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Please tell me why……
my doc wanted a BMB to confirm PV. Right afterwards I read there’s a blood test to confirm Jak2. So why would a dr. Advocate for the biopsy over the blood test?
my doc wanted a BMB to confirm PV. Right afterwards I read there’s a blood test to confirm Jak2. So why would a dr. Advocate for the biopsy over the blood test?
Wendrew
in
MPN Voice
4 months ago
Why don’t my Family understand what Fibro does to me?
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Despite everything that I put in front of them and how much my GP has told my wife I still get sarcastic comments about when I just can’t push myself any further with doing things? I suppose it doesn’t help that in my 40’s I was almost ready to enter the over 40’s Bodybuilding novice championships! However
Tisme72
in
Fibromyalgia Action UK
4 months ago
Prednisolone and surgery
Hi everyone, I've been reading all the recent posts about problems reducing prednisolone with interest. When I was diagnosed in September 2023 (non cranial GCA) I naively expected my steroid reducing timetable, given to me on discharge, would be exactly as it was on the sheet. I'm now down to 8mg per
Hi everyone, I've been reading all the recent posts about problems reducing prednisolone with interest. When I was diagnosed in September 2023 (non cranial GCA) I naively expected my steroid reducing timetable, given to me on discharge, would be exactly as it was on the sheet. I'm now down to 8mg per
Dance62
in
PMRGCAuk
4 months ago
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Unexpected visit to A&E
Have angina and as some of you might have read on here took part in ORBITA. 2 trial at Basildon cardiothoratic centre late 2022.. Was given a stent to completely blocked LAD and have been mostly angina free since. Fast forward to this week 3 1/2 weeks post total knee replacement and have had niggling
Have angina and as some of you might have read on here took part in ORBITA. 2 trial at Basildon cardiothoratic centre late 2022.. Was given a stent to completely blocked LAD and have been mostly angina free since. Fast forward to this week 3 1/2 weeks post total knee replacement and have had niggling
annpavitt250448
in
British Heart Foundation
4 months ago
Is it needed and safe for my mom to supplement with folate or B12?
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Jr499
in
Pernicious Anaemia Society
4 months ago
blood tests
hello all I’ve been feeling ill for last few years , fatigued, poor sleep, depression anxiety, weight gain, weight loss, felt like I had palpations. I have had bloods done at gp a few times aways come back normal so I went for tests privately. Results came back as per photo, can anyone advise? What should
hello all I’ve been feeling ill for last few years , fatigued, poor sleep, depression anxiety, weight gain, weight loss, felt like I had palpations. I have had bloods done at gp a few times aways come back normal so I went for tests privately. Results came back as per photo, can anyone advise? What should
MAFSaus
in
Thyroid UK
4 months ago
blood tests
hello all I’ve been feeling ill for last few years , fatigued, poor sleep, depression anxiety, weight gain, weight loss, felt like I had palpations. I have had bloods done at gp a few times aways come back normal so I went for tests privately. Results came back as per photo, can anyone advise? What should
hello all I’ve been feeling ill for last few years , fatigued, poor sleep, depression anxiety, weight gain, weight loss, felt like I had palpations. I have had bloods done at gp a few times aways come back normal so I went for tests privately. Results came back as per photo, can anyone advise? What should
MAFSaus
in
Thyroid UK
4 months ago
Gaurdant blood test
My test revealed a mutation called Andorogen receptor Amplification. This explains how it went from my L2 to my rib, femurs, and lower back. My doctor did not say why or how this information will benefit my treatment, so I really don't get it. Just waiting g for approval to start PLUVITCO. Any
My test revealed a mutation called Andorogen receptor Amplification. This explains how it went from my L2 to my rib, femurs, and lower back. My doctor did not say why or how this information will benefit my treatment, so I really don't get it. Just waiting g for approval to start PLUVITCO. Any
crony
in
Advanced Prostate Cancer
4 months ago
TSH and T4 readings
Hi All I’m new to the thyroid community on Health Unlocked and have a question. I was diagnosed with under active thyroid about two years ago and was put on 25 micrograms of Levothyroxine. My last test result was TSH 7.4 and T4 was 14. My gp won’t test T3 as he says it’s the T4 that’s important and
Hi All I’m new to the thyroid community on Health Unlocked and have a question. I was diagnosed with under active thyroid about two years ago and was put on 25 micrograms of Levothyroxine. My last test result was TSH 7.4 and T4 was 14. My gp won’t test T3 as he says it’s the T4 that’s important and
Bladerun
in
Thyroid UK
4 months ago
new blood test
i had test on the 11th of this month and tsh was 2.81 and because i felt hyrthyroide i repeted the test toay and this is the resaults ft4 is 1734 [12-22] tsh is 4.70 [27-4.2] and t3 i s 3.77[3.11- 5.8 i also did tpo 284.8 [34 iu/ ml] why d i get irregular heart beats and al this other symptoms?
