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What should I do next?
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
I was diagnosed 7 yrs ago with stage 2 fallopian tube cancer. Had hysterectomy, 15 chemos of carbo taxol, 5 blood transfusions. 2 years later it came back, did carbo doxil avastin had a lot if side effects. When covid hit, tried lymparza but didn't work. Cancer spread to colon. Went back to carbo
Mardes
in
SHARE Ovarian Cancer Support
11 months ago
codeine
I’m just wondering if taking a 60mg dose of codeine each night is addictive? I’m only taking codeine occasionally at other times if I’m in agony with my other health problems. I’ve noticed that it helps my RLS calm immensely when taken with or a low dose of pramiprexole. I also find a hot way bottle
I’m just wondering if taking a 60mg dose of codeine each night is addictive? I’m only taking codeine occasionally at other times if I’m in agony with my other health problems. I’ve noticed that it helps my RLS calm immensely when taken with or a low dose of pramiprexole. I also find a hot way bottle
Heather-rose
in
Restless Legs Syndrome
11 months ago
Anagrelide in UK and in the USA😱
My long suffering wife has been taking Anagrelide and a little hydroxycarbamide for five years now. During these five years she has endured numerous upper GI bleeds, and endoscopies, which have never found the source of the bleeds. More recently, and only since her Anagrelide has been reduced from 21
My long suffering wife has been taking Anagrelide and a little hydroxycarbamide for five years now. During these five years she has endured numerous upper GI bleeds, and endoscopies, which have never found the source of the bleeds. More recently, and only since her Anagrelide has been reduced from 21
jointpain
in
MPN Voice
11 months ago
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Update
Hi Ladies, l hope you are as well as you can be! I haven't posted for some time as things have not been to great.After the chemo last July l had to have several blood transfusions and magnesium infusions. Well to cut a long story short l had to go for a bone marrow biopsy and the outcome of this was
Hi Ladies, l hope you are as well as you can be! I haven't posted for some time as things have not been to great.After the chemo last July l had to have several blood transfusions and magnesium infusions. Well to cut a long story short l had to go for a bone marrow biopsy and the outcome of this was
Lewisriley47
in
My Ovacome
11 months ago
Description of Fatigue.
I find it helpful when others share their experiences with fatigue. I do not expect to be understood when I express my experience except here. So February 2019 my fatigue was acute, constant and progressively getting worse until I was hospitalized and given two transfusions. I would have been in a
I find it helpful when others share their experiences with fatigue. I do not expect to be understood when I express my experience except here. So February 2019 my fatigue was acute, constant and progressively getting worse until I was hospitalized and given two transfusions. I would have been in a
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
My Pluvicto Journey is Over
I finished treatment #5 on August 10th with a PSA of over 400. But worse than that was what it did to my hemoglobin and Platelet counts. Last week my hemoglobin was down to 6.2 and after 2 units of blood it only rose to 7.8. Platelet counts drooped to 18k. I had a transfusion for both the platelets
I finished treatment #5 on August 10th with a PSA of over 400. But worse than that was what it did to my hemoglobin and Platelet counts. Last week my hemoglobin was down to 6.2 and after 2 units of blood it only rose to 7.8. Platelet counts drooped to 18k. I had a transfusion for both the platelets
bglendi53
in
Advanced Prostate Cancer
11 months ago
Talzenna
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Has anyone tried Talzenna ? My dad was just started and after 2 weeks his PSA spiked 47 points to 105. He’s been battling hard, Lynparza worked like a miracle for 7 months then had to decrease dose d/t low hemoglobin and low RBC, had to have transfusions twice. Then Lynparza stopped working after
Mikerest
in
Advanced Prostate Cancer
11 months ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
11 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
11 months ago
Do I need to be medicated with these results ?
- Also had a surgery a number of years ago, which necessitated a
blood
transfusion
and I had the best months of health I’ve ever had in my life shortly after.
