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Buccastem M
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Allergies
Dear all, I was diagnosed with CLL in January 2018. It was quite shocking as no one in my immediate family is known to have cancer(s). Autoimmune issues are prevalent, but not cancer. In any case, I am in W&W with CLL. I recently had my second round of tests since diagnosis and my numbers all numbers
Dear all, I was diagnosed with CLL in January 2018. It was quite shocking as no one in my immediate family is known to have cancer(s). Autoimmune issues are prevalent, but not cancer. In any case, I am in W&W with CLL. I recently had my second round of tests since diagnosis and my numbers all numbers
MP2018
in
CLL Support
6 years ago
Protocol progress
I want to share what may seem like a small victory, but this is huge to me. Before starting this detox and protocol, my blood pressure was 80. Today it was at 110! 🙌Can you tell I’m excited??!! I started the protocol 6 days ago and it has been anything but fun but it so nice to see that admist the
I want to share what may seem like a small victory, but this is huge to me. Before starting this detox and protocol, my blood pressure was 80. Today it was at 110! 🙌Can you tell I’m excited??!! I started the protocol 6 days ago and it has been anything but fun but it so nice to see that admist the
JennaShi
in
Thyroid UK
6 years ago
Myelin Associated Glycoprotein (MAG) Antibody
Hello all, I have been on W&W for 8 years now, and my Dr. says that my CLL has been "indolent" in that my labs have been generally abnormal but stable. On my last 3-month follow-up, I mentioned to my Dr, that I have been experiencing increasing Peripheral Neuropathy for some time, and he recommended
Hello all, I have been on W&W for 8 years now, and my Dr. says that my CLL has been "indolent" in that my labs have been generally abnormal but stable. On my last 3-month follow-up, I mentioned to my Dr, that I have been experiencing increasing Peripheral Neuropathy for some time, and he recommended
LenfromSoCal
in
CLL Support
6 years ago
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Which blood tests to pay privately for?
I am about to go for another blood test, since the lab refused T3 test last time, I intend to pay privately for this, but I need to know which to ask for. GP can do TSH and T4, but wondering which private test to go for, my choices are: T3 Or FreeT3 Or do I need to spend more money and get all
I am about to go for another blood test, since the lab refused T3 test last time, I intend to pay privately for this, but I need to know which to ask for. GP can do TSH and T4, but wondering which private test to go for, my choices are: T3 Or FreeT3 Or do I need to spend more money and get all
autowhen
in
Thyroid UK
6 years ago
Which blood tests to pay privately for?
I am about to go for another blood test, since the lab refused T3 test last time, I intend to pay privately for this, but I need to know which to ask for. GP can do TSH and T4, but wondering which private test to go for, my choices are: T3 Or FreeT3 Or do I need to spend more money and get all
I am about to go for another blood test, since the lab refused T3 test last time, I intend to pay privately for this, but I need to know which to ask for. GP can do TSH and T4, but wondering which private test to go for, my choices are: T3 Or FreeT3 Or do I need to spend more money and get all
autowhen
in
Thyroid UK
6 years ago
abnormal white blood count
I have been told that I have sero negative inflammatory arthritis. My previous MD advised that even though my Sed rate and CRP are normal, that the diagnosis is supported by exam findings and my symptoms. The abnormal findings are that my monocytes are elevated at 15, neutrophils are low at 45 (which
I have been told that I have sero negative inflammatory arthritis. My previous MD advised that even though my Sed rate and CRP are normal, that the diagnosis is supported by exam findings and my symptoms. The abnormal findings are that my monocytes are elevated at 15, neutrophils are low at 45 (which
suetg3
in
NRAS
6 years ago
Immunoglobulin Panel Results
My dermatologist ran some more test and these were the results. No one has said anything to me so, I am guessing that labs are okay. Surfing the web will have you thinking all kind of things could be wrong. So, I was wondering if I should be seeing a hematologist or someone similar.... KAPPA QNT: 380mg
My dermatologist ran some more test and these were the results. No one has said anything to me so, I am guessing that labs are okay. Surfing the web will have you thinking all kind of things could be wrong. So, I was wondering if I should be seeing a hematologist or someone similar.... KAPPA QNT: 380mg
MNJones76
in
Non Hodgkin's Lymphoma Friends
6 years ago
48 months after last FCR Treatment!
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
For almost four years I finished my 6th cycle of FCR. Afterwards my blood showed MRD neg. my blood counts improved rapidly after treatment and all the years my counts were excellent. My condition and health feeling was great, sometimes better than before treatment. Doing much gym and walking in fresh
seoul
in
CLL Support
6 years ago
underactive thyroid treatment
Hi, I am taking Nature Throid for nearly 1 year but still do not feel my old myself. These are my recent test results: Serum free T4 level 11.5 pmol/L 9.5 - 22pmol/L Serum TSH level 1.8 mU/L 0.1 - 4mU/L I am taking 2 grams. My TSH is fine, but my free T4 level seems to be
Hi, I am taking Nature Throid for nearly 1 year but still do not feel my old myself. These are my recent test results: Serum free T4 level 11.5 pmol/L 9.5 - 22pmol/L Serum TSH level 1.8 mU/L 0.1 - 4mU/L I am taking 2 grams. My TSH is fine, but my free T4 level seems to be
Ania22
in
Thyroid UK
6 years ago
Ibrutinib Withdrawl Symptoms?
