Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,916 public posts
Filter results
Shingles and PMR
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
ian1951
in
PMRGCAuk
3 years ago
my husband has been given a discharge date and i am feeling a bit terrified
My husband suffered a massive stroke after surgery for an aneurysm in May and has been in specialist neuro rehab for 6 weeks. We recently had a patient review meeting via zoom and a discharge date in January is being worked towards. I dearly would love him home but am terrified at the prospect too, he
My husband suffered a massive stroke after surgery for an aneurysm in May and has been in specialist neuro rehab for 6 weeks. We recently had a patient review meeting via zoom and a discharge date in January is being worked towards. I dearly would love him home but am terrified at the prospect too, he
pozza40
in
Headway
3 years ago
Fatigue and brain tumours
3 in 5 people we spoke to felt fatigued due to their brain tumour diagnosis. To help you, we've put together extensive information about fatigue, from what is it and its symptoms to its causes and how to cope with it, including tips from our community, people who truly understand what you're going
3 in 5 people we spoke to felt fatigued due to their brain tumour diagnosis. To help you, we've put together extensive information about fatigue, from what is it and its symptoms to its causes and how to cope with it, including tips from our community, people who truly understand what you're going
Jane_TBTC
Volunteer
in
Acoustic Neuroma Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
how to speak to your GP about very low TSH
hi, I have Lyme disease and Hashimoto's and I'm currently taking combination T3 and T4 therapy ( after reading that this can be a game-changer for people who are chronically ill with Lyme and struggling to get better) my previous TSH was 0.32, my T3 was just outside the top third of the normal range
hi, I have Lyme disease and Hashimoto's and I'm currently taking combination T3 and T4 therapy ( after reading that this can be a game-changer for people who are chronically ill with Lyme and struggling to get better) my previous TSH was 0.32, my T3 was just outside the top third of the normal range
garz
in
Thyroid UK
3 years ago
Medtronic DBS battery change: opportunity for improved therapy?
Coming in 2021 for me is a Medtronic DBS battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Coming in 2021 for me is a Medtronic DBS battery change: what are the opportunities for improved hardware and software? How about comments on rechargeable vs non-rechargeable battery? If possible please share links to any source material.
Gobbsofjoy
in
Cure Parkinson's
3 years ago
ARE YOU NON TREMOR DOMINANT PD PATIENT? DID YOUGET DBS? IF YES, PLEASE SHARE YOUR EXPERIENCE.
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
Hi please anyone. please tell me if it is worth it getting DBS ,if you are PIDG. Are you still using C/L or mucuna? What other pd medications are you on?
OREOLU
in
Cure Parkinson's
3 years ago
Job with MSA Patients
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
Hi all, I would like to see if anyone can help me. I currently work as a complex healthcare assistant and a support worker. I was doing long days - live in domiciliary care with a gentlemen who had this horrible disease MSA for 9 months before he sadly passed away. I learnt so much about the illness
RhiMallorca
in
Multiple System Atrophy Trust
3 years ago
DBS PLUS MUKUNA P, OR DBS PLUS C/L, OR DBS PLUS HDT PLUS MUKUNA P, OR DBS PLUS MUKUNA PLUS C/L PLUS HDT, DBS PLUS HDT PLUS C/L.
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
Hi friends with PD and caregivers, if you are non tremor dominant, gait/balance/posture abnormality PD patient, and has had any of the above combination of interventions. please chose any combination that works for you. And how long has this been working for you? Thanks
OREOLU
in
Cure Parkinson's
3 years ago
Shingles - part 3
After much googling, I can see that this is indeed shingles even though I only have 5 spots. The GP was actually quite panicky, he told me to come down immediately and pick up Aciclovir, he said that 5 spots is probably just the start and it must be nipped in the bud and worse still I am to stop taking
After much googling, I can see that this is indeed shingles even though I only have 5 spots. The GP was actually quite panicky, he told me to come down immediately and pick up Aciclovir, he said that 5 spots is probably just the start and it must be nipped in the bud and worse still I am to stop taking
Brychni
in
NRAS
3 years ago
December 11, 2020, MRg FUS PTT & me, 9 month(s) (ago today) report.