Cortisol/ Adrenal Health
- I would say this is a close second to the Iron/ Ferritin issue.
- Also had a surgery a number of years ago, which necessitated a
blood
transfusion
and I had the best months of health I’ve ever had in my life shortly after.
Cortisol/ Adrenal Health
- I would say this is a close second to the Iron/ Ferritin issue.
ShiningStar77
in
Thyroid UK
2 months ago
Thinking of going back on Sertraline but my partner makes it seem like i’m being weak or lazy
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
NEC_xx
in
Anxiety and Depression Support
7 months ago
Low hemoglobin and Niraparib
Did so, fantastic treatment and back tomorrow to have a
blood
transfusion
. Has anyone else experienced low hemoglobin whilst on Niraparib. The only symptom I have, is I became breathless.
Did so, fantastic treatment and back tomorrow to have a
blood
transfusion
. Has anyone else experienced low hemoglobin whilst on Niraparib. The only symptom I have, is I became breathless.
Skyeplus
in
My Ovacome
1 year ago
Pluvicto, Not Helping
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
bglendi53
in
Advanced Prostate Cancer
1 year ago
update and advice on flights
understanding. She has given me the form to get my iron tested but did say it would be difficult to get anybody to agree to an iv iron transfusion but let’s wait and see what my bloods come back as first. She has prescribed me gabapentin, at my request, but think I may try to manage it a bit again first
understanding. She has given me the form to get my iron tested but did say it would be difficult to get anybody to agree to an iv iron transfusion but let’s wait and see what my bloods come back as first. She has prescribed me gabapentin, at my request, but think I may try to manage it a bit again first
Patters56
in
Restless Legs Syndrome
1 year ago
Start of SCT journey
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Quick recap for those that haven't followed my previous posts. Diagnosed September 2022 with primary MF, no previous signs or symptoms before catching Covid in June 2022 and health deteriorating until GP visit at end of August 2022. After some RBC transfusions, blood tests and BMP I enrolled on FEDORA
Flyingsteamer
in
MPN Voice
8 months ago
Hurdle
But tested again yesterday and was at 6.9 so another
transfusion
. I go in for
blood
first and if ok, start taxotere. MO isn't sure why hemoglobin tanking. Either pluvicto or PCa.Anyone have anything similar? Any other treatments, etc? Thanks
But tested again yesterday and was at 6.9 so another
transfusion
. I go in for
blood
first and if ok, start taxotere. MO isn't sure why hemoglobin tanking. Either pluvicto or PCa.Anyone have anything similar? Any other treatments, etc? Thanks
RunThru
in
Advanced Prostate Cancer
1 year ago
Two blood transfusions ,home now. Just learning to stand again ,he wants to fight and do pluvicto may 5. prayers ? Tremor control ?
We three daughters got sick with the stress of this turning to 24 hour care but I was praying for
blood
transfusion
and I'm glad his life was saved so please those who have known my love pray for us and that his blood levels stay strong and he can survive pluvicto even if it's just a couple treatments
We three daughters got sick with the stress of this turning to 24 hour care but I was praying for
blood
transfusion
and I'm glad his life was saved so please those who have known my love pray for us and that his blood levels stay strong and he can survive pluvicto even if it's just a couple treatments
Daddyishealing
in
Advanced Prostate Cancer
1 year ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
1 year ago
Grateful but ….
I am extremely grateful to all you wonderful people who have contacted me throughout this ordeal. Yes I’ve survived the operation but I didn’t fully realise how bad things could be in the immediate aftermath. I had to have two transfusions last night of something because my heart was racing. Also I
I am extremely grateful to all you wonderful people who have contacted me throughout this ordeal. Yes I’ve survived the operation but I didn’t fully realise how bad things could be in the immediate aftermath. I had to have two transfusions last night of something because my heart was racing. Also I
highburyted
in
British Heart Foundation
1 year ago
Hello strangers.
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
andysnat
in
CLL Support
1 year ago
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