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My PMR and GCA story so far...
I've had GCA twice so far, and I think I'm going down with it again at present. I've had PMR since October 2009, when I began to get a constant and increasingly painful backache after having a very bad case of the flu. The backache soon spread to my shoulders and by the end of 2009, I had to use a
I've had GCA twice so far, and I think I'm going down with it again at present. I've had PMR since October 2009, when I began to get a constant and increasingly painful backache after having a very bad case of the flu. The backache soon spread to my shoulders and by the end of 2009, I had to use a
MiniSpec
in
PMRGCAuk
2 years ago
Feedback on private Blood tests please, before my Endo appt..
I posted earlier this month asking for advice before I see my Endo at the end of November. I've not been feeling too great and my Endo put me on Hrt as my levels were all in range and he thinks my symptoms are perimenopausal rather than thyroid. (graves/Rai Oct 21) I feel it's a mixture of both. Hrt
I posted earlier this month asking for advice before I see my Endo at the end of November. I've not been feeling too great and my Endo put me on Hrt as my levels were all in range and he thinks my symptoms are perimenopausal rather than thyroid. (graves/Rai Oct 21) I feel it's a mixture of both. Hrt
JUUJOO
in
Thyroid UK
2 years ago
help managing palpitations
I have had to stop taking Carbimazole because I am going to have radio active iodine in 7 days. I have been told to ‘manage’ my palpitations by taking propranolol. I had previously stopped taking it because my thyroid levels were down to normal (on Carbimazole) and I had no heart symptoms. But since
I have had to stop taking Carbimazole because I am going to have radio active iodine in 7 days. I have been told to ‘manage’ my palpitations by taking propranolol. I had previously stopped taking it because my thyroid levels were down to normal (on Carbimazole) and I had no heart symptoms. But since
Buzzy3
in
Graves Disease Support
2 years ago
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Toxic poppy seeds are sending people to hospital in Australia. A reminder that dietary supplements are considered as foods, not drugs
If you are using supplements to hopefully manage your CLL, here is an example of why what's natural can make you very ill and why you need to ensure that you obtain your supplements from a reputable source. Along with their use in foods and drinks, poppy seeds are the source of medically important chemicals
If you are using supplements to hopefully manage your CLL, here is an example of why what's natural can make you very ill and why you need to ensure that you obtain your supplements from a reputable source. Along with their use in foods and drinks, poppy seeds are the source of medically important chemicals
AussieNeil
Partner
in
CLL Support
2 years ago
To take or not to take...iodine?
I know this is a controversial subject, but would like to know if anyone with Hashimoto´s has taken iodine and noticed any benefits? The doctor who prescribed Erfa for me also prescribed Lugol´s iodine solution (12%). I have chosen not to take it as I have read so many times that it should be avoided
I know this is a controversial subject, but would like to know if anyone with Hashimoto´s has taken iodine and noticed any benefits? The doctor who prescribed Erfa for me also prescribed Lugol´s iodine solution (12%). I have chosen not to take it as I have read so many times that it should be avoided
Hidden
in
Thyroid UK
2 years ago
Gastrografin - Yes or No?
I am due a CT Colonography and have been given Gastrografin to take prior to this. On the bottle it says "If you have an allergy to iodine do not take Gastrografin". I have Hashimotos and have been taking 100mcg Levothyroxine for many years. Should I be taking this? Has anyone had experience of
I am due a CT Colonography and have been given Gastrografin to take prior to this. On the bottle it says "If you have an allergy to iodine do not take Gastrografin". I have Hashimotos and have been taking 100mcg Levothyroxine for many years. Should I be taking this? Has anyone had experience of
MarnieB
in
Thyroid UK
2 years ago
Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
NDT Question
hi there, You guys were great at helping out before. I was having problems with thyroid……again. With my parents help I was able to go to a private endocrinologist and obtain Erfa NDT. So three months ago I started on half a grain in the morning, half in the afternoon. Felt great. Then we did some blood
hi there, You guys were great at helping out before. I was having problems with thyroid……again. With my parents help I was able to go to a private endocrinologist and obtain Erfa NDT. So three months ago I started on half a grain in the morning, half in the afternoon. Felt great. Then we did some blood
Maelanro
in
Thyroid UK
2 years ago
helvella - Vade Mecum for Thyroid
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
[i]
helvella - Vade Mecum for Thyroid
[/i] [i]The term vade mecum means:[/i] [i]1. A referential book such as a handbook or manual.[/i] [i]2. A useful object, constantly carried on one’s person.[/i] [i]Please don't get put off by the number of pages![/i] [i]Nor by the fact it is targeted at
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Good site for vegan nutrition info and some supplements I take
https://veganhealth.org/daily-needs/ For a good B12 source would recommend the 3 natural form supplement here : https://www.sunday.de/en/vitamin-b12/. 500mcg per day is a good safe dosage. You cannot overdose on B12 and although 500mcg seems like a lot, only an estimated 6-7mcg are absorbed of this
https://veganhealth.org/daily-needs/ For a good B12 source would recommend the 3 natural form supplement here : https://www.sunday.de/en/vitamin-b12/. 500mcg per day is a good safe dosage. You cannot overdose on B12 and although 500mcg seems like a lot, only an estimated 6-7mcg are absorbed of this
Technoid
in
Vegan Foods for Life
2 years ago
Can gabapentin intensify RLS?
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
I’ve been phasing on to gabapentin since the summer whilst I came off ropinerole (been off ropinerole for 2 months). My gabapentin dose has been at 1800mg for 3 weeks (2pm, 5pm & 8pm on Doc’s suggestion) and during the night I invariably am awake for 2-4 hours with the most intense RLS, worse than before
Indigirl99
in
Restless Legs Syndrome
2 years ago
Fed up
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Just came back from physiotherapy appointment. Spinal scan clear which is brill. Bloods, high markers being discussed with rheumatologist. Very low vitamin D and folic acid gp being advised to make prescription. After 6 years of random investigation we are back at fibromyalgia, discussion about management
Coffeemum
in
Fibromyalgia Action UK
2 years ago
Night time Codeine.
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
Hi - I have been been on prescription 2x30mg Codeine Phosphate for about 18 months (for my RLS). They now do not work as efficiently as when I first started but I absolutely do not want to increase my dose. In fact, I would like to reduce down to 30mg a night. My tablets are so tiny, that it is impossible
coconutty5
in
Restless Legs Syndrome
2 years ago
If Putin uses nuclear weapons, how can we treat radiation poisoning?
[i]
A geiger counter measures a radiation level at a site of fire burning in the exclusion zone around the Chernobyl nuclear power plant, outside the village of Rahivka.
[/i] [i]
(photo credit: YAROSLAV YEMELIANENKO/REUTERS)
[/i] A Haifa company named Pluristem has been researching ARS
[i]
A geiger counter measures a radiation level at a site of fire burning in the exclusion zone around the Chernobyl nuclear power plant, outside the village of Rahivka.
[/i] [i]
(photo credit: YAROSLAV YEMELIANENKO/REUTERS)
[/i] A Haifa company named Pluristem has been researching ARS
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Post op catheter and bowel movement
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
I had laparoscopy 5 days ago for excision of endometriosis from the pouch of Douglas and right uterosacral ligament. Unfortunately I was in a lot of pain post op and struggled to get out of the bed alone and ended up with 2L urine retention and went home (after a failed attempt without a catheter) 3
Saffie123
in
Endometriosis UK
2 years ago
new to lupus and diagnosis: pain and what to do!
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
Hello, I have been diagnosed with lupus from a skin rash I get with the sun. However I am currently waiting for a Rheumatology appointment as I have chronic pain in lumbar spin, SI joint, and cervical pain. I am currently in a massive flare and I can’t find comfort. Walking gentle is ok, sitting is agony
M0wnt
in
LUPUS UK
2 years ago
Atrophied Kidney
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hi there I had a CT scan of my lower back as I keep getting sharp back pain that is relieved after a bowel movement. No sign of kidney stones I have small scared kidneys and life time uti's (age 49) It says my left kidney is Atrophied. My doctor had said that my kidney function of 66 is fine
Hidden
in
Kidney Disease
2 years ago
Chemo side effects and opioid intolerance
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Demelzatheseagull
in
My Ovacome
2 years ago
OFF TOPIC:,20 year old daughter in acute psychiatric clinic today due to increasing intrusive and suicidal thoughts.
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Dear all, just needing a listening ear today, hope that’s ok with all you lovely and helpful people on this forum. We are understandably very upset today as our 20 year old daughter has voluntarily entered a psychiatric clinic today on the advice of her psychiatrist, due to increasing intrusive and
Swissgirl
in
Thyroid UK
2 years ago
Constantly high white blood cells and raised CRP
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
hi everyone, please could someone help me with this question, I have for the past year have had raised white blood cell count ranging from 11-19 cut off labs are 4.5-10 also raised CRP 18-25 cut off lab 0-9, They now never come down to the normal range and I’m feeling pretty poorly constantly, I have
Steph0077
in
Pernicious Anaemia Society
2 years ago
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