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iron overload
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
An early happy new year to all. Just curious if anyone has iron overload from blood transfusions and if they have started any therapy for this. My husband has high risk MF and has been dependent on monthly blood transfusions since his hemoglobin and hematocrit levels have been low 25 for hematocrit
Bainbridge
in
MPN Voice
8 months ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
4 months ago
Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
Wen_dy
in
CLL Support
8 months ago
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Recently started Acalabrutinib
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Hi everyone, My father has recently started Acalabrutinib 5 days ago. He was diagnosed with CLL in 2007 and has received FCR (twice) and Benda-Ritux once. His CLL only went into partial remission on benda-ritux and has come back after one year since his last cycle of BR. I am worried regarding the
Healthgiddy
in
CLL Support
4 months ago
Ruxolitinib Combinations Reduce Spleen Volume in Myelofibrosis: Combos with navitoclax/pelabresib led to more patients achieving reductions
SAN DIEGO -- Combining the Janus kinase (JAK) inhibitor ruxolitinib (Jakafi) with either navitoclax or pelabresib led to more patients with myelofibrosis achieving reductions in spleen volume, two phase III studies showed. In the TRANSFORM-1 trial, the combination of the BCL-XL/BCL-2 inhibitor navitoclax
SAN DIEGO -- Combining the Janus kinase (JAK) inhibitor ruxolitinib (Jakafi) with either navitoclax or pelabresib led to more patients with myelofibrosis achieving reductions in spleen volume, two phase III studies showed. In the TRANSFORM-1 trial, the combination of the BCL-XL/BCL-2 inhibitor navitoclax
PhysAssist
in
MPN Voice
8 months ago
blood transfusion prep
I completed exactly one year on Olaparib today. I had high grade serous OC stg4, brca1, and started in op after chemo and surgery was very effective. My HB count dropped to 5.5 and platelets to 80, wbc 2400 (all are at their lowest, even lower than during chemo). I took the blood work today as I have
I completed exactly one year on Olaparib today. I had high grade serous OC stg4, brca1, and started in op after chemo and surgery was very effective. My HB count dropped to 5.5 and platelets to 80, wbc 2400 (all are at their lowest, even lower than during chemo). I took the blood work today as I have
Goodgirl98
in
My Ovacome
1 year ago
My Mucusy
Reasonable to assume that my mucusy was and is my bodies reaction to experiencing Cobalamin Cellular Inactivity which was internment yet progressively more acute resulting in a hospitalization and two
blood
transfusion
followed by a prescribed protocol less effective than was designed in 1972.
Reasonable to assume that my mucusy was and is my bodies reaction to experiencing Cobalamin Cellular Inactivity which was internment yet progressively more acute resulting in a hospitalization and two
blood
transfusion
followed by a prescribed protocol less effective than was designed in 1972.
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Talzenna approved by FDA
A
blood
transfusion
was needed among 39 percent of patients treated with Talzenna with enzalutamide, including 22 percent who required multiple transfusions. Approval of Talzenna was granted to Pfizer.
A
blood
transfusion
was needed among 39 percent of patients treated with Talzenna with enzalutamide, including 22 percent who required multiple transfusions. Approval of Talzenna was granted to Pfizer.
Magnus1964
in
Prostate Cancer Network
1 year ago
Low hemoglobin
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
I started hemodialysis in Aug with an emergency chest catheter. I had 2 units of blood as my hemoglobin was low while in hospital. Then in hospital again in September and another 2 units of blood. Got my labs today and hemoglobin was 6.8 so they gave me Mircera and iron. When I did PD I got Mircera
horsie63
in
Kidney Dialysis
9 months ago
Thalassemia: Lessons in Perseverance and Compassion
The only choice was to commence
blood
transfusions, so I did. Right after my first
transfusion
, I moved away to attend graduate school on a full scholarship. A doctor in my new location helped me get on my feet medically.
The only choice was to commence
blood
transfusions, so I did. Right after my first
transfusion
, I moved away to attend graduate school on a full scholarship. A doctor in my new location helped me get on my feet medically.
AnnaHU
HealthUnlocked
in
HealthUnlocked Blog
10 months ago
Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
3 months ago
lutetium 177
He got a
blood
transfusion
last Friday and is scheduled for directed radiotherapy to the prostate next Monday to try and stop the bleeding. Has anyone experienced bleeding after Lutetium 177. If so what treatment did you receive. He has mets throughout his bones skull to toe.
He got a
blood
transfusion
last Friday and is scheduled for directed radiotherapy to the prostate next Monday to try and stop the bleeding. Has anyone experienced bleeding after Lutetium 177. If so what treatment did you receive. He has mets throughout his bones skull to toe.
FionaElbourne
in
Advanced Prostate Cancer
1 year ago
Tear in oesophagus
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus ,
blood
transfusion
, antibiotics etc should we be aware for another bleed , does this normally happen ?
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus ,
blood
transfusion
, antibiotics etc should we be aware for another bleed , does this normally happen ?
Sharonmcfarlane
in
British Liver Trust
1 year ago
Is there a risk of IGG atrophy when getting regular IVIG transfusions?
I know that there are some substances you can ingest, that might make your body atrophy when it comes to producing it on its own. For example, I have heard that if you take a lot of melatonin for a long period, it might impair your body’s ability to make its own after a while. I am wondering if that
I know that there are some substances you can ingest, that might make your body atrophy when it comes to producing it on its own. For example, I have heard that if you take a lot of melatonin for a long period, it might impair your body’s ability to make its own after a while. I am wondering if that
Kvb-texas
in
CLL Support
10 months ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
4 months ago
iron transfusion
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Hi I’m just wondering how long people in the uk have waited for an iron infusion. I requested an iron infusion months and months ago as I can’t tolerate iron orally. Unfortunately my doctor forgot to put me on the waiting list and only amended that about a month ago after I mentioning that I was waiting
Heather-rose
in
Restless Legs Syndrome
10 months ago
Hi 👋
Hi everyone 😊 This is my first post, been researching lots about thyroid health the last few days as I had some bloods done a few weeks ago that came back abnormal so I had more done yesterday and I'm just waiting to hear back about those. Been feeling extremely tired and achy, I started taking Sertraline
Hi everyone 😊 This is my first post, been researching lots about thyroid health the last few days as I had some bloods done a few weeks ago that came back abnormal so I had more done yesterday and I'm just waiting to hear back about those. Been feeling extremely tired and achy, I started taking Sertraline
Mummybear0213
in
Thyroid UK
10 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
switch from jakafi (RUX) to Ojjara/momelotinib
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
has anyone made the switch yet ? The doctor is planning to switch my husband over. He is 74 yrs old with high risk MF. Had taken HU since 2020 then switched to jakifi five months ago but made him more anemic with hemoglobin down to 6.6-7.5 so required blood transfusions monthly Just curious if anyone
Bainbridge
in
MPN Voice
10 months ago
In ER for low HGB
This is my first time posting since diagnosis in September 2022. I am a 63-year-old female, who has otherwise been healthy. I presented with just the higher than normal WBC, but I was sent to the ER after my routine blood draw revealed a drop in my HGB from 13 to 7. I had felt okay -/ mildly tired. However
This is my first time posting since diagnosis in September 2022. I am a 63-year-old female, who has otherwise been healthy. I presented with just the higher than normal WBC, but I was sent to the ER after my routine blood draw revealed a drop in my HGB from 13 to 7. I had felt okay -/ mildly tired. However
Goopteal
in
CLL Support
11 months ago
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