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Joe R
My name is Joe I'm 50 and I've had MS since 1997. I've been on Rebif for the better part of 11 years, Until I started OCREVUS 2 years ago, after first dose it seemed to be helping but not so much anymore. The Dr diagnosed me with secondary progressive MS about 6 1/2 years ago. I've been to Jefferson
My name is Joe I'm 50 and I've had MS since 1997. I've been on Rebif for the better part of 11 years, Until I started OCREVUS 2 years ago, after first dose it seemed to be helping but not so much anymore. The Dr diagnosed me with secondary progressive MS about 6 1/2 years ago. I've been to Jefferson
Russso
in
My MSAA Community
7 years ago
Cetrotide..... OH MY GOD, SO ITCHY!!!!
My stomach around the injection site is all red and itchy :( I've only been doing the cetrotide for 2 days and I've had to cool it down with ice, but my god, SO itchy! Anyone got any recommendations? Can I use E45 cream on the site?
My stomach around the injection site is all red and itchy :( I've only been doing the cetrotide for 2 days and I've had to cool it down with ice, but my god, SO itchy! Anyone got any recommendations? Can I use E45 cream on the site?
Pandash
in
Fertility Network UK
7 years ago
Support Tips
Hi ladies, I am new to the page and was looking for some advice. My mother in law has just been diagnosed with Stage 4 and is beginning chemo next week. Can you give us any hints or tips on what to expect over the coming weeks? I was hoping to put together a kit with things that might give some relief
Hi ladies, I am new to the page and was looking for some advice. My mother in law has just been diagnosed with Stage 4 and is beginning chemo next week. Can you give us any hints or tips on what to expect over the coming weeks? I was hoping to put together a kit with things that might give some relief
spring17
in
OvaCare
7 years ago
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Medicine
What everyone taking for there MS?? Me just started tecfidera 2 days ago after Using rebif for a while
What everyone taking for there MS?? Me just started tecfidera 2 days ago after Using rebif for a while
Lay24
in
My MSAA Community
7 years ago
Shingles and fucidin
I have shingles since 24th Dec. Some are still weeping on my back despite being treated with Acicllovir. My GP has prescribed Fucidin today. When I applied it the shingles have become redder and stinging. I saw on one website that Fucidin is not recommended for shingles. Advice please.
I have shingles since 24th Dec. Some are still weeping on my back despite being treated with Acicllovir. My GP has prescribed Fucidin today. When I applied it the shingles have become redder and stinging. I saw on one website that Fucidin is not recommended for shingles. Advice please.
Paidraigin
in
CLL Support
7 years ago
Hand eczema
I had it for few years usually after intensive housework (in gloves) only on fingers of left hand. It would usually calm down in day or two. But since this summer it got constant and getting worst. Even after swimming it would be red and irritated. Since September my GP was giving me steroid based
I had it for few years usually after intensive housework (in gloves) only on fingers of left hand. It would usually calm down in day or two. But since this summer it got constant and getting worst. Even after swimming it would be red and irritated. Since September my GP was giving me steroid based
Vrboska
in
Eczema Association of Australasia Inc
7 years ago
Itching !!!
Hello everyone - I wonder if anyone can help me alleviate this horrendous itching-- it is driving me mad --GP prescribed anti allergy tablets and Dermol cream but they don't help !! I was diagnosed with NASH ( non alcohol stearate hepatitis ) or Fatty Liver Disease three years ago and am being managed
Hello everyone - I wonder if anyone can help me alleviate this horrendous itching-- it is driving me mad --GP prescribed anti allergy tablets and Dermol cream but they don't help !! I was diagnosed with NASH ( non alcohol stearate hepatitis ) or Fatty Liver Disease three years ago and am being managed
Esmerelda62
in
British Liver Trust
7 years ago
Psoriasis delay
Waiting times are very bad in Angus. Had a letter telling me my referral to dermatologist would be 20 weeks not 12!!! My psoriasis was very bad but I find the best for me is using Epaderm cream (from doc regularly ( daily )to keep skin moist and covering myself with Exorex lotion. It works better
Waiting times are very bad in Angus. Had a letter telling me my referral to dermatologist would be 20 weeks not 12!!! My psoriasis was very bad but I find the best for me is using Epaderm cream (from doc regularly ( daily )to keep skin moist and covering myself with Exorex lotion. It works better
tallgal
in
Beyond Psoriasis
7 years ago
Happy lumpy lady
Well after just over 2 weeks of using Elocon cream for my DLE lupus scars I can see a significant change, much lighter looking!!! I only need to put a bit of powder on this morning instead of cover up! I feel like a normal lady again!! Merry Christmas to u all and here's to more happy lupus stories on
Well after just over 2 weeks of using Elocon cream for my DLE lupus scars I can see a significant change, much lighter looking!!! I only need to put a bit of powder on this morning instead of cover up! I feel like a normal lady again!! Merry Christmas to u all and here's to more happy lupus stories on
0105luppyabby
in
LUPUS UK
8 years ago
Stopping My MS Therapy
I started Rebif December 2015. The whole year of 2016 I noticed a decline in my abilities. Of course we all face that dreaded fatigue monster. Gradually through 2016 I have been getting more and more tired - to the point of not being able to stay awake. I had my first relapse in like 8 years by experiencing
I started Rebif December 2015. The whole year of 2016 I noticed a decline in my abilities. Of course we all face that dreaded fatigue monster. Gradually through 2016 I have been getting more and more tired - to the point of not being able to stay awake. I had my first relapse in like 8 years by experiencing
amyshif1
in
My MSAA Community
7 years ago
New Lupus Sufferer
Hi I have just been diagnosed with DLE lupus. I have horrible red scars, one on top of my forehead and three on side of my face. I hate them. Lucky I can cover them up and use a brilliant natural concealer called Jane Iredale. I have been using Elocon cream for a week now but haven't noticed much
Hi I have just been diagnosed with DLE lupus. I have horrible red scars, one on top of my forehead and three on side of my face. I hate them. Lucky I can cover them up and use a brilliant natural concealer called Jane Iredale. I have been using Elocon cream for a week now but haven't noticed much
0105luppyabby
in
LUPUS UK
8 years ago
I'm new here. A little bit about me...
