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Hard time urinating and weak stream
Hi everyone, my Dad started having hard time urinating, he needs to push to get it started and has a weak stream. The PSMA scan back in June 2022 did show some residual cancer in the left side of prostate gland but we were told that the radiation and Zytiga are still working and will eventually get rid
Hi everyone, my Dad started having hard time urinating, he needs to push to get it started and has a weak stream. The PSMA scan back in June 2022 did show some residual cancer in the left side of prostate gland but we were told that the radiation and Zytiga are still working and will eventually get rid
Simonapo
in
Advanced Prostate Cancer
2 years ago
Update on shoulder surgery
A few weeks ago when I posted that I was having a difficult time with my PMR journey many of you replied with positive thoughts and support. That helped me so much. I mentioned at the time that I was awaiting shoulder surgery and some of you asked me to let you know how I got on. I had the surgery
A few weeks ago when I posted that I was having a difficult time with my PMR journey many of you replied with positive thoughts and support. That helped me so much. I mentioned at the time that I was awaiting shoulder surgery and some of you asked me to let you know how I got on. I had the surgery
Tiggy70
in
PMRGCAuk
2 years ago
BIOPSY, GLEASON SCORES, mines 4+5=9 or grade 5..............QUESTION?
hi everyone My prostate biopsy was taken, The surgen took 8 cores(4mm) He said he was taking them from the side with the lesion 8 out of 8 had cancer I was given gleason score of 4+5=9 After lots of looky and learny. Gleason score has massive impact on treatment and decisions. I.e. a gleason
hi everyone My prostate biopsy was taken, The surgen took 8 cores(4mm) He said he was taking them from the side with the lesion 8 out of 8 had cancer I was given gleason score of 4+5=9 After lots of looky and learny. Gleason score has massive impact on treatment and decisions. I.e. a gleason
Mrtroxely
in
Advanced Prostate Cancer
2 years ago
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PMSA PET SCAN , pet scan? Ive asked on cologist and said it would not be of benifit???
my diagnosis was T3N0M1 gleason 4+5=9 I asked what test they did to see the nodes were N0??? Oncologist said It was the mri of my pelvice. So I asked about the spread else where and if I could have a scan? Answer was there would be no benifit to this.... So after reading, watching, listening
my diagnosis was T3N0M1 gleason 4+5=9 I asked what test they did to see the nodes were N0??? Oncologist said It was the mri of my pelvice. So I asked about the spread else where and if I could have a scan? Answer was there would be no benifit to this.... So after reading, watching, listening
Mrtroxely
in
Advanced Prostate Cancer
2 years ago
provenge in the metastatic hormone sensitive PCa patient
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Brysonal
in
Advanced Prostate Cancer
2 years ago
My offered treatments for my intermediate prostate cancer
1. Prostatectomy (Remove prostate). 2. External radiation beam(using spaceoar). 3. Sound waves-HIFU 4. Cryotherapy (Freezing ) 1 is not an option for me right now. Leaning Radiation or Sound waves. Feedback is welcomed. Thank you.
1. Prostatectomy (Remove prostate). 2. External radiation beam(using spaceoar). 3. Sound waves-HIFU 4. Cryotherapy (Freezing ) 1 is not an option for me right now. Leaning Radiation or Sound waves. Feedback is welcomed. Thank you.
BB_1
in
Advanced Prostate Cancer
2 years ago
Has anyone experienced interrupting Actemra for a general anaesthetic?
I take my Actemra injection every 3 weeks now and it's due tomorrow. I heard today that I have an appointment for a routine, 3-yearly, colonoscopy in 13 days time and I will see the anaesthetist on Monday. In France colonoscopies are always done with GA and usually it's a 10-15 minute procedure and you
I take my Actemra injection every 3 weeks now and it's due tomorrow. I heard today that I have an appointment for a routine, 3-yearly, colonoscopy in 13 days time and I will see the anaesthetist on Monday. In France colonoscopies are always done with GA and usually it's a 10-15 minute procedure and you
Frenchduck
in
PMRGCAuk
2 years ago
Psa drop with modified citrus pectin and lycopene and keepin Psa low to cover my uncertainty
after having 3consecutive rises of around .5 Psa very 2 mos. For 6 mos I started about 7 g of modified citrus pectin and lycopene Dailey and Psa dropped from 3.3 to 2.78 in a period about a month . Hope it’s cancer kill and just dormancy or just a Psa drop. Can’t be proved without a scan and big pharm
after having 3consecutive rises of around .5 Psa very 2 mos. For 6 mos I started about 7 g of modified citrus pectin and lycopene Dailey and Psa dropped from 3.3 to 2.78 in a period about a month . Hope it’s cancer kill and just dormancy or just a Psa drop. Can’t be proved without a scan and big pharm
rococo
in
Advanced Prostate Cancer
2 years ago
Genomic testing of the primary tumor, or a metastasis? What Gens or ARN or what is to be tested ?
