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My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
7 months ago
Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
7 months ago
Recovering from Pneumonia
hello, I posted 2 weeks ago about having pneumonia and got some really helpful replies so thank you. I’m 25, asthmatic and started feeling poorly on 17th Jan. I have been back and forwards to the doctors & hospital, had 14 days of antibiotics now and feeling much better with regards to the coughing,
hello, I posted 2 weeks ago about having pneumonia and got some really helpful replies so thank you. I’m 25, asthmatic and started feeling poorly on 17th Jan. I have been back and forwards to the doctors & hospital, had 14 days of antibiotics now and feeling much better with regards to the coughing,
Leanne1b
in
Asthma Community Forum
6 months ago
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GCA and Cough/Interstitial Lung Disease?
Does anyone with GCA have a dry, sometimes productive, cough? It feels like a bronchial irritation and I cough more when I speak. The cough comes and goes. I read that it is an uncommon symptom of GCA. TB has been ruled out. Chest x-rays show opacities in the base of my lungs. The cough occurs
Does anyone with GCA have a dry, sometimes productive, cough? It feels like a bronchial irritation and I cough more when I speak. The cough comes and goes. I read that it is an uncommon symptom of GCA. TB has been ruled out. Chest x-rays show opacities in the base of my lungs. The cough occurs
Moaningxcat
in
PMRGCAuk
2 months ago
i do not know
I take spiriva i have that cough dont know what it is if you read the meds its like may cause asthma coughimg??????????? Things are improving feel better but can break out in cough Ger
I take spiriva i have that cough dont know what it is if you read the meds its like may cause asthma coughimg??????????? Things are improving feel better but can break out in cough Ger
picboy
in
Asthma Community Forum
2 months ago
A suggestion that is working well, for me at least. AT least for now.
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
I think RLS can have several triggers, as well as several things that help. Sometimes it changes and what worked often does not neccessarily work each time. It may work again, but in the meantime, you need something else. Certainly avoiding foods or substances that bother and trigger the RLS, is a
lauraflora
in
Restless Legs Syndrome
7 months ago
CHANGING Room CHAT...WEEK 3.... Taking time out...to...
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Hello, people... ! Welcome to the changing room on this very cold and snowy day here in the Staffs Moorlands. I am a tad late today,,, whizzing around and here and there... and ready for a sit down! Take a seat and a warm or cold drink, and relax. A bit of an odd subject today and one I did not really
Oldfloss
Administrator
in
Strength & Flex
7 months ago
COVID, Pneumonia and healthcare
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
Dear Community, I wanted to update you on my recent experience with COVID-19, pneumonia, and healthcare. I tested positive for COVID 20 days ago and remain symptomatic with cough, fever, chills, and body aches. After 3.5 days of Paxlovid (halted due to drug interactions), I completed five days of
shazie
in
CLL Support
5 months ago
Change of steroid inhaler
This week changed from foster next haler to spiriva.The first few days my cough has seemed much worse with phlegm. Now 6 days cough seems less. Anyone had this experience? Thanks
This week changed from foster next haler to spiriva.The first few days my cough has seemed much worse with phlegm. Now 6 days cough seems less. Anyone had this experience? Thanks
Msccruises
in
Asthma Community Forum
2 months ago
Declined lupus Centre help
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Hi all, hope you're all doing as well as you can be. Just thought I'd give you an update on something that went from being so hopeful to now being left to struggle once again. If you know my previous posts just before Christmas I'd had a steroid injection and was waiting to see professor D'cruz in London
Haylz2109
in
LUPUS UK
7 months ago
Menopause and covid
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Hi. I’m 59 & post menopause for years now but had Covid in December and still getting over it. I’ve noticed that I appear to have hormonal symptoms and a pattern. I’m weepy, get blocked, feel slight ovary pain etc. Was wondering if anyone else experienced this after having Covid? I had slight bleeds
Dham
in
Menopause and Perimenopause Support
7 months ago
New GCA treatment
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
DogAgilityObsessed
in
PMRGCAuk
9 months ago
AT LAST
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
i have finally got a kind of an answer. i went to docs and asked for an X ray on my spine she sent me instead for a CT scan. there are several things going on with my spine. firstly arthritis, secondly i have a bone growth [ spur ] which is touching a nerve, so i am going for a steroid injection
Fingerandus
in
Restless Legs Syndrome
7 months ago
COVID
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Just looking for advice. My wife tested positive for COVID today and is quite ill. I was on a car with her before diagnosis and she was sneezing and coughing alot.My oncologist rang today to say my neutrophil count was 0.75. all other markers ok. He has suggested an injection into stomach as he said
Guinness4822
in
CLL Support
7 months ago
Tired Tavern - Discord server for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
7 months ago
Asthma cough worse
Living near the sea in Spain - heat and humidity and air conditioning?Asthma cough worse over last 4 weeks. Just been referred to hospital and prescribed Spiriva on top of my normal foster nexthaler and ventolin. Anyone in similar situation Thanks
Living near the sea in Spain - heat and humidity and air conditioning?Asthma cough worse over last 4 weeks. Just been referred to hospital and prescribed Spiriva on top of my normal foster nexthaler and ventolin. Anyone in similar situation Thanks
Msccruises
in
Asthma Community Forum
2 months ago
Covid vaccine decision time…
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
According to this article (link below) older unvaccinated people have been hit particularly hard by Covid and are greatly at risk. I read elsewhere that the last date for getting the jab is 31st January for all ages. I haven’t been vaccinated since the end of 2021 but I’m thinking it’s time to have the
Samazeuilh2
in
Atrial Fibrillation Support
7 months ago
nasal cannula
Hi there, I have recently been commenced on oxygen. i have started with a runny nose and cold. Should I change my cannula after my cold has cleared or does this just apply to chest infections?
Hi there, I have recently been commenced on oxygen. i have started with a runny nose and cold. Should I change my cannula after my cold has cleared or does this just apply to chest infections?
getiton
in
Lung Conditions Community Forum
2 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
9 months ago
Bad reaction to progynova
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
hi, has one experienced a bad reaction to taking progynova? I’ve got a large red raw hand rash and swollen eyes because of this had to cancel my planned fet😩 seems like I have an allergy
keepfaith1982
in
Fertility Network UK
6 months ago
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