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Brain arteriovenous malformation (AVM)
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Shingles Vaccination
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
Ashburnmam
in
MPN Voice
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
Kingdomcome
in
Cure Parkinson's
4 years ago
Anyone want to be my Pulsatile Tinnitus buddy . feel so alone in this.
Hi guys ,my name is lyn ,im 61 and have undiagnosed PT for around 6 weeks now. I know its pulsatile because it is in time and rhythm with my heart beat , its in my left ear only . My doctor sent me for a MRI of my ears and brain stem to rule out an acoustic neuroma which is a type of brain tumour
Hi guys ,my name is lyn ,im 61 and have undiagnosed PT for around 6 weeks now. I know its pulsatile because it is in time and rhythm with my heart beat , its in my left ear only . My doctor sent me for a MRI of my ears and brain stem to rule out an acoustic neuroma which is a type of brain tumour
lynstone60
in
Anxiety Support
4 years ago
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Why don't Doctors recognise the chronic after effects of Meningitis?
Hi Everyone. So I'm sat watching the news and they are talking about the effects of 'Long Covid'. Doctors are actually recognising the chronic symptoms patients are experiencing and planning how to improve their care. Covid has been around how long? How about Doctors listening to the Chronic symptoms
Hi Everyone. So I'm sat watching the news and they are talking about the effects of 'Long Covid'. Doctors are actually recognising the chronic symptoms patients are experiencing and planning how to improve their care. Covid has been around how long? How about Doctors listening to the Chronic symptoms
Emerald8888
in
Meningitis Now
4 years ago
Dried blood spot sampling offers an inexpensive way to widen access to antibody testing for COVID-19.
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
2greys
in
Lung Conditions Community Forum
4 years ago
Study examines the potential of spinal cord stimulation
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
Abdiqani
in
Cure Parkinson's
4 years ago
Spinal Cord Stimulation Alleviates Parkinson’s Pain in Small Study
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
JayPwP
in
Cure Parkinson's
4 years ago
Confused!
Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later others attributed it to Cerebellar Ataxia having seen MRI, CT etc. Recently discovered an enlarged Thymus which is often associated with Mayasthenia G. Wonder if I have both!! Any information?
Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later others attributed it to Cerebellar Ataxia having seen MRI, CT etc. Recently discovered an enlarged Thymus which is often associated with Mayasthenia G. Wonder if I have both!! Any information?
dennisataxia
in
Ataxia UK
4 years ago
Has anyone had meningitis more than once? How do you cope?
Hi, I was wondering if anyone has had meningitis more than once? I had meningococcal disease when I was 4 years old and lost most of my hearing in my left ear . I also had it when I was 9 years old due to having the vaccine, this form was viral meningitis but I was still hospitalised. I also lost my
Hi, I was wondering if anyone has had meningitis more than once? I had meningococcal disease when I was 4 years old and lost most of my hearing in my left ear . I also had it when I was 9 years old due to having the vaccine, this form was viral meningitis but I was still hospitalised. I also lost my
ahsatan89
in
Meningitis Now
4 years ago
Shingles Shot
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
CouldBworse
in
CLL Support
4 years ago
Melatonin For Parkinson's Disease (Pt. 2)
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
chartist
in
Cure Parkinson's
4 years ago
Our virtual pub took place today. I believe everybody enjoyed it. Next Sunday, 9/27, 2nd HU virtual gathering @ 5 PM London time.
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
MBAnderson
in
Cure Parkinson's
4 years ago
acoustic neuroma ?
Hi . I am having tinnitus in one ear only and my doc has referred me for a MRI scan to rule out acoustic neuroma. As you can probably understand my HA has now gone through the roof ,i cant eat i cant sleep and i am scared to death of having the MRI ,i have a wait of around 6 weeks before i even get the
Hi . I am having tinnitus in one ear only and my doc has referred me for a MRI scan to rule out acoustic neuroma. As you can probably understand my HA has now gone through the roof ,i cant eat i cant sleep and i am scared to death of having the MRI ,i have a wait of around 6 weeks before i even get the
lynstone60
in
Anxiety Support
4 years ago
Seeking Information
I have joined here today. I have Power of Atorney for my 41 year old son. He suffered a severe Brain bleed caused by a benign tumour He is now left with severe short term memory, plus other related Aquired Brain Injury problems. At 41 he is a very frustrated young man desperate to lead a happier life
I have joined here today. I have Power of Atorney for my 41 year old son. He suffered a severe Brain bleed caused by a benign tumour He is now left with severe short term memory, plus other related Aquired Brain Injury problems. At 41 he is a very frustrated young man desperate to lead a happier life
Saltness
in
Headway
4 years ago
DBS doesn't seem to work?
I had DBS surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of DBS? I don't know what to do. I feel
I had DBS surgery 2 month ago and had 2 programming sessions, but still far from feeling any better. I can say, My tremors and distonia on presurgery status, taking much more medication than before and still having bad days (mostly of them). Does it mean failure of DBS? I don't know what to do. I feel
koshca
in
Cure Parkinson's
4 years ago
Any studies on longterm effects of live shingles vaccine and PMR
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
I was wondering if anyone knows of any studies that have been done about those of us that contracted PMR after taking the live shingles vaccine. I wonder if PMR will last as long in our system as the shingles vaccine antibodies are active in our system? The pharmacist says the antibodies last 5+years
Linny3
in
PMRGCAuk
4 years ago
Medication and DBS
Hi all. My husband diagnosed with PD two years ago (almost). He refused to take any medication. It seems PD had some progress. I have a feeling he is now thinking about treatment or medication. He asked me how long usually takes to be on medication before going for DBS. (He is 44years old) Do you
Hi all. My husband diagnosed with PD two years ago (almost). He refused to take any medication. It seems PD had some progress. I have a feeling he is now thinking about treatment or medication. He asked me how long usually takes to be on medication before going for DBS. (He is 44years old) Do you
Parsa
in
Cure Parkinson's
4 years ago
Focused Ultrasound Therapy, FDA-approved for Essential Tremors
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Focused ultrasound is a completely non-invasive method of thalamotomy - a procedure in which a predefined small volume of brain tissue containing nerve cells causing the tremor is destroyed - that could be an effective option for certain patients. It is performed while the patient is awake and involves
Pa-zzi69
in
Cure Parkinson's
4 years ago
Shingles vaccine
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Hydrox
in
MPN Voice
4 years ago
Chemo side effects
Hello, I'm currently on cycle no. 7 (chemo and immunatherapy) for terminal stage 4 lung cancer with 5 more cycles to go and am finding the side effects following treatment are getting worse and it takes me longer to recover. I seem to spend more time feeling rough than anything and somedays I feel like
Hello, I'm currently on cycle no. 7 (chemo and immunatherapy) for terminal stage 4 lung cancer with 5 more cycles to go and am finding the side effects following treatment are getting worse and it takes me longer to recover. I seem to spend more time feeling rough than anything and somedays I feel like
Bailey19260
in
The Roy Castle Lung Cancer Foundation
4 years ago
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