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Blood-coagulation factor XIII
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Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
4 months ago
child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
5 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
5 months ago
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Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
5 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
5 months ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
5 months ago
Pernicious anaemia
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
Hi the result of my intrinsic factor came back positive and I start loading doses on Monday The results were written a little strangely though Intrinsic Factor antibodies 12.0 U/ml Negative=<7 Equiveocal= 7-10 Positive > 10 Looking on other websites the results are given in different measurements
mully
in
Pernicious Anaemia Society
5 months ago
Pernicious Anemia treatment
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
Hi I am writing to share my recent health diagnosis and to seek your advice on a more efficient treatment approach. I am a 37-year-old man who has been battling a series of debilitating symptoms for several years, including extreme fatigue, depression, anxiety, brain fog, decreased mental concentration
merfi
in
Pernicious Anaemia Society
5 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
5 months ago
Raised MMA result
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Hi everyone Have written before about my low active B12 results(medichecks). Latest one had been 36.7 (37.5~188). My previous 3 were slowly dropping from 60s to 50s to 40s. Advised to do MMA by medichecks. Eventually afforded one last week which came back high 38.5 (<32). They are now suggesting
Pomart
in
Pernicious Anaemia Society
6 months ago
If taking B12 supps skew's PA Intrinsic Factor test, does it do the same for Gastric Parietal Cell AB too?
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Hi Everyone, Im a bit out of my depth here and wondered if you could help please. Ive taken B Complex for nearly 25 years, I do wonder whether serum levels have always been scuppered, as I read again that to do a credible PA , MMA test I needed to be off B12 for minimum 4- 6 moths , possibly longer
Gillybean1
in
Pernicious Anaemia Society
6 months ago
Can anyone shed some light on Anti CCP antibodies result?
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Hi everyone, my name is Claire. I’ve just received back some blood test results (Rheumatoid Factor and Anti CCP antibodies). The Rheumatoid Factor came back negative but the Anti CCP came back as 10.4 K/UL. The test states that normal range is under 2.9 K/Ul yet mine is over 3 times higher. The last
Cheshirecatz
in
NRAS
6 months ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
6 months ago
10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
6 months ago
Help Needed! Have I got Pernicious Anaemia?
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
I hope this isn't too long and/or too boring. I suspect I have PA but as with a lot of people here, no-one seems to take B12 deficiency seriously. I also have hypothyroidism so as my symptoms got increasingly worse over the past few years, I blamed my thyroid - the two conditions have many symptoms
Grannypants
in
Pernicious Anaemia Society
6 months ago
Zypan?
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
Hi everyone. Just wondering if anybody here is taking Zypan or have taken it before? Just watched a really helpful video from Dr Berg on YouTube on PA where he mentions this helps to absorb B12 if there is a lack of intrinsic factor
MLJ2024
in
Pernicious Anaemia Society
6 months ago
Help with intrinsic factor results
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
hi all i was recently told i tested positive for gastro parietal cells. This is my intrinsic factor results. Im confused is this a positive or negative? And what would the parietal cells with this result mean?
Confused1806
in
Pernicious Anaemia Society
6 months ago
IFABs Borderline?
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Hi I've recently had this result Intrinsic Factor Antibodies 1.33 AU/mL Range <1.2 Negative 1.2-1.53 Borderline >1.53 Positive how can this be? surely anything over 1.2 is positive or is my brain too feeble to understand🥴 any thoughts would be appreciated🙃
Doeyditdot
in
Pernicious Anaemia Society
6 months ago
IBS-C - have had this for life and is playing up again now
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
I remember being taken to hospital at a pre-school age because I had a 'blockage.' After that my mother gave me castor oil, enos, sennapods, that Ex-Lax chocolate that would not fool a 4 year old, prunes. You name it I had it and I can never remember having a bowel movement normally. I could go for
Miserere
in
IBS Network
4 days ago
Cure your RLS with castor oil
I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one every night. I’ve been taking carbidopa/levodopa for 2 years. Helped so much but I believe augmentation is kicking in. Where before I had to
I have been suffering with RLS for nearly 45 years. I am now 75 and it is getting worse. I used to have several days between RLS attacks. Now I have one every night. I’ve been taking carbidopa/levodopa for 2 years. Helped so much but I believe augmentation is kicking in. Where before I had to
Deborahok
in
Restless Legs Syndrome
4 days ago
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