellie237]

Thank u. You’re so sweet 🥰

[radd]

NIKEGIRL,

So is it the PTU that's elevating liver enzymes? I am largely unfamiliar with hyperthyroidism but didn't think you needed the extra T4 because of possible elevated conversion issues.

Anyway, keep us updated on your results & decisions as there will be others who are familiar with your situation, and best wishes with possibly having to make a very difficult decision.

[NIKEGIRL in reply to radd]

Hi yes PTU is more than likely the cause. It is known to cause liver issues. Like u said just have to wait and see

[NIKEGIRL in reply to radd]

Hi. Thanks for your reply and thoughtfulness. I have been unwell again today and my stomach is now starting to hurt. I did the blood test but I lost the actual blood request form and the gp did not electronically send it through so I haven’t got my creatinine and electrolytes done but hopefully the request will be there tomorrow. My thyroid and liver are already pre loaded in the computer so luckily I got those tested

[Hidden]

Don't forget that LOADS of people do fine on levo. I appreciate it's different after a thyroidectomy or RAI, but that doesn't automatically mean you wouldn't do well on Levo.

(Levo suits me; I just hang around the forum because it's a nice one and I like learning. )

[NIKEGIRL in reply to Hidden]

Yes that is very true. I’m not a risk taker in anyway so this is scarey

[Hidden in reply to NIKEGIRL]

Of course. I think it would be scary even if you were a risk taker!

I just wanted to maybe offer the other side of the coin.

I am hypo so I can't offer anything other than that I'm afraid.

I wish you the best of luck; and hope that your Dr/endo is at least amenable to compromise, if there is a compromise to be struck.

🍀

[NIKEGIRL in reply to Hidden]

Hi. I don’t know what is going to happen. I feel sicker today than yesterday. I was stupid yesterday. I had two bags of prescriptions and didn’t check inside the bag when I tipped out the drugs and inside the bag was my blood test form which I didn’t see and burnt it in the log burning fire. I haven’t been able to get my creatinine and electrolytes done but did get liver and thyroid done as they are pre loaded. I will have to try tomorrow and wait another day for results. Not ideal.

[NIKEGIRL in reply to Hidden]

Thank you. My endocrinologist left and has gone onto hospital rounds. I don’t like the other endos. Too harsh with their words and authoritarian. I have trauma from our hospital system and local hospital. Thank u. I hope u won’t be scared and find some strength. Thank u for your kind thoughts and words