i had test on the 11th of this month and tsh was 2.81 and because i felt hyrthyroide i repeted the test toay and this is the resaults ft4 is 1734 [12-22] tsh is 4.70 [27-4.2] and t3 i s 3.77[3.11- 5.8 i also did tpo 284.8 [34 iu/ ml] why d i get irregular heart beats and al this other symptoms?
morcan54
in
Thyroid UK
4 months ago
High FT4 level
My recent blood test showed my TSH level to be 0.6 miu/l and FT4 was 17.3 pmol/l. My GP has advised me to lower my levothyroxine from 125micrograms to 100 micrograms daily. I have been hypothyroid for 14 years now but just recently have been feeling anxious,agitated and stressed for no apparent reason
My recent blood test showed my TSH level to be 0.6 miu/l and FT4 was 17.3 pmol/l. My GP has advised me to lower my levothyroxine from 125micrograms to 100 micrograms daily. I have been hypothyroid for 14 years now but just recently have been feeling anxious,agitated and stressed for no apparent reason
theminiaturist
in
Thyroid UK
4 months ago
8 months post Nstemi and quadruple CABG
it’s not all been a linear progress but it has been pretty darn good. Back ggedt issue I’ve had is with my statins. I thought it was the Bisoprolol (1.25mg ) and ramipril (half a 1.25mg tablet) that was making me dizzy , fatigued and zombie like every afternoon to early evening. Plus I had cognitive
it’s not all been a linear progress but it has been pretty darn good. Back ggedt issue I’ve had is with my statins. I thought it was the Bisoprolol (1.25mg ) and ramipril (half a 1.25mg tablet) that was making me dizzy , fatigued and zombie like every afternoon to early evening. Plus I had cognitive
DWizza
in
British Heart Foundation
4 months ago
T3 only blood results
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
RydeBeach
in
Thyroid UK
4 months ago
TSH blood test
Hello everyone, I've got my TSH three month follow up blood test result. I followed all advice and had test done early morning (7.35am) after fasting for 12 hours. My question is,if my result is 1.9 at its highest point. What would my reading be if I measured it mid afternoon after eating? Does the result
Hello everyone, I've got my TSH three month follow up blood test result. I followed all advice and had test done early morning (7.35am) after fasting for 12 hours. My question is,if my result is 1.9 at its highest point. What would my reading be if I measured it mid afternoon after eating? Does the result
Ticman
in
Thyroid UK
4 months ago
Hypothyroidism & Test Result help Plz
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
I’ve been having various problems over the years since 2019 ! I was diagnosed with Hypothyroidism back in 1995 & im now 54 & female. I have seen a private endocrinologist before & am thinking again of recontacting again because of how unwell I am. Had my Thyroid panel done on 25/03/2024 first thing
Toto88
in
Thyroid UK
4 months ago
New Drug may be relevant to MF, ET
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
EPguy
in
MPN Voice
4 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
4 months ago
NAFLD and Fatigue
Hello! I’m new here and learning so much reading through all of the posts on this forum. I was recently diagnosed with non-alcoholic fatty liver disease (steatosis of the liver I believe is my diagnosis) after blood tests showing elevated liver enzymes and an ultrasound scan. From what my GP says, my
Hello! I’m new here and learning so much reading through all of the posts on this forum. I was recently diagnosed with non-alcoholic fatty liver disease (steatosis of the liver I believe is my diagnosis) after blood tests showing elevated liver enzymes and an ultrasound scan. From what my GP says, my
Hidden
in
British Liver Trust
4 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve helped me understand a lot…but am very aware there’s lots more to get my head around, so thanks for being here! now am about to have this IV
Barnclown
in
Restless Legs Syndrome
4 months ago
High IgM and other markers
Hi, just had some more blood tests and my globulin and IgM levels are high. I understand they're linked with autoimmune and inflammatory conditions. Has anyone else experienced this after a recent PA diagnosis? Thanks.
Hi, just had some more blood tests and my globulin and IgM levels are high. I understand they're linked with autoimmune and inflammatory conditions. Has anyone else experienced this after a recent PA diagnosis? Thanks.
Myoldcat
in
Pernicious Anaemia Society
4 months ago
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