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Checking medication
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
Hi, I was chatting to a colleague today about their restless legs which have been unbearable lately. Their doctor put them on Perindopril for high blood pressure, Amiodipine- a calcium channel blocker, and Fenofibrate for high cholesterol. He thought they made his legs so much worse (his doctor doesn't
restlessstoz
in
Restless Legs Syndrome
2 months ago
How to manage neuropathy?
Hi, I recently had my toes amputated on my left foot, well last February, the pain comes and goes, it is currently very bad hard to describe it but i am getting a burning stinging pain, heaviness, the pain is radiating up my lower leg, I am also getting a lot of spasms in base of foot. I am taking 600
Hi, I recently had my toes amputated on my left foot, well last February, the pain comes and goes, it is currently very bad hard to describe it but i am getting a burning stinging pain, heaviness, the pain is radiating up my lower leg, I am also getting a lot of spasms in base of foot. I am taking 600
salamander160
in
Neuropathy Support
3 months ago
Mother in pain
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
WreckemTech
in
Osteoporosis Support
3 months ago
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Codeine
is codeine safe to take for bone/muscle/joint pain with PBC?
is codeine safe to take for bone/muscle/joint pain with PBC?
Gaspereaux
in
British Liver Trust
3 months ago
Gabapentin success
I've had RLS for over 35 years getting worse as I get older. I'm now 74. I did well on mirapexin 0.09mgs for years. Then it made my RLS worse and it moved to my arms . I came off it with the help of tramadol 50mgs. I started alternating mirapexin and tram ,it wasn't perfect but better than nothing, Then
I've had RLS for over 35 years getting worse as I get older. I'm now 74. I did well on mirapexin 0.09mgs for years. Then it made my RLS worse and it moved to my arms . I came off it with the help of tramadol 50mgs. I started alternating mirapexin and tram ,it wasn't perfect but better than nothing, Then
Coeso
in
Restless Legs Syndrome
3 months ago
GCA and Earache
GCA and earache Hello you lovely people! Having been off pred for PMR since July 2023, after a near perfect tapering program since January 2022, according to NHS guidelines, I thought I would not be needing to post in this forum again. However, I did keep my membership going just in case! And the
GCA and earache Hello you lovely people! Having been off pred for PMR since July 2023, after a near perfect tapering program since January 2022, according to NHS guidelines, I thought I would not be needing to post in this forum again. However, I did keep my membership going just in case! And the
kalgoorlie
in
PMRGCAuk
3 months ago
Quick pre-MRI constipation question!!!
OK so finally getting an MRI this week to check for adeno/endo, should get a date for my lap after 🤞, my question is about preparing for the MRI...I take codeine for pelvic pain which makes me constipated, they say don't eat for 4 hours before mri and they may need to give you meds to still the bowel
OK so finally getting an MRI this week to check for adeno/endo, should get a date for my lap after 🤞, my question is about preparing for the MRI...I take codeine for pelvic pain which makes me constipated, they say don't eat for 4 hours before mri and they may need to give you meds to still the bowel
PAPanda
in
Endometriosis UK
3 months ago
is this a sign my meds are struggling or just how it is now?
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Sorry for the long message but would appreciate knowing if this is typical or if I am being a little dramatic and unrealistic. diagnosed with RA nearly 2 years ago. Took a while but pretty much back to normal after moving to injecting 20mg MTX, 200g hydroxy and folic acid 6 days a week. Took just over
Newbie73
in
NRAS
3 months ago
Pleurisy
I have been taking antibiotics and codeine for a painful flare up on my left side. Hospital said pleurisy inflammation. The last few days some painful itchy spots have appeared on the left shoulder blade area that are raised red and uncomfortable, unsure if medication penicillin /codeine rash or dermatitis
I have been taking antibiotics and codeine for a painful flare up on my left side. Hospital said pleurisy inflammation. The last few days some painful itchy spots have appeared on the left shoulder blade area that are raised red and uncomfortable, unsure if medication penicillin /codeine rash or dermatitis
B0xermad
in
Lung Conditions Community Forum
3 months ago
RLS - tapering off Pramipexole & using codeine
Hi all, firstly am so grateful I found this forum. I have learnt so much and feeling hopeful so thanks for all the insights and advice. After reading about all the warnings of augmentation and seeing the reduced effectiveness of pramipexole after taking it for 10+ years, I am now coming off it. Down
Hi all, firstly am so grateful I found this forum. I have learnt so much and feeling hopeful so thanks for all the insights and advice. After reading about all the warnings of augmentation and seeing the reduced effectiveness of pramipexole after taking it for 10+ years, I am now coming off it. Down
tarrynws
in
Restless Legs Syndrome
3 months ago
is Aspirin safe to use with liver disease
Hi Guys Not posted for a while I was just wondering if it safe to Aspirin my husband as NAFLD and is suffering with constant headaches he’s been prescribed paracetamol but they don’t seem to be helping so the GP gave him codeine which just made him sick. Any advice if anyone been prescribed aspirin?
