Anyone want to be my Pulsatile Tinnitus b... - Anxiety Support

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Anyone want to be my Pulsatile Tinnitus buddy . feel so alone in this.

lynstone60 profile image
4 Replies

Hi guys ,my name is lyn ,im 61 and have undiagnosed PT for around 6 weeks now. I know its pulsatile because it is in time and rhythm with my heart beat , its in my left ear only . My doctor sent me for a MRI of my ears and brain stem to rule out an acoustic neuroma which is a type of brain tumour , all came back clear . I have now been referred to a ENT but god knows when this appointment will come through and all i want to do is get to the bottom of this .. I get heart palpitations ,i dont know if this is down to anxiety or if it is something to do with my pulsatile tinnitus. I have googled PT and their is all sorts it could be ,im just so worried and concerned and that i am about to have a brain haemorrhage ,a heart attack ,or their is some sort of twisted artery in my neck which can be life threatening if left untreated ..due to covid i just dont know when i will be seen ... i have even thought about going to A

& E and presenting my symptoms to them . I do suffer with health anxiety so i know this is making me worse . is their anyone on here who has pulsatile Tinnitus who is either waiting for tests or has had tests ,if so how did they test for PT . OR anyone with PT or just tinnitus who wants to share their experiences with me .Thank you for reading .Stay Safe x

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BoomBoomB profile image
BoomBoomB

Hello im so sorry you're going through this. I also have tinnitus which started about 2 years ago. And i also have health anxiety so i can relate, it is so stressful and scary! I too had an mri, and now have regular visits with an ENT. Have you had a hearing test? Tinnitis is generally the result of hearing loss and almost always nothing more serious than that. An MRI would have shown anything unusual going on with your brain or blood vessels. I hope it's at least a bit comforting to know that even if the sound doesnt go away you will get used to it. I thought i was going to go crazy when i first got it. I was consumed by anxiety, couldn't sleep, had palpitations, and i thought for sure something terrible was happening to me. I did a lot of panicking and crying in the first couple months! Now days and sometimes even weeks go by where i don't even notice the sound anymore. There are apps you can put in your phone that help mask the noise so you can sleep. I think you will be greatly reassured once you meet with the ENT. I am sorry you're going through this but you will get through it!

lynstone60 profile image
lynstone60 in reply to BoomBoomB

Hi .thank you for your reply .yes iv had s hearing test and I do have some hearing loss in both my ears ...have you pt or just ordinary tinitus ...x

Lonely3190 profile image
Lonely3190 in reply to lynstone60

I keep thinking I got that too.

Zbirth1 profile image
Zbirth1 in reply to BoomBoomB

Hi pulsatile tinnitus and tinnitus are not the same thing

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