I am mCRPC my urologist wants to biopsy the prostate to have data for immunotherapy if it suits me. Pembrolizumab, Olaparib, whatever I have read about TILs, and wonder if anywhere it is available, as if I am biopsied, there will be samples to work with, eventually. Is there a list of Genes, ADN
I am mCRPC my urologist wants to biopsy the prostate to have data for immunotherapy if it suits me. Pembrolizumab, Olaparib, whatever I have read about TILs, and wonder if anywhere it is available, as if I am biopsied, there will be samples to work with, eventually. Is there a list of Genes, ADN
Manilo
in
Advanced Prostate Cancer
2 years ago
Seeking advice for father (71) recently diagnosed with stage 4 PC.
Hi everyone, My father (71) was recently diagnosed with stage 4 PC, so far a single met to the Lung and 3 to the Kidney (2 nodes and 1 larger 3.5cm lesion) discovered. Nothing in the bones, lymph nodes or elsewhere discovered (yet). A little bit of history: - 7 months ago had a normal PSA test.
Hi everyone, My father (71) was recently diagnosed with stage 4 PC, so far a single met to the Lung and 3 to the Kidney (2 nodes and 1 larger 3.5cm lesion) discovered. Nothing in the bones, lymph nodes or elsewhere discovered (yet). A little bit of history: - 7 months ago had a normal PSA test.
MJSAZA
in
Advanced Prostate Cancer
2 years ago
PROSTATE CANCER TREATMENT
I STARTED LHRH INJECTIONS IN APRIL AT ONCE A MONTH WHICH BROUGHT MY PSA LEVEL FROM 231 TO 1.3 . I AM NOW ON ANOTHER MEDICATION CALLED AMPLITUDE AND MY LHRH NOW EVERY 3 MTHS. HAS ANYONE BEEN ON THIS AS A BIT CONCERNED WITH SIDE AFFECTS AND ALSO IT CAN REACT TO OTHER MEDICATION THAT I AM ON. WOULD
I STARTED LHRH INJECTIONS IN APRIL AT ONCE A MONTH WHICH BROUGHT MY PSA LEVEL FROM 231 TO 1.3 . I AM NOW ON ANOTHER MEDICATION CALLED AMPLITUDE AND MY LHRH NOW EVERY 3 MTHS. HAS ANYONE BEEN ON THIS AS A BIT CONCERNED WITH SIDE AFFECTS AND ALSO IT CAN REACT TO OTHER MEDICATION THAT I AM ON. WOULD
TONNEY
in
Advanced Prostate Cancer
2 years ago
Pleurex Chest Drain Removal
Hi everyone,I had a pleurex chest drain fitted in June so we could drain my pleural effusions at home and since then (also started weekly taxol) the fluid has reduced and there has been nothing to drain for 3 weeks. I've really struggled with this drain from the day it was fitted as body has fought
Hi everyone,I had a pleurex chest drain fitted in June so we could drain my pleural effusions at home and since then (also started weekly taxol) the fluid has reduced and there has been nothing to drain for 3 weeks. I've really struggled with this drain from the day it was fitted as body has fought
doodoolatrice
in
My Ovacome
2 years ago
Pain due to injury
hi had a bad jerk and twisted my top half but lower body didn’t move 🤦🏻♀️I have been in pain down right side of breast and under breast very sharp pain going slightly round to back tried ibruffon pain killers been over 2 weeks could this have been muscle damage seems to be taken so long to recover
hi had a bad jerk and twisted my top half but lower body didn’t move 🤦🏻♀️I have been in pain down right side of breast and under breast very sharp pain going slightly round to back tried ibruffon pain killers been over 2 weeks could this have been muscle damage seems to be taken so long to recover
Raddi1
in
Fibromyalgia Action UK
2 years ago
diarrhoea morning only
hi. My daughter is 20 and on fluoxetine a year for severe health anxiety and general anxiety A few weeks ago she complained of pain lower left side so I was treating as muscular as she said she’d no other symptoms. Week ago she announced her stools are loose first thing in morning only ( when she’d
hi. My daughter is 20 and on fluoxetine a year for severe health anxiety and general anxiety A few weeks ago she complained of pain lower left side so I was treating as muscular as she said she’d no other symptoms. Week ago she announced her stools are loose first thing in morning only ( when she’d
Defong
in
IBS Network
2 years ago
Can you qualify for Lu 177 without doing chemotherapy and how?