Hi Guys Not posted for a while I was just wondering if it safe to Aspirin my husband as NAFLD and is suffering with constant headaches he’s been prescribed paracetamol but they don’t seem to be helping so the GP gave him codeine which just made him sick. Any advice if anyone been prescribed aspirin?
Dobielove
in
British Liver Trust
3 months ago
is this sub clinical or hypo
the above are my daughter’s result. Usual protocols for testing followed. She’s unmedicated, 24 yrs old. She does take Propanalol for anxiety. Symptoms are constipation, fatigue, hair loss, outer third of brows have disappeared, headaches. I appreciate there’s no B12 vit D or ferritin results. It was
the above are my daughter’s result. Usual protocols for testing followed. She’s unmedicated, 24 yrs old. She does take Propanalol for anxiety. Symptoms are constipation, fatigue, hair loss, outer third of brows have disappeared, headaches. I appreciate there’s no B12 vit D or ferritin results. It was
Daisywhoopsa
in
Thyroid UK
6 months ago
Advice
Hi 👋 I was diagnosed with fibromyalgia in 2021........I have been convinced that maybe it isn't fibo, but speaking to a top doctor (whilst in hospital for an unrelated matter) he asked why I'd came to this conclusion.........I said because although I'm in pain when I do not take my codeine I'm not
Hi 👋 I was diagnosed with fibromyalgia in 2021........I have been convinced that maybe it isn't fibo, but speaking to a top doctor (whilst in hospital for an unrelated matter) he asked why I'd came to this conclusion.........I said because although I'm in pain when I do not take my codeine I'm not
Roastd
in
Fibro Friends WSM
3 months ago
Success (I hope) with Gabapentin
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
I have had RLS for more years than I can remember. For years I took mirapexin till I augmented. I tried Pregabalin but I felt dizzy all the time and I put on a lot of weight quickly. I started tramadol and then alternated between that and mirapexin ( yes I went back on it). I coped like this for a long
Coeso
in
Restless Legs Syndrome
3 months ago
Poor communication or misunderstanding?
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
So... I saw my NHS Consultant on Monday about my leg pain and inability to walk when flaring and we discussed my surgery etc and I left the appointment feeling pretty deflated. Long story short she's told me I have to go on the progesterone only pill while I wait for my 1st Lap (hopefully less than 6
endo_the_stigma
in
Endometriosis UK
3 months ago
Opioids
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
Have been following posts, have studied Mayo Clinic, been back to rlshelp.org Have read Dr Earlys research , follow several Rls groups . I have done the DAs (unfortunately) The side effects of Gabapentin and Pregabalin far out way the benefits. Iron is good, I get infusions as needed. I use Magnesium
RLSdaily
in
Restless Legs Syndrome
3 months ago
Should I apply sick day rules following a foot operation?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
I had an operation yesterday to remove osteophyte ring from around my big toe. I’m home now and it’s very painful despite taking the codeine 30mg they prescribed. My PMR is no different and I’m on 6mg prednisolone but am I supposed to apply sick day rules or do I only do that if PMR gets worse?
Mfaepink1973
in
PMRGCAuk
3 months ago
Stress - I ignored the obvious ...
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
I should know this by now after nearly 4 years of PMR. I am normally reasonably OK at dealing with stress, but there is a limit. Now I know all too well that PMR flares are indeed one of the ugly lovechilds of major stress. I am 68 but still working. One of my sidelines suffered terribly in Covid
Predderman2020
in
PMRGCAuk
3 months ago
Oxycodone - the way forward or a dead end?
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
I have only posted here briefly once but I have been following this great forum for some time. My story is very familiar. Have had RLS for 14 years, was prescribed all the available RLS medication: Ropinirole, Pramipexole (both miraculous at the beginning) Neupro patch ( never tolerated it), Gabapentin
etchea33
in
Restless Legs Syndrome
3 months ago
Drs. Susan O'Brien and Catherine Wu Presented the Binet-Rai Medal at 20th International Workshop on Chronic Lymphocytic Leukemia
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Two doctors who have spent many many hours helping the CLL community.
I FEEL SURE THAT WE ALL EXPRESS OUR MANY THANKS.
THIS IS AN AWARD THAT IS WELL DESERVED.
During this past weekend's 20th biennial International Workshop on Chronic Lymphocytic Leukemia (iwCLL), Susan M
Kwenda
in
CLL Support
7 months ago
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