Hi, I was diagnosed 2006 with RRMS. I am 50 years old. This year has really been hard on me. I have experience the MS hug about six times so far this year and it seems that each time the MS hug gets more painful and is lasting longer. I also deal with fatigue so great I am having a hard time standing
Hi, I was diagnosed 2006 with RRMS. I am 50 years old. This year has really been hard on me. I have experience the MS hug about six times so far this year and it seems that each time the MS hug gets more painful and is lasting longer. I also deal with fatigue so great I am having a hard time standing
amyshif1
in
My MSAA Community
8 years ago
GODFIDENCE!
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Hello, I was diagnosed with MS in August 2011. I then obtained a second opinion which it was confirmed October 2011. I then began to look for a physician that specialized in MS. In the first meeting with my physician, two of the first questions I asked is, 1.Will I have/need to give up wearing
Kimlovesshoes
in
My MSAA Community
8 years ago
Introduction
Hi all, My name is Mark Graham from Bondurant Iowa. My MS started off as vision problems in 1998. I was diagnosed in 2004 after an MRI showed lesions. I started on Copaxone immediately after the diagnosis. Changed to Tysabri and had one infusion then they took it off the market. Went back to Copaxone
Hi all, My name is Mark Graham from Bondurant Iowa. My MS started off as vision problems in 1998. I was diagnosed in 2004 after an MRI showed lesions. I started on Copaxone immediately after the diagnosis. Changed to Tysabri and had one infusion then they took it off the market. Went back to Copaxone
megraham
in
My MSAA Community
8 years ago
Blisters!
Morning All. I need advice / help. My Lymphoedema is in the legs - very swollen, very heavy and my feet are also swollen and tender. I wear compression garments from the thigh down, and my feet have compression bandages. Been using these for about 7 months now, and have had no problems. In fact my legs
Morning All. I need advice / help. My Lymphoedema is in the legs - very swollen, very heavy and my feet are also swollen and tender. I wear compression garments from the thigh down, and my feet have compression bandages. Been using these for about 7 months now, and have had no problems. In fact my legs
sammyvan
in
LSN
8 years ago
What have you been told about anti biotics and MTX?
Morning guys More stress. I've got another of those little bits of infected finger by the nail - it's not going away despite gallons of salt water iodine and fucidin. only got over the last bout a few weeks ago!! Last time the rheum nurse told me to skip my MTX door a week while I took the fkucloxacillin
Morning guys More stress. I've got another of those little bits of infected finger by the nail - it's not going away despite gallons of salt water iodine and fucidin. only got over the last bout a few weeks ago!! Last time the rheum nurse told me to skip my MTX door a week while I took the fkucloxacillin
Bon1
in
NRAS
8 years ago
CharlesHH
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
Hello, I am a 53 year old male that was diagnosed in 2012 with rrms and is now in a progressive stage. I was on copaxone for 2 years rebif for 1 year and currently on retuxin every 6 months. I have tried every thing to slow the progression but have not found anything to slow it (i.e. diet,exercise,drugs
CharlesHH
in
My MSAA Community
8 years ago
Epaderm cream
Hi, I have discoid eczema according to the dermatologist I have just seen. I am awaiting tests to see what I allergic to. I have suffered with my hands for years and have been using steroid cream for years. Last year I had a bad outbreak which affected my face. This year it has affected the rest of my
Hi, I have discoid eczema according to the dermatologist I have just seen. I am awaiting tests to see what I allergic to. I have suffered with my hands for years and have been using steroid cream for years. Last year I had a bad outbreak which affected my face. This year it has affected the rest of my
Lynne100w
in
MY SKIN
8 years ago
Emollients - Epimax instead of Diprobase
I asked my GP for some more Diprobase, but was refused as my NHS area's formulary no longer lists it. I remembered a nurse using Fifty:50 so asked for that, and it was allowed. The formulary now lists Epimax as the first choice alternative to Aproderm, Aqueous cream, Aquamax, Diprobase cream, E45 cream
I asked my GP for some more Diprobase, but was refused as my NHS area's formulary no longer lists it. I remembered a nurse using Fifty:50 so asked for that, and it was allowed. The formulary now lists Epimax as the first choice alternative to Aproderm, Aqueous cream, Aquamax, Diprobase cream, E45 cream
SmallBlueThing
in
LSN
8 years ago
STD or aniexty?
So this is my story... some have probably heard something similar over and over 😕 I'm not sure if this is my aniexty or something else. I have a long term gf which probably makes this worse. One night after a night out a got together with someone I've known years,we did not have sex just oral sex
So this is my story... some have probably heard something similar over and over 😕 I'm not sure if this is my aniexty or something else. I have a long term gf which probably makes this worse. One night after a night out a got together with someone I've known years,we did not have sex just oral sex
Duke629
in
BASHH
8 years ago
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