18 year old Son Diagnosed with ALD - Leukodystrophy Su...

Leukodystrophy Support

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18 year old Son Diagnosed with ALD

ballml profile image
2 Replies

My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.

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ballml
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tramynguyen12 profile image
tramynguyen12

Hi, please join in this group for more up-to-date discussion and experience sharing :facebook.com/groups/1695273....

I am an Ald carrier, and this disease is horrible.

ballml profile image
ballml in reply totramynguyen12

Still waiting to be accepted. Thank you for your help.

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Do you want to get in touch with someone with a similar experience of ALD or AMN?

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