In the USA, can you get or chose chemotherapy or Lu 177 as a treatment option? Are there any qualifications? Instead of doing chemo can an advanced metastatic prostate cancer patient or a new diagnosed advanced metastatic prostate cancer patient whom had one dose of chemotherapy with a bad reaction
In the USA, can you get or chose chemotherapy or Lu 177 as a treatment option? Are there any qualifications? Instead of doing chemo can an advanced metastatic prostate cancer patient or a new diagnosed advanced metastatic prostate cancer patient whom had one dose of chemotherapy with a bad reaction
Shorehousejam
in
Advanced Prostate Cancer
2 years ago
Interpretation of PSMA PET results
So my recent history is this: Dec 2018: began ADT vacation (intermittent lupron/zytiga) after whole-pelvic EBRT mid-Aug 2021: PSA has risen enough to resume ADT. Receive [i]
F-18 scan in Stanford
[/i]; among 2-3 other very small loco-regional mets, we have an isolated liver spot, SUV 16.3, w/
So my recent history is this: Dec 2018: began ADT vacation (intermittent lupron/zytiga) after whole-pelvic EBRT mid-Aug 2021: PSA has risen enough to resume ADT. Receive [i]
F-18 scan in Stanford
[/i]; among 2-3 other very small loco-regional mets, we have an isolated liver spot, SUV 16.3, w/
lokibear0803
in
Advanced Prostate Cancer
2 years ago
nefopam and glaucoma
Hi I am a health care assistant and I have been diagnosed with arthritis in my hips. My GP prescribed nefopam and I thought nothing of it. Since starting the nefopam I have not been able to sleep. My main concern is that I have acute angle closure glaucoma and I am worried about what damage it might
Hi I am a health care assistant and I have been diagnosed with arthritis in my hips. My GP prescribed nefopam and I thought nothing of it. Since starting the nefopam I have not been able to sleep. My main concern is that I have acute angle closure glaucoma and I am worried about what damage it might
Sickofpain140
in
Pain Concern
2 years ago
nefopam and acute angle closure glaucoma
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Hello, I am a health care worker and I have just been diagnosed with arthritis in my hips. My gp has just prescribed nefopam and since starting them I have not been able to sleep. I have acute glaucoma and I am worried that taking this medication might damage my eyesight further. Has anyone else had
Sickofpain140
in
British Liver Trust
2 years ago
Welcoming New Era of Expanded Use of Radiotherapies
Duplicating this for my friends at FPC. This is the short take from Practice Update this morning. Link to the abstract is included. 😃 The three practice changing points included are worth noting. Makes me happy. (Came off of wonderful 3 day backpack around Grand Teton yesterday. Today, back into
Duplicating this for my friends at FPC. This is the short take from Practice Update this morning. Link to the abstract is included. 😃 The three practice changing points included are worth noting. Makes me happy. (Came off of wonderful 3 day backpack around Grand Teton yesterday. Today, back into
MateoBeach
in
Fight Prostate Cancer
2 years ago
morning whats the do surgens use on you for a inteior bladder repair and ahystrectomy
hi its getting closer for my op and im freaking out abit trying to stay strong . im worrying about what the surgens use ? and whats the safest as i have a hiahus hernia and iv had breast cancer a mercectomy on the right side 9years ago . and i woundering what to expect like how long befor i will
hi its getting closer for my op and im freaking out abit trying to stay strong . im worrying about what the surgens use ? and whats the safest as i have a hiahus hernia and iv had breast cancer a mercectomy on the right side 9years ago . and i woundering what to expect like how long befor i will
Mrshappyme
in
Pelvic Pain Support Network
2 years ago
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