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Brain arteriovenous malformation (AVM)
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DBS surgery complete, but no benefits found yet
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
dhill
in
Cure Parkinson's
4 years ago
Concerned
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
4 years ago
Seizure free post cranioplasty years later
Is it possible to be seizure free from brain surgery years later ? Has anyone been there ?
Is it possible to be seizure free from brain surgery years later ? Has anyone been there ?
Itsliifee
in
Headway
4 years ago
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45 mins conversation with dr. Jeanmonod regarding FUS
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
ion_ion
in
Cure Parkinson's
4 years ago
Levodopa or Dopamine Agonist after DBS in Parkinson's Disease? We finally have some evidence.
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Farooqji
in
Cure Parkinson's
4 years ago
experiences of progress in rehab
So my husband has arrived at a specialist rehab unit yesterday, I was allowed an hour with him today and the unit seems very nice,he has a nice room overlooking the gardens and it is very peaceful there compared to the hospital ward he has been in previously. He is 5 months post aneurysm surgery that
So my husband has arrived at a specialist rehab unit yesterday, I was allowed an hour with him today and the unit seems very nice,he has a nice room overlooking the gardens and it is very peaceful there compared to the hospital ward he has been in previously. He is 5 months post aneurysm surgery that
pozza40
in
Headway
4 years ago
Medical Merry -Go round. Now it's a Meningioma
I was just given the news that I have a rather large Meningeoma in my frontal lobe measuring 2.3 cm x 2.4 cm and naturally I am trying to keep my wits about me as I am just now recovering from a PE and just started on NOAC's (Blood thinners) which gave me a non stop headache and a subsequent MRI turned
I was just given the news that I have a rather large Meningeoma in my frontal lobe measuring 2.3 cm x 2.4 cm and naturally I am trying to keep my wits about me as I am just now recovering from a PE and just started on NOAC's (Blood thinners) which gave me a non stop headache and a subsequent MRI turned
RiderontheStorm
in
Brain health
4 years ago
Shingles Vaccination
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
Ashburnmam
in
MPN Voice
4 years ago
DBS — What questions to ask the DBS neurosurgeon?
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
I have an appointment with the DBS neurosurgeon next week for evaluation before the surgery, should I decide. I’ve already had the brain MRI and the Neuropsych evaluation. I’m 70 yrs old, female, 86 lbs, and diagnosed 6 1/2 yrs ago. I’m on C/L only, one tablet, 3 times daily. I’ve tried other meds
Kingdomcome
in
Cure Parkinson's
4 years ago
Anyone want to be my Pulsatile Tinnitus buddy . feel so alone in this.
Hi guys ,my name is lyn ,im 61 and have undiagnosed PT for around 6 weeks now. I know its pulsatile because it is in time and rhythm with my heart beat , its in my left ear only . My doctor sent me for a MRI of my ears and brain stem to rule out an acoustic neuroma which is a type of brain tumour
Hi guys ,my name is lyn ,im 61 and have undiagnosed PT for around 6 weeks now. I know its pulsatile because it is in time and rhythm with my heart beat , its in my left ear only . My doctor sent me for a MRI of my ears and brain stem to rule out an acoustic neuroma which is a type of brain tumour
lynstone60
in
Anxiety Support
4 years ago
Why don't Doctors recognise the chronic after effects of Meningitis?
Hi Everyone. So I'm sat watching the news and they are talking about the effects of 'Long Covid'. Doctors are actually recognising the chronic symptoms patients are experiencing and planning how to improve their care. Covid has been around how long? How about Doctors listening to the Chronic symptoms
Hi Everyone. So I'm sat watching the news and they are talking about the effects of 'Long Covid'. Doctors are actually recognising the chronic symptoms patients are experiencing and planning how to improve their care. Covid has been around how long? How about Doctors listening to the Chronic symptoms
Emerald8888
in
Meningitis Now
4 years ago
Dried blood spot sampling offers an inexpensive way to widen access to antibody testing for COVID-19.
