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Blood-coagulation factor XIII
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Radiation Proctitis looking for advise please.
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
Bettys-rose
in
Pelvic Radiation Disease Association
5 months ago
PMR/GCA and Sjogrens disease
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Does anyone have Sjogren’s disease along with PMR/CGA? For months I’ve been struggling with worsening vision in my left eye, and trying to figure out if I was having a flare. The left eye vision is like it was before cataract surgery, worse some times than others, especially after reading. Opthomologist
Mstiles
in
PMRGCAuk
4 days ago
Would I absorb B12 in tablet form if I had PA?
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all they can, confirmed by private GP. The guidelines now assume iron loss is related to periods... except mine are very light and only last a day so
WitchingHour2point0
in
Pernicious Anaemia Society
8 days ago
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high mcv on blood work
Hello all, so I got my blood work cbc back on line today and my MCV is at 101 higher than before ,platelets are at 227 closer to the bottom range and my hemoglobin is 14.5 range and RDW is at the bottom line of range 11.7. I visit my Dr. on the 2nd next week. my liver enzymes are high as well alt and
Hello all, so I got my blood work cbc back on line today and my MCV is at 101 higher than before ,platelets are at 227 closer to the bottom range and my hemoglobin is 14.5 range and RDW is at the bottom line of range 11.7. I visit my Dr. on the 2nd next week. my liver enzymes are high as well alt and
JesusMercy60
in
Pernicious Anaemia Society
21 days ago
Confusing biopsy results
I was diagnosed with PA early 2023 after years of feeling hopeless and helpless, ( raised MCV , low 'normal' serum B12, positive Parietal Cell antibodies, no intrinsic factor antibodies) and I am SI B12 regularly, to which I am responding well, and finally starting to feel like I am coming out the
I was diagnosed with PA early 2023 after years of feeling hopeless and helpless, ( raised MCV , low 'normal' serum B12, positive Parietal Cell antibodies, no intrinsic factor antibodies) and I am SI B12 regularly, to which I am responding well, and finally starting to feel like I am coming out the
DiSews
in
Pernicious Anaemia Society
23 days ago
Diarrhoea can be a symptom of vitamin B12 deficiency!
So if you get these other symptoms or a number of them as well, it's worth getting your B12 checked out with a doctor. The symptoms are: *Rapid breathing or shortness of breath *Headaches *Indigestion *Loss of appetite *Palpitations *Vision problems *Weakness and/or tiredness
So if you get these other symptoms or a number of them as well, it's worth getting your B12 checked out with a doctor. The symptoms are: *Rapid breathing or shortness of breath *Headaches *Indigestion *Loss of appetite *Palpitations *Vision problems *Weakness and/or tiredness
Luisa22
in
IBS Network
25 days ago
Intrinsic factor
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
I seem to be at a sticking point with the findings of the intrinsic factor test. This is due to the way they now interpret the test results. My test result was Au/ml 1.63 ... Which I jumped with joy over as I thought "at last, this proves I have been telling the truth". How wrong I was. It is no longer
Allywales8663
in
Pernicious Anaemia Society
1 month ago
Eye problems following catheter ablation
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
I am now 10 weeks post catheter ablation.Following the procedure I developed aura migraines daily for around 10 days. The fact sheets explained that this was a possible complication and should rectify itself, which it did and 🤞 I have not had any migraines since. I have now developed a bloodshot patch
Karendeena
in
Atrial Fibrillation Support
1 month ago
How overcome a high B12 test from when I must supplement to function?
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Both intrinsic factor and parietal antibody tests were positive ("abnormal") with B12 >2000. Methylmalonic Acid is normal at .28. I have Hashimoto's and other autoimmune conditions and I recently learned my mom was being treated for PA when she passed. After suffering so many of the symptoms of PA for
Pamelayne
in
Pernicious Anaemia Society
2 months ago
Intrinsic Factor result
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
bit disappointing it didn’t come back positive., but I know they don’t always accurately reflect the underlying condition.It also means my pernicious anaemia could be due to long term use of PPIs rather than autoimmune gastritis. (By the way stopped PPIs in December last year) .
Chickens44
in
Pernicious Anaemia Society
2 months ago
Seeking Diagnostic/Treatment Ideas
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
As an American living among far less progressive standards I’m so glad to discover this community. I’ve been trying to focus my brain cells to make this brief as I can. Thanks in advance for your generous reading. I’m a 60 year-old female who has for five years reported memory and cognition changes
Pamelayne
in
Pernicious Anaemia Society
2 months ago
Hi, I'm sure it's been answered before,but can't seem to locate...is it OK to test for I.Factor after loading doses please? If not why?
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Hi, I've had one Intrinsic factor test before which came in under range. I know its a test that can take a few times to show up.pisitive & kick myself for not trying it again before this loading dose. Was concerned at asking for tests for other things & forgot about this...appreciate any thoughts & would
Jo5454
in
Pernicious Anaemia Society
3 months ago
hashimotos and b12
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
hi everyone, I’m a member of thyroid uk amongst other issues I’m having trouble getting a loading dose of b12 as per nice guidelines. One of thyroids member told me to ask on this forum and id be really grateful for any help offered. I have hashimotos disease, I take 100mcg levo and previously to
Rowing2
in
Pernicious Anaemia Society
3 months ago
I have PA, all was going well, but now they're trying to mess with my b12 perscipton!!!
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Hi all,I'm a long time lurker, but haven't posted myself in a while. About 8 years ago, I was fighting to save my right leg due to bone tumors. 12 surgeries later, I lost that fight. During that time, I started losing weight, tons of anxiety, palpitations ect...This would all be normal reaction to this
Wowo23
in
Pernicious Anaemia Society
3 months ago
Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
3 months ago
child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
4 months ago
Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
4 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
4 months ago
Suspected Pernicious Anemia - what next?
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Hello, I am very glad to have found this forum as I have been researching B12D and PA a lot recently. I became familiar with the society’s website and found it so helpful. I am 29F in the US and I suspect I have Pernicious Anemia. This is what I know so far (sorry in advance if this post rambles on)
Marlowekat
in
Pernicious Anaemia Society
4 months ago
Achilles tendonitis and damage due to antibiotic side effect - odd icy sensation?
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
I have had RA for nearly 10 years, currently on Benepali and Metotrexate injections. Rheumatoid factor 74 and Anti-cpp 600 in 2014 and generally do not score above normal for blood CRP tests (interesting anomaly) even when ultrasound in clinic reviews shows inflammation. As well as small joint hand
Braecoon
in
NRAS
4 months ago
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