Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,944 public posts
Filter results
Help please anyone
I have for 9 months now been suffering with post nasal drip vertigo and vision issues has anyone had this and can any one pls advice best course of action ent said I need turbinate surgery nasal surgery and sinuses to be unblocked but what can I do whilst I wait for surgery mirgraines to
I have for 9 months now been suffering with post nasal drip vertigo and vision issues has anyone had this and can any one pls advice best course of action ent said I need turbinate surgery nasal surgery and sinuses to be unblocked but what can I do whilst I wait for surgery mirgraines to
Claire2985
in
Pain Concern
4 years ago
Any DBS prep advice?
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
pdkid
in
Cure Parkinson's
4 years ago
Parkinsons, DBS and Thyroid
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Lr_defender
in
Thyroid UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Viral meningitis do's & dont's
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
Sounsure
in
Meningitis Now
4 years ago
Back again with another question about spouse's DBS results
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
dhill
in
Cure Parkinson's
4 years ago
Deep Brain Stimulation for PSP ??
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
Adamxd
in
PSP Association
4 years ago
Herbal Alternative of doxycycline (Quinine and knotweed)
The in vitro tests suggested that extracts from seven different plants were more effective against the Lyme disease bacteria than doxycycline and cefuroxime. The plants in question were black walnut (Juglans nigra), cat’s claw (Uncaria tomentosa), sweet wormwood (Artemisia annua), Mediterranean rockrose
The in vitro tests suggested that extracts from seven different plants were more effective against the Lyme disease bacteria than doxycycline and cefuroxime. The plants in question were black walnut (Juglans nigra), cat’s claw (Uncaria tomentosa), sweet wormwood (Artemisia annua), Mediterranean rockrose
Farooqji
in
Cure Parkinson's
4 years ago
Dr. Jeff Elias of U of Virginia Responds to Email Regarding Pallidothalamic Tractotomy
In my ongoing quest to bring attention to PTT in the United States, I emailed Dr. Jeff Elias, a prominent neurosurgeon at the University of Virginia, who already performs other types of focused ultrasound procedures. Here is our email exchange. It's in reverse order so it begins with my response and
In my ongoing quest to bring attention to PTT in the United States, I emailed Dr. Jeff Elias, a prominent neurosurgeon at the University of Virginia, who already performs other types of focused ultrasound procedures. Here is our email exchange. It's in reverse order so it begins with my response and
jimcaster
in
Cure Parkinson's
4 years ago
Shingles and PMR
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
ian1951
in
PMRGCAuk
4 years ago
my husband has been given a discharge date and i am feeling a bit terrified
My husband suffered a massive stroke after surgery for an aneurysm in May and has been in specialist neuro rehab for 6 weeks. We recently had a patient review meeting via zoom and a discharge date in January is being worked towards. I dearly would love him home but am terrified at the prospect too, he
My husband suffered a massive stroke after surgery for an aneurysm in May and has been in specialist neuro rehab for 6 weeks. We recently had a patient review meeting via zoom and a discharge date in January is being worked towards. I dearly would love him home but am terrified at the prospect too, he
pozza40
in
Headway
4 years ago
Fatigue and brain tumours
3 in 5 people we spoke to felt fatigued due to their brain tumour diagnosis. To help you, we've put together extensive information about fatigue, from what is it and its symptoms to its causes and how to cope with it, including tips from our community, people who truly understand what you're going
3 in 5 people we spoke to felt fatigued due to their brain tumour diagnosis. To help you, we've put together extensive information about fatigue, from what is it and its symptoms to its causes and how to cope with it, including tips from our community, people who truly understand what you're going
Jane_TBTC
Volunteer
in
Acoustic Neuroma Support
4 years ago
how to speak to your GP about very low TSH
hi, I have Lyme disease and Hashimoto's and I'm currently taking combination T3 and T4 therapy ( after reading that this can be a game-changer for people who are chronically ill with Lyme and struggling to get better) my previous TSH was 0.32, my T3 was just outside the top third of the normal range
hi, I have Lyme disease and Hashimoto's and I'm currently taking combination T3 and T4 therapy ( after reading that this can be a game-changer for people who are chronically ill with Lyme and struggling to get better) my previous TSH was 0.32, my T3 was just outside the top third of the normal range
garz
in
Thyroid UK
4 years ago
Medtronic DBS battery change: opportunity for improved therapy?
Coming in 2021 for me is a Medtronic DBS battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Coming in 2021 for me is a Medtronic DBS battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Gobbsofjoy
in
Cure Parkinson's
4 years ago
ARE YOU NON TREMOR DOMINANT PD PATIENT? DID YOUGET DBS? IF YES, PLEASE SHARE YOUR EXPERIENCE.
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
OREOLU
in
Cure Parkinson's
4 years ago
Job with MSA Patients
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
RhiMallorca
in
Multiple System Atrophy Trust
4 years ago
DBS PLUS MUKUNA P, OR DBS PLUS C/L, OR DBS PLUS HDT PLUS MUKUNA P, OR DBS PLUS MUKUNA PLUS C/L PLUS HDT, DBS PLUS HDT PLUS C/L.
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
OREOLU
in
Cure Parkinson's
4 years ago
Shingles - part 3
After much googling, I can see that this is indeed shingles even though I only have 5 spots. The GP was actually quite panicky, he told me to come down immediately and pick up Aciclovir, he said that 5 spots is probably just the start and it must be nipped in the bud and worse still I am to stop taking
After much googling, I can see that this is indeed shingles even though I only have 5 spots. The GP was actually quite panicky, he told me to come down immediately and pick up Aciclovir, he said that 5 spots is probably just the start and it must be nipped in the bud and worse still I am to stop taking
Brychni
in
NRAS
4 years ago
December 11, 2020, MRg FUS PTT & me, 9 month(s) (ago today) report.
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
MBAnderson
in
Cure Parkinson's
4 years ago
Tremor
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
Hidden
in
Cure Parkinson's
4 years ago
DBS Albuquerque
Looking into getting DBS'd by a surgeon in New Mexico
Looking into getting DBS'd by a surgeon in New Mexico
Hidden
in
Cure Parkinson's
4 years ago
1
...
21
22
23
...
98
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
797 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest