Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,944 public posts
Filter results
The Brain Tumour Charity support teams now on Instagram!
Alongside the charity's main Instagram account, we have launched a dedicated support account - @thebraintumourcharity_support Follow us to find out more about our services, as well as information and advice to help you cope with a brain tumour diagnosis. https://www.instagram.com/thebraintumourcharity_support
Alongside the charity's main Instagram account, we have launched a dedicated support account - @thebraintumourcharity_support Follow us to find out more about our services, as well as information and advice to help you cope with a brain tumour diagnosis. https://www.instagram.com/thebraintumourcharity_support
Shannon_TBTC
Partner
in
Acoustic Neuroma Support
4 years ago
FUS vs. DBS An interesting debate on twitter
Expert's favour DBS over FUS
Expert's favour DBS over FUS
Farooqji
in
Cure Parkinson's
4 years ago
Lot of questions re DBS lately. Everything you could want to know.
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (DBS) Therapy...............8 Chapter 3 Risks and Complications of DBS ..................................................19 Chapter 4 Is DBS Right for You? ...........
Chapter 1 Introduction to Surgical Therapies for Parkinson’s Disease ............4 Chapter 2 An Overview of Deep Brain Stimulation (DBS) Therapy...............8 Chapter 3 Risks and Complications of DBS ..................................................19 Chapter 4 Is DBS Right for You? ...........
MBAnderson
in
Cure Parkinson's
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
DBS for Parkinsons
Need a little info on the DBS surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is DBS. She’s not worried about the actual surgery but the cost since her insurance won’t cover very much
Need a little info on the DBS surgery for Parkinson’s. Doc says our daughter has reached the limit for the Sinemet dosage and is beginning g to show signs of needing more help. The only thing left is DBS. She’s not worried about the actual surgery but the cost since her insurance won’t cover very much
Williemom
in
Positive Wellbeing During Self-Isolation
4 years ago
Dbs lottery?
Dbs lottery
Dbs lottery
Abepark2013
in
Cure Parkinson's
4 years ago
DBS lottery
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
Whilst I’ve read dozens of posters extolling the virtues of DBS here on the site and have witnessed many stories on YouTube similarly telling of good things, the PWP that I know personally who’ve had it haven’t been so encouraging. 😕 Guy 1 was hoping to reduce his meds but has ended up taking the
jeeves19
in
Cure Parkinson's
4 years ago
Stress triggering meningitis
What are your thoughts on stress being a trigger for a viral infection and triggering viral meningitis and M.E? Do you think stress plays a contributing factor?
What are your thoughts on stress being a trigger for a viral infection and triggering viral meningitis and M.E? Do you think stress plays a contributing factor?
Sunny308
in
Meningitis Now
4 years ago
Chronic Shingles & Hashi/Hypo
Anyone else get Shingles everytime their TSH rises due to Hashi’s & it’s time for an increase in Levo.mg’s? This has been my pattern for a year now. First round was face/neck second was armpits. Both times bilateral. Shingles vaccine has not been an option for me because I can’t go long enough in between
Anyone else get Shingles everytime their TSH rises due to Hashi’s & it’s time for an increase in Levo.mg’s? This has been my pattern for a year now. First round was face/neck second was armpits. Both times bilateral. Shingles vaccine has not been an option for me because I can’t go long enough in between
badgenes
in
Thyroid UK
4 years ago
Hydrocephalus post Cranioplasty
Hi, my daughter had a brain injury last year. She had a craniectomy and had a cranioplasty in October. For the last month or so, she has woken with a severe headache several times. Twice in the last week. Plus in the last month she’s started with balance problems. She looses her balance when walking
Hi, my daughter had a brain injury last year. She had a craniectomy and had a cranioplasty in October. For the last month or so, she has woken with a severe headache several times. Twice in the last week. Plus in the last month she’s started with balance problems. She looses her balance when walking
Kezza72
in
Headway
4 years ago
My story of trying to find a get the right treatment
My name is lanelle Hardwick and I live with a pineal cyst and a bilobed cyst on my brain. It is so frustrating trying to get across to the health department of this expertise, I am currently in the public system of neurological wait list as catergory 2 and I am constantly suffering symptoms of headaches
My name is lanelle Hardwick and I live with a pineal cyst and a bilobed cyst on my brain. It is so frustrating trying to get across to the health department of this expertise, I am currently in the public system of neurological wait list as catergory 2 and I am constantly suffering symptoms of headaches
lannelle
in
Headway
4 years ago
DBS, good or bad thing?
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
I've decided to take the plunge on dbs, the meds don't work much anymore and side effects are kicking my butt. it's been 7 yrs since diagnoses, unbelievable suffering everyday. Your thought's, pros and cons, warnings, tips , suggestions, secrets ect. .thank you greatly
Hidden
in
Anxiety and Depression Support
4 years ago
Links to some articles comparing FUS to DBS for Essential Tremors
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
pdpatient
in
Cure Parkinson's
4 years ago
DBS - yes or no?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
Hidden
in
Anxiety and Depression Support
4 years ago
Please make it stop
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
I am new to this level of anxiety. It has completely debilitated me. I need help but can't afford anything, even with insurance. On the surface, it looks irrational but I can't control it no matter what I do. I meditate, breath, exercise and try to take care of myself. I have new medications that
needhelp2z
in
Anxiety Support
4 years ago
Anxious
Feeling a bit nervous today, I’ve an appointment for a MRI scan , I’ve got a meningioma ( a benign tumour on the lining of the brain near the pituitary ) I’ve had it since childhood and it’s caused a few problems. I had a scan last year and it’s grown so they want to do another to see if it’s grown anymore
Feeling a bit nervous today, I’ve an appointment for a MRI scan , I’ve got a meningioma ( a benign tumour on the lining of the brain near the pituitary ) I’ve had it since childhood and it’s caused a few problems. I had a scan last year and it’s grown so they want to do another to see if it’s grown anymore
CELAT06
in
Lung Conditions Community Forum
4 years ago
New to the forum
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
thfc1961
in
Cure Parkinson's
4 years ago
Deep Brain Stimulation
Can those who have had DBS please share their experiences
Can those who have had DBS please share their experiences
thfc1961
in
Cure Parkinson's
4 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
Farooqji
in
Cure Parkinson's
4 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
4 years ago
Latent shingles and high BP
Has anyone had shingles lately and increase in BP...contracted shingles couple of weeks ago, felt very hot but not high temp and only few spots on left arm/bra line and left shoulder/back....phoned GP and mentioned headache and light headedness and sent photos..went to pick up script at pharmacy and
Has anyone had shingles lately and increase in BP...contracted shingles couple of weeks ago, felt very hot but not high temp and only few spots on left arm/bra line and left shoulder/back....phoned GP and mentioned headache and light headedness and sent photos..went to pick up script at pharmacy and
Bea61
in
Pain Concern
4 years ago
1
...
20
21
22
...
98
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
797 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest