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Mouth Ulcers and Taste issue
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
Hi all. I’ve not long been a member here I’ve wrote of my Journey so far before but these issues are a few lingering amongst others. When I eat the food I can eat ( explain that in a minute ) I get pea sized and smaller pimples/ blisters on the roof of my mouth and at the entrance of my throat. It’
BigH63
in
ICUsteps
7 months ago
Issues sleeping, and other things
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
PW_R
in
Lung Conditions Community Forum
3 months ago
How often and duration of the Tass gloves?
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Furch
in
Cure Parkinson's
8 months ago
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Night sweats worse and facial flushing after steroid injection
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
I had a steroid injection last Friday and have had facial flushing and raised bp in the morning and raised pulse since. Sometimes I wake up about 2am sweating with raised pulse and if I move even slightly it shoots up to about 110. It’s very slow to return to normal. Anyone have a similar experience
Gwelos
in
AF Association
8 months ago
Flare up after ear infection
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
I've had ear infection which the doctor gave me antibiotic spray for, thankfully ear pain had gone after a few days, but left with jaw pain, headaches and extreme exhaustion, as soon as I feel a little better I feel I have the energy to do a little bit, then I'm straight down again after the slightest
Bue2
in
Fibromyalgia Action UK
9 months ago
Covid antibodies
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
Hi folks I posted back in October about the Stravinsky Study - research being carried out by The British Society for Immunology into antibody response to Covid vaccinations. I gave my first set of samples on13th October and then had my next Covid booster on 17th October (I'm on Humira). Results are
jbzm
in
NRAS
7 months ago
Swollen knees
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
I have inflammatory arthritis, Osteo arthritis, Sjogrens and now have been diagnosed with FND . I also have/ had Polymyalgia . I had a hip replacement in 2017 and at that time I was suffering with painful knees. I have been on various medications and am on Imraldi and Methotrexate. I
Bailybiscuit
in
NRAS
8 months ago
Anybody left with servere virtigo after covid ?
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
I caught covid after visiting the hospital for an MRI to look at my gastric issues. The virus hit my balance to the extent I wasn't able to walk unaided which I have to say was very disturbing to say the least. Since the virus has cleared I have suffered a few events of vertigo ! I am not the steadiest
Jillymo
in
Pernicious Anaemia Society
7 months ago
Sharp pains in head - lupus related or something else?
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Hi all, I have general nerve pain in my head ever since I had concussion and whiplash seven years ago - so I'll get fibromyalgia shoulders and pains travelling up my scalp, particularly the right side. It's not that troublesome. But since I had my Covid jab three weeks ago I've had a few episodes
Treetop33
in
LUPUS UK
7 months ago
Taste loss
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
AN 22.3mm Recently I have noticed a loss of taste, salty taste on tongue, Was managing with balance, but that seems to have got worse, in the morning I feel fuzzy headed and nausea and on the odd occasion been sick with the nausea. Are all the above side effects of AN, All the above has come together
Rich806
in
Acoustic Neuroma Support
9 months ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
3 months ago
Pneumonia
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Hi. I had my follow up chest x-ray for pneumonia 3 weeks ago and the good news is that it's come back clear. I'm really pleased but I'm still coughing at night and feel a bit breathless in the mornings. I told the doctor when he rang me with the results and he said, the infection has gone but lungs take
Scooby1967
in
Lung Conditions Community Forum
7 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
3 months ago
Bloody Covid can sod off!
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Hi All, Had heart attack/ stent fitted 10 weeks ago & still struggling with side effects of medication. Dropped down to 1 Bisoprolol instead of 2 & this temporarily stopped the dizzy spells & light headedness. But within a couple of weeks they were back again & I just feel like crap most of the time
Washo66
in
British Heart Foundation
7 months ago
Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
6 months ago
Busy, busy, busy!
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
Hello,, everyone! Just thought I'd pop in and say 'Hello!' as i've been really busy lately and not getting much chance to look in at the Forum. I sometimes get chance to read but not much time to respond - only to very few! I had COVID again a few weeks ago which has left me with an aversion to certain
MoyB
in
Lung Conditions Community Forum
7 months ago
Retuximab
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
jopo280886
in
LUPUS UK
6 months ago
Steroids
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
Hi I have PMR ( diagnosed in April this year ) My rheumatologist gave me a steroid injection 3 weeks ago in shoulder for pain ( she was reluctant for me to go back on oral preds because I’m diabetic type 2 ) Anyway the steroids reduced the pain for a short while . Then it was agony ! Finally spoke
TedTheMaineCoon
in
PMRGCAuk
8 months ago
Rituximab
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
does anyone have any advice about the effect of the COVID vaccine on Rituximab. I had my first infusion in July which has been successful for me and given me a pain free life. So don’t want to ‘mess it up by risking Covid vaccine if it has a negative effect. thanks
Welshwomanprestatyn
in
NRAS
7 months ago
Lichenoid Dermatitis
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
I took a statin drug in January 2023 & by end of Feb 2023 I had skin ddiscolorations. In Mar I went to a dermatologist who started treating me with steroids & by May I had a biopsy, it was Lichenoid Dermatitis. It's left ugly, dark splotches on mmeals over with peeling skin. I'm using Dupixent every
Skywriter0
in
MY SKIN
9 months ago
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