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AUTOIMMUNE LIVER BLOODS
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
I am new to this community and have found some useful information here. I was diagnosed with B12 deficiency of 158 last August, had various tests plus B12 repeated on 17 January and this time my B12 came back at 147. My GP says it’s borderline but from what I’ve read hear it’s low, he did further bloods
Frenchbetty
in
Pernicious Anaemia Society
7 months ago
Bone profile?
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Hi, could anyone tell me what the doctor means by bone profile? Recently had tests for B12 deficiency, got a telephone call a few days later asking me to come back in for them to do more tests. Said my bone profile was low, and mentioned something about potentially low vitamin d. Apparently my b12 is
Kayls32
in
Pernicious Anaemia Society
7 months ago
So apparently I'm normal...but I'm definitely perplexed!
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Having twice weekly injections since my loading dose in mid December as I still have lots of neuro symptoms. Feeling generally better, but have woken up with migraines the last 4 mornings after they were really improving, and felt v sick this morning 🙄 Every day is an unknown! Had about 30/40 different
Myoldcat
in
Pernicious Anaemia Society
7 months ago
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I got my results back for pernicious anemia! Looks like folate deficiency, but would really appreciate any comments
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
I finally got my blood test results back for pernicious anemia. It looks like I don't have it, and that my problem is folate deficiency. And low reticulocyte count which would be caused by low folate I suppose. My other results are all in range, though active B12 could maybe be higher I am thinking
Carrie234
in
Pernicious Anaemia Society
16 days ago
Results query
Hi, In May 2021 I had the intrinsic factor blood test and my results were as follows. 89 u/ml. With a normal range of 0-24 u/ml. And the following notes. The presence of anti intrinsic factor antibodies together with a low vitamin B12 level is diagnostic of pernicious anaemia Does this make sense to
Hi, In May 2021 I had the intrinsic factor blood test and my results were as follows. 89 u/ml. With a normal range of 0-24 u/ml. And the following notes. The presence of anti intrinsic factor antibodies together with a low vitamin B12 level is diagnostic of pernicious anaemia Does this make sense to
Mysticat81
in
Pernicious Anaemia Society
22 days ago
Intrinsic factor blood test
I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level < 0.5 U/mL [0.0 - 6.9]; Negative <7 Equivocal 7 - 10 Positive >10 I can't even work out which part of the above is the result? I receive B12
I had a blood test and got the result today - I haven't a clue what this means?? Any ideas? Intrinsic factor antibody level Intrinsic factor antibody level < 0.5 U/mL [0.0 - 6.9]; Negative <7 Equivocal 7 - 10 Positive >10 I can't even work out which part of the above is the result? I receive B12
Loobs39
in
Pernicious Anaemia Society
23 days ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
Thought about Intrinsic factor
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
Okay, so I've been thinking a lot about this, but if you no longer have intrinsic factor why would your body continue to make antibodies to intrinsic factor. I'm wondering about this as I keep getting tested by doctors for IF antibodies with no success, but I was told 15+ years ago when I was diagnosed
PaintLadie
in
Pernicious Anaemia Society
7 months ago
B12 how much and how often
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
I’ve been struggling with PA for 2 and 1/2 years. No one would listen. Finally from Israel I was advised to get the Intrinsic Factor Antibody Blood Test and the Parietal Cell Antibody Blood Test. Pernicious Anemia. I have to take a shot of Methylcobalamin daily. The Israelis recommend taking a shot
Jeep13
in
Pernicious Anaemia Society
27 days ago
Intrinsic Factor (IF) Antibodies testing while on B12
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Treesong2023
in
Pernicious Anaemia Society
1 month ago
Positive rheumatoid factor and CCP
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
Hi ,Will try to make a long story short. In 2018 I had a RF of 381 at the time was told its not RA but osteoarthritis and my raised RF was due to my dad having severe RA so no treatment. Just over 6 weeks ago I had pain in hands so went to GP who did blood tests my RF is now 945.4 a ccp blood test has
nomoney
in
NRAS
1 month ago
Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?
Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around to help us "worried-up" trainee Health Detectives To set the scene my lovelies - I was in here a while ago looking for the cause of my awful symmetrical Peripheral Neuropathy (PN) in my hands, feet and
Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around to help us "worried-up" trainee Health Detectives To set the scene my lovelies - I was in here a while ago looking for the cause of my awful symmetrical Peripheral Neuropathy (PN) in my hands, feet and
Treesong2023
in
Pernicious Anaemia Society
1 month ago
pernicious anemia
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Hi, Can anyone relate to how I am feeling? I was diagnosed back in Feb this year after my Intrinsic Factor blood test came back positive and I was diagnosed with Pernicious anaemia. I went to the drs with symptoms of exhaustion, pins and needles, heart palpitations and nausea as well as brain fog
Lucymay82
in
Pernicious Anaemia Society
2 months ago
Castor Oil Packs
Have any of you tried this? Was recommended to me by a natural therapist, she has a client who it really helped. Below are links to what they do. https://healf.com/blogs/health-journal/what-are-castor-oil-packs-how-do-they-work-and-what-do-they-do https://thewellnessjunction.com/the-benefits-of-using-castor-oil-packs-for-your-thyroid
Have any of you tried this? Was recommended to me by a natural therapist, she has a client who it really helped. Below are links to what they do. https://healf.com/blogs/health-journal/what-are-castor-oil-packs-how-do-they-work-and-what-do-they-do https://thewellnessjunction.com/the-benefits-of-using-castor-oil-packs-for-your-thyroid
Nomad12
in
Thyroid UK
3 months ago
lapararoscopy
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to check how it is. The gynae/surgeon has done watchful waiting with me since my diagnosis as he knows I am a carer for my mum and I have no one else
Ova104
in
My Ovacome
3 months ago
Do those with thin linings have light periods?
Hello,I have unexplained infertility. Have had one failed cycle that produced 3 good quality blasts. 1 x fresh failed and 2 x FET both failed to implant. I had one cycle cancelled due to thin lining of 5.5mm. I now take additional estrogen, Viagra, Aspirin and progesterone which have given me a lining
Hello,I have unexplained infertility. Have had one failed cycle that produced 3 good quality blasts. 1 x fresh failed and 2 x FET both failed to implant. I had one cycle cancelled due to thin lining of 5.5mm. I now take additional estrogen, Viagra, Aspirin and progesterone which have given me a lining
AmyG18
in
Fertility Network UK
3 months ago
Intrinsic factor jump from 1.1 to now 18.8 high
hello All, so I received my blood test results today for intrinsic factor and it is 18 high over the limit of 1.1. in February I was at 1.1. does anyone have any suggestions on why such a jump. I have been injecting b12 for 1.5 months now. would that have changed anything? my CBC was really good hemoglobin
hello All, so I received my blood test results today for intrinsic factor and it is 18 high over the limit of 1.1. in February I was at 1.1. does anyone have any suggestions on why such a jump. I have been injecting b12 for 1.5 months now. would that have changed anything? my CBC was really good hemoglobin
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
Silent Reflux and B12 Deficiency- Any Link?
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hello! I was diagnosed with low B12 following a blood test in December last year, on injections but only had 3 of the 6 loading doses then was moved on to one every three months due to severe side effects that worried my GP. Had my first of the 3 monthly ones a few weeks ago and all went well. I saw
Hidden
in
Pernicious Anaemia Society
2 months ago
Can PMR last for 5years+?
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first year which continued for a further 3 years, then down to 2.5mg in the 5th year. From March 2023, neck and shoulder problems and flare December 2023
Phoebe12345
in
PMRGCAuk
2 months ago
Supplement Help Please
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Hello, First time writing and being on the forum so I apologise if this question has asked before. I have been diagnosed with PA for just over a year and a half and have 3 monthly B12 injections. Around the second month after the B12 injection I get a massive drop off. I get a metallic taste in my mouth
Barley_84
in
Pernicious Anaemia Society
7 months ago
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