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
The patient recovering the day after. (I posted this as a comment in another thread last week, but to be consistent with my 3 and 6 month reports, I repeat it here.) There are a lot of body movements and functions (balance, walking, vision, speech, bowel function) that requires both sides the brain,
MBAnderson
in
Cure Parkinson's
3 years ago
Tremor
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
I must demonstrate the effectiveness of C/L against tremors when and if I apply for DBS. This evening I took one tablet, 25/i100, it became available to my brain in 1/2 an hour. I had no tremor for one hour and still counting. I was dx eight years ago.
Hidden
in
Cure Parkinson's
3 years ago
DBS Albuquerque
Looking into getting DBS'd by a surgeon in New Mexico
Looking into getting DBS'd by a surgeon in New Mexico
Hidden
in
Cure Parkinson's
3 years ago
DBS surgery complete, but no benefits found yet
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
Friends, my last post I told you my husband was having his device turned on, & he did, however, that evening he experienced high blood pressure & heart palpatations & started making strange & totally movements, lieing in bed could not be still, anyone else experience this? We have emailed Neurologist
dhill
in
Cure Parkinson's
3 years ago
Concerned
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
Husband had DBS, device not turned on yet, but tremors & anxiety aremuch, much worse since the surgery, anyone else experience this?
dhill
in
Cure Parkinson's
3 years ago
Seizure free post cranioplasty years later
Is it possible to be seizure free from brain surgery years later ? Has anyone been there ?
Is it possible to be seizure free from brain surgery years later ? Has anyone been there ?
Itsliifee
in
Headway
4 years ago
experiences of progress in rehab
So my husband has arrived at a specialist rehab unit yesterday, I was allowed an hour with him today and the unit seems very nice,he has a nice room overlooking the gardens and it is very peaceful there compared to the hospital ward he has been in previously. He is 5 months post aneurysm surgery that
So my husband has arrived at a specialist rehab unit yesterday, I was allowed an hour with him today and the unit seems very nice,he has a nice room overlooking the gardens and it is very peaceful there compared to the hospital ward he has been in previously. He is 5 months post aneurysm surgery that
pozza40
in
Headway
4 years ago
45 mins conversation with dr. Jeanmonod regarding FUS
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
Hi all! I just spoke with dr. J about my situation. In my case he said the PD looks very easy (after 4 years) and he recommended an evaluation exam to determine if I really need a FUS surgery at this time. He said I'm at the border line. The cost of that it will be 2000 CF which will be subtracted from
ion_ion
in
Cure Parkinson's
4 years ago
Levodopa or Dopamine Agonist after DBS in Parkinson's Disease? We finally have some evidence.
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Levodopa Versus Dopamine Agonist After Subthalamic Stimulation in Parkinson's Disease https://onlinelibrary.wiley.com/doi/full/10.1002/mds.28382#.X6lTvADhDPE.twitter
Farooqji
in
Cure Parkinson's
4 years ago
Medical Merry -Go round. Now it's a Meningioma
I was just given the news that I have a rather large Meningeoma in my frontal lobe measuring 2.3 cm x 2.4 cm and naturally I am trying to keep my wits about me as I am just now recovering from a PE and just started on NOAC's (Blood thinners) which gave me a non stop headache and a subsequent MRI turned
I was just given the news that I have a rather large Meningeoma in my frontal lobe measuring 2.3 cm x 2.4 cm and naturally I am trying to keep my wits about me as I am just now recovering from a PE and just started on NOAC's (Blood thinners) which gave me a non stop headache and a subsequent MRI turned
RiderontheStorm
in
Brain health
4 years ago
Shingles Vaccination
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
I have PV for 8 years and taking Hydroxycarbimine 1 G, asprin. I have just turned 70 and am eligible for the shingles vaccine. As this a live virus is it safe? Thanks
Ashburnmam
in
MPN Voice
4 years ago
1
...
20
21
22
...
96
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
778 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest