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Bladder catheterisation
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Facing decision
Has anyone faced the decision I am dealing with. I am on taxotere completed my 5th treatment but it is just making my life miserable . I am in constant muscle and nerve pain and it now has affected my bladder. I am trying to decide whether to stop the treatment because I have no quality of life even
Has anyone faced the decision I am dealing with. I am on taxotere completed my 5th treatment but it is just making my life miserable . I am in constant muscle and nerve pain and it now has affected my bladder. I am trying to decide whether to stop the treatment because I have no quality of life even
Scootman
in
Advanced Prostate Cancer
3 years ago
Prolapse
Good morning all, I've recently been told that I have a UV grade 3 prolapse and only found this out during have a coil fitted under general anaesthetic,I've been suffering with urinary urgency and problems since having surgery for Vulva cancer in 2019 and was put on solifienct but never saw the urogynaecologist
Good morning all, I've recently been told that I have a UV grade 3 prolapse and only found this out during have a coil fitted under general anaesthetic,I've been suffering with urinary urgency and problems since having surgery for Vulva cancer in 2019 and was put on solifienct but never saw the urogynaecologist
Minster30
in
Bladder Health UK
3 years ago
Nefopam overdose?
I’ve had a rough week and had what felt like convulsions Wednesday night - felt rough all yesterday as well just quite sleepy then thought this morning I should check my doses of tablets and side effects. I’ve been taking 3 x 30mg of Nefopam instead of 2 x 30mg of Nefopam three times a day for at least
I’ve had a rough week and had what felt like convulsions Wednesday night - felt rough all yesterday as well just quite sleepy then thought this morning I should check my doses of tablets and side effects. I’ve been taking 3 x 30mg of Nefopam instead of 2 x 30mg of Nefopam three times a day for at least
KateOB1
in
Pain Concern
3 years ago
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3 year old toilet refusal following constipation
We have a three year old little girl who is full of fun but very head strong. Our concern is around her toilet training. We started training her over a year ago. In hindsight it was too early. She hated her nappy being changed and there was some pressure from her creche. She avoids going to the toilet
We have a three year old little girl who is full of fun but very head strong. Our concern is around her toilet training. We started training her over a year ago. In hindsight it was too early. She hated her nappy being changed and there was some pressure from her creche. She avoids going to the toilet
Nollaig1
in
ERIC
3 years ago
Has anyone refused any assessment tests?
What a crazy question eh, refusing tests needed to put you on transplant list? My brother is refusing to have a right heart catheterisation (like an angiogram). This may mean they won’t put him on list as they can’t be sure his heart is strong enough. I am at a loss. Will they definitely say it’s a no
What a crazy question eh, refusing tests needed to put you on transplant list? My brother is refusing to have a right heart catheterisation (like an angiogram). This may mean they won’t put him on list as they can’t be sure his heart is strong enough. I am at a loss. Will they definitely say it’s a no
Hidden
in
British Liver Trust
3 years ago
FAPI
Hello! Based on these old (1 years and 2 years ago) very interesting posts I have tried to found information of FAPI. https://healthunlocked.com/advanced-prostate-cancer/posts/142271409/beyond-psma-fapi-theranostics https://healthunlocked.com/advanced-prostate-cancer/posts/140950081/new-radiotracer-can-identify-nearly
Hello! Based on these old (1 years and 2 years ago) very interesting posts I have tried to found information of FAPI. https://healthunlocked.com/advanced-prostate-cancer/posts/142271409/beyond-psma-fapi-theranostics https://healthunlocked.com/advanced-prostate-cancer/posts/140950081/new-radiotracer-can-identify-nearly
TheTopBanana
in
Advanced Prostate Cancer
3 years ago
Umbilical bleeding still waiting for op
I am still yet to be seen for my larcascopy to determine whether I have umbilical endrimitriotious, it’s been over a year now and I’m still just being left in the dark! Had my scan back in March and haven’t even heard from my gynaecologist still. Has anyone managed to get there operation via NHS?
I am still yet to be seen for my larcascopy to determine whether I have umbilical endrimitriotious, it’s been over a year now and I’m still just being left in the dark! Had my scan back in March and haven’t even heard from my gynaecologist still. Has anyone managed to get there operation via NHS?
KiteRunner123
in
Endometriosis UK
3 years ago
Gallbladder pain
On the waiting list to have my gallbladder removed & the drs have given me morphine to help with the pain (which isn’t working) has anyone got any tips to help ease pain
On the waiting list to have my gallbladder removed & the drs have given me morphine to help with the pain (which isn’t working) has anyone got any tips to help ease pain
Melissaf96
in
British Liver Trust
3 years ago
No endometriosis after laproscopy. Please need advice 😔
Hi everyone, had a laproscopy yesterday after being told possibility of endometriosis, nothing was found and I'm feeling really down and disheartened. I saw a private consultant last year who was positive that's what it was and I was put on the NHS list. When I saw the NHS Dr, who is much younger than
Hi everyone, had a laproscopy yesterday after being told possibility of endometriosis, nothing was found and I'm feeling really down and disheartened. I saw a private consultant last year who was positive that's what it was and I was put on the NHS list. When I saw the NHS Dr, who is much younger than
Alfie81
in
Endometriosis UK
3 years ago
improved catheter
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
spencoid2
in
Advanced Prostate Cancer
3 years ago
How's It Going With Darolutamide?
I've been taking it for three weeks; no results yet, no side effects. I notice that on Posts from a year ago, two people were taking it, or were about to. They were Danielgreer (had been taking it for two months then) and wat380bjw (about to start). If you're still there, can you describe your experience
I've been taking it for three weeks; no results yet, no side effects. I notice that on Posts from a year ago, two people were taking it, or were about to. They were Danielgreer (had been taking it for two months then) and wat380bjw (about to start). If you're still there, can you describe your experience
yeatz
in
Advanced Prostate Cancer
3 years ago
What to do when in remission?
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
lewicki
in
Advanced Prostate Cancer
3 years ago
Late ADT a Problem in Prostate Cancer — Late dosing of LHRH agonists happens too frequently: MedPage Today April 22, 2021
Make sure to count [i]
days
[/i] and not months between ADT injections. Interesting article on the importance of counting days not months when scheduling ADT injections. (In order to maintain continual suppression of testosterone.)This would also suggest one place a very high priority on not missing
Make sure to count [i]
days
[/i] and not months between ADT injections. Interesting article on the importance of counting days not months when scheduling ADT injections. (In order to maintain continual suppression of testosterone.)This would also suggest one place a very high priority on not missing
cujoe
in
Fight Prostate Cancer
3 years ago
Bladder infections and burning vagina
Hello I still haven’t been diagnosed with my condition however is anyone suffering with reoccurring bladder infections? And burning pain around vagina and pinching like feeling around anus? What do you do for relief? How did you get your diagnosis? I have seen my GP so many times but I’m not getting
Hello I still haven’t been diagnosed with my condition however is anyone suffering with reoccurring bladder infections? And burning pain around vagina and pinching like feeling around anus? What do you do for relief? How did you get your diagnosis? I have seen my GP so many times but I’m not getting
Pink177
in
Pelvic Pain Support Network
3 years ago
Stressed and Confused
Hi All, This is my first time posting. Just went for a Coronary CT Angiogram and was told I have what looks like a 50 percent blockage in one of the arteries into my heart (not sure which one). On two occasion in the last year I've had some mild / chest arm pain for about 5-10 minutes, and thought it
Hi All, This is my first time posting. Just went for a Coronary CT Angiogram and was told I have what looks like a 50 percent blockage in one of the arteries into my heart (not sure which one). On two occasion in the last year I've had some mild / chest arm pain for about 5-10 minutes, and thought it
Jmob
in
British Heart Foundation
3 years ago
Is it a prolapse
Hi guys, I've had severe stabbing pain since February, doctors first told me it was a prolapse then others said it shouldn't hurt so much. After going to so many doctors back an forth it just got worse and my right leg started to really hurt, to the point I couldn't walk on it. I was then diagnosed with
Hi guys, I've had severe stabbing pain since February, doctors first told me it was a prolapse then others said it shouldn't hurt so much. After going to so many doctors back an forth it just got worse and my right leg started to really hurt, to the point I couldn't walk on it. I was then diagnosed with
Taluh
in
Pelvic Pain Support Network
3 years ago
Mixed Results for Immunotherapy in Metastatic Prostate Cancer
"Ten of 35 (28.6%) patients responded to the combination of nivolumab (Opdivo) and ipilimumab (Yervoy). The activity fell short of the 40% threshold for a positive outcome but well above the historical response rate for immunotherapy in patients previously treated with docetaxel." "In analysis of response
"Ten of 35 (28.6%) patients responded to the combination of nivolumab (Opdivo) and ipilimumab (Yervoy). The activity fell short of the 40% threshold for a positive outcome but well above the historical response rate for immunotherapy in patients previously treated with docetaxel." "In analysis of response
snoraste
in
Advanced Prostate Cancer
3 years ago
Salvage Cryoablation
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
Deadstick
in
Advanced Prostate Cancer
3 years ago
AZ jab and GCA symptoms
Yesterday I had low level GCA symptoms - painful chewing, slight temple headache, and a little scalp soreness. These have gone today but I'm slightly worried as I'm due to have 2nd AZ jab on Sunday and fear that may bring back the symptoms. I'm currently on 11.5 mg pred and have enough stashed to
Yesterday I had low level GCA symptoms - painful chewing, slight temple headache, and a little scalp soreness. These have gone today but I'm slightly worried as I'm due to have 2nd AZ jab on Sunday and fear that may bring back the symptoms. I'm currently on 11.5 mg pred and have enough stashed to
maria40
in
PMRGCAuk
3 years ago
Protein in Urine should I be concerned?
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
CJT37
in
LUPUS UK
3 years ago
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