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
Currently antibody testing for COVID-19 uses serum or plasma, which requires a full intravenous blood sample, collected by a trained phlebotomist. For population-wide or high volume testing, the use of such sampling is limited by logistic challenges, resources, and costs, as well as the risk of SARS-CoV
2greys
in
Lung Conditions Community Forum
4 years ago
Study examines the potential of spinal cord stimulation
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
A new study lays a new way of treating PD out " A new study finds that spinal cord stimulation could represent an alternate therapy for people with Parkinson’s disease that is resistant to conventional treatments. The researchers claim that this emerging technology may help decrease pain and improve
Abdiqani
in
Cure Parkinson's
4 years ago
Spinal Cord Stimulation Alleviates Parkinson’s Pain in Small Study
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
Spinal cord stimulation can effectively decrease pain, and also may help alleviate motor symptoms, in people with Parkinson’s disease (PD), regardless of whether patients have previously undergone deep brain stimulation, a small study suggests. https://parkinsonsnewstoday.com/2020/10/02/spinal-cord-stimulation-alleviates-parkinsons-pain-small-study-suggests
JayPwP
in
Cure Parkinson's
4 years ago
Has anyone had meningitis more than once? How do you cope?
Hi, I was wondering if anyone has had meningitis more than once? I had meningococcal disease when I was 4 years old and lost most of my hearing in my left ear . I also had it when I was 9 years old due to having the vaccine, this form was viral meningitis but I was still hospitalised. I also lost my
Hi, I was wondering if anyone has had meningitis more than once? I had meningococcal disease when I was 4 years old and lost most of my hearing in my left ear . I also had it when I was 9 years old due to having the vaccine, this form was viral meningitis but I was still hospitalised. I also lost my
ahsatan89
in
Meningitis Now
4 years ago
Confused!
Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later others attributed it to Cerebellar Ataxia having seen MRI, CT etc. Recently discovered an enlarged Thymus which is often associated with Mayasthenia G. Wonder if I have both!! Any information?
Originally one neurologist diagnosed my condition as Mayasthenia Gravis. Later others attributed it to Cerebellar Ataxia having seen MRI, CT etc. Recently discovered an enlarged Thymus which is often associated with Mayasthenia G. Wonder if I have both!! Any information?
dennisataxia
in
Ataxia UK
4 years ago
Shingles Shot
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
Is it safe to get the shingles shot if I have CLL? If yes, which one ?
CouldBworse
in
CLL Support
4 years ago
Melatonin For Parkinson's Disease (Pt. 2)
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
In case you missed part 1, here is a link to it : https://healthunlocked.com/parkinsonsmovement/posts/143507411/melatonin-for-parkinsons-disease....finally Melatonin is the only naturally occurring substance in the body that I have found that can help return the body toward homeostasis through multiple
chartist
in
Cure Parkinson's
4 years ago
Our virtual pub took place today. I believe everybody enjoyed it. Next Sunday, 9/27, 2nd HU virtual gathering @ 5 PM London time.
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
50+ people gave me their email addresses. 25 people plugged in. We got to introduce ourselves and put a face to the name. Zoom has 4 breakout rooms. In order to allow more substantive conversation, next week, I thought I would send the 1st ten who plug-in to one breakout room and the 2nd 10
MBAnderson
in
Cure Parkinson's
4 years ago
acoustic neuroma ?
Hi . I am having tinnitus in one ear only and my doc has referred me for a MRI scan to rule out acoustic neuroma. As you can probably understand my HA has now gone through the roof ,i cant eat i cant sleep and i am scared to death of having the MRI ,i have a wait of around 6 weeks before i even get the
Hi . I am having tinnitus in one ear only and my doc has referred me for a MRI scan to rule out acoustic neuroma. As you can probably understand my HA has now gone through the roof ,i cant eat i cant sleep and i am scared to death of having the MRI ,i have a wait of around 6 weeks before i even get the
lynstone60
in
Anxiety Support
4 years ago
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