My husband has WM and finished a 6 month course of bendeka/rituxin in November. His IgM was down to 515 and was put on Ibrutinib 2 capsules a day for 1 week, the upped to 3, with a final goal of 4 per day. He did ok on 2 pills but 3 pills gave him horrible diarrhea, constipation and agitated his diverticulosis
My husband has WM and finished a 6 month course of bendeka/rituxin in November. His IgM was down to 515 and was put on Ibrutinib 2 capsules a day for 1 week, the upped to 3, with a final goal of 4 per day. He did ok on 2 pills but 3 pills gave him horrible diarrhea, constipation and agitated his diverticulosis
Hidden
in
CLL Support
6 years ago
Igg
I have high Igm blood test. Anybody experience this?
I have high Igm blood test. Anybody experience this?
KevinHall10_
in
PBC Foundation
6 years ago
Epratuzumab efficacious in patients with SLE-associated Sjögren's syndrome
Gottenberg JE, et al. Arthritis Rheumatol. 2018;doi:10.1002/art.40425.
February 13, 2018 Epratuzumab improved systemic lupus erythematosus disease activity among patients with associated Sjögren's syndrome, an effect not seen among patients without an associated diagnosis of Sjögren's syndrome
Gottenberg JE, et al. Arthritis Rheumatol. 2018;doi:10.1002/art.40425.
February 13, 2018 Epratuzumab improved systemic lupus erythematosus disease activity among patients with associated Sjögren's syndrome, an effect not seen among patients without an associated diagnosis of Sjögren's syndrome
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Multiple autoimmune conditions. Lupus too?
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
Where to start!I've been quite poorly with scleroderma, and I also have PBC, Sjogrens, and hypothyroidism. I have osteoarthritis and hyper flexibility joint syndrome. I am ACA pos, AMA pos, Igm pos, gastric parietal cell antibody positive, and I have just found out that I'm anti ro pos, and anti sm pos
MissusTee
in
LUPUS UK
6 years ago
New diagnosis of Probable SLE
I just joined this forum after a recent rheumatology appointment at a major university hospital in Washington, DC, where I met with a great rheumatologist after seeing other doctors with no success. He gave my diagnosis on a scale, saying that his speciality describes lupus using a spectrum kind of thing
I just joined this forum after a recent rheumatology appointment at a major university hospital in Washington, DC, where I met with a great rheumatologist after seeing other doctors with no success. He gave my diagnosis on a scale, saying that his speciality describes lupus using a spectrum kind of thing
keelinrose
in
LUPUS UK
6 years ago
🔎 Lung Clinic
Well seen my lung doctor 👩‍⚕️ and the decided the going to stop ✋ my maintenance antibiotic’s as they don’t believe you can suffer as many infections as I have. I.e new infection every 3 to 4 weeks. Well I told them septic events can happen quicker than I can make appointments to see them. But what
Well seen my lung doctor 👩‍⚕️ and the decided the going to stop ✋ my maintenance antibiotic’s as they don’t believe you can suffer as many infections as I have. I.e new infection every 3 to 4 weeks. Well I told them septic events can happen quicker than I can make appointments to see them. But what
Hidden
in
Lung Conditions Community Forum
6 years ago
Hasminoto's, GERD, and Lupus
I was diagnosed last week with Hashimoto's, and it was completely unexpected. I had ultrasounds done, by my rheumatologist's request, and the doctor who performed the ultrasounds told me I had Hashimoto's. He told me to speak with my rheumatologist and will most likely have more blood work done, and
I was diagnosed last week with Hashimoto's, and it was completely unexpected. I had ultrasounds done, by my rheumatologist's request, and the doctor who performed the ultrasounds told me I had Hashimoto's. He told me to speak with my rheumatologist and will most likely have more blood work done, and
Golobolbol
in
Thyroid UK
7 years ago
Igm levels
I read that almost everyone diagnosed with PBC has an elevated Igm level. I am curious to know if that is true? I have elevated ALP and 24.3 on an AMA - M2, but actually have an Igm level in the 60’s which is the very low end of the reference range.
I read that almost everyone diagnosed with PBC has an elevated Igm level. I am curious to know if that is true? I have elevated ALP and 24.3 on an AMA - M2, but actually have an Igm level in the 60’s which is the very low end of the reference range.
Dwaffle16
in
PBC Foundation
7 years ago
Equivocal AMA
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
I have chronic severe daily nausea with many other chronic issues such as burning urination. I am in so much pain on a regular basis that I am unable to participate in normal life activities. My Aunt was recently diagnosed with PBC which got me wondering about myself. I am only 24 and have had an elevated
Dwaffle16
in
PBC Foundation
7 years ago
where do I go from here, help from the experts please.
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
I have had advice from this forum which has really helped and I am greatly appreciated of that, but, things for me are not getting any better, in fact I feel I am back to square one again and I've just had enough of feeling like this and desperately need further advice. My neck has began to get stiff
Peanut31
in
Thyroid UK
7 years ago
Ukrainian led research into thyroid
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
http://www.resonantfm.com/laser-treatment-of-hypothyroidism-part-ii/ The human data on red and near infrared light treatment of hypothyroidism mostly falls into two categories. The low power output non-pulsed series of studies which I have discussed here and the pulsed studies with much higher peak
marsaday
in
Thyroid UK
7 years ago
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