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Gluten free diet
Hi all, hope you’re not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity I’ve recently been trialing a gluten free diet, which has helped me considerably
Hi all, hope you’re not suffering too much today. Just wanted to bring to your attention an article I was reading today about gluten, which you can find on google. https://en.m.wikipedia.org/wiki/Non-celiac_gluten_sensitivity I’ve recently been trialing a gluten free diet, which has helped me considerably
Kryptonite59
in
Fibromyalgia Action UK
1 month ago
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
4 months ago
Antiinflammatory medications with Jakafi
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
I've read that there is a moderate risk of bleeding after using ibuprofen with Jakafi. I'd appreciate hearing reactions from people on Jakafi who have taken ibuprofen and other anti-inflammatory medications. Which anti-inflammatory medications would minimize the risk of such interactions? Thanks, Steve
sbs_patient
in
MPN Voice
6 months ago
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Is this Hemmoriod symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
AMerchant
in
IBS Network
2 months ago
Depo-Medrol Injection and nausea
Hi everyone, Just wondered if anyone has had a chronic reaction to a steroid shot? I am only tiny and was given 120mg a month ago and I am literally grounded still with the worst nausea. I can barely eat and have lost 3/4 stone so am down to 7 stone ☹️ Is it possible I had too higher dose and my immune
Hi everyone, Just wondered if anyone has had a chronic reaction to a steroid shot? I am only tiny and was given 120mg a month ago and I am literally grounded still with the worst nausea. I can barely eat and have lost 3/4 stone so am down to 7 stone ☹️ Is it possible I had too higher dose and my immune
cornflake
in
NRAS
2 months ago
Hello. Low grade Serous
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
Hi everyone. I was diagnosed with low grade serous ovarian cancer in Sept 22, I’ve had 2 massive ops and chemo and now take Letrozole. My recent scans have been clear, which is the best news. I haven’t really reached out to many support groups but feel I need to as I feel pretty isolated with my experience
GoldieH
in
My Ovacome
6 months ago
Iron studies blood test results
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Hi thereMy results are all in normal range but I remember being told that that doesn't mean the are high enough levels if brain iron so would appreciate feedback on my levels: All units microgm\l Ferritin 77 Iron. 28 Transferrin 2.46 Transferrin saturation 45% Total iron binding capacity 62 Many thanks
Scubaholic
in
Restless Legs Syndrome
2 months ago
morning agony
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Hi I’ve not posted for a long time I’m still suffering badly with my ibs and 5 other stomach issues. Does anyone wake up with abdominal pain and constant bowel movements in the morning and terrible pain after. I’m at my wits end the doctors just want to give me more tablets I literally can’t take anymore.Amber
Oscar091
in
IBS Network
2 months ago
Rectal Pain
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
swanzie
in
Pelvic Pain Support Network
2 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
2 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
2 months ago
Ferritin and Iron
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
Summer194
in
Restless Legs Syndrome
2 months ago
Anyone tried LGG probiotic Diclofor?
I took it for dairy allergy and wondering if it gave me Constipation! ? Seems hard to buy brands here without prebiotics in them also, anyone know any other brands? Mine was made by Bayer!
I took it for dairy allergy and wondering if it gave me Constipation! ? Seems hard to buy brands here without prebiotics in them also, anyone know any other brands? Mine was made by Bayer!
LFHell
in
IBS Network
2 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
2 months ago
First time Colonoscopy
I have my first colonoscopy on Thursday the 14th. I have been given Picolax. I am concerned about the prep as my friend told me you don't have time to get up the stairs to the toilet, and I should stay upstairs after taking the prep solution; is this correct? I'm really not sure about the sedative
I have my first colonoscopy on Thursday the 14th. I have been given Picolax. I am concerned about the prep as my friend told me you don't have time to get up the stairs to the toilet, and I should stay upstairs after taking the prep solution; is this correct? I'm really not sure about the sedative
Lesleyr14
in
Colon Cancer Connected
2 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
6 months ago
Prostate cancer in liver
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Have recently had a PSMA scan. This did show some hot spots for sure. But also, three smaller spots on my liver that did not give off PSMA. Did a liver Biopsy. which is rather painful I might add. Will meet with my 0ncologist on Monday to look at options. Any suggestion for the three rather small spots
Parscore
in
Advanced Prostate Cancer
6 months ago
Thank you all
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
I wanted to get on here and thank everyone for there input on my questions about PIQRAY. After all my do diligence on PIQRAY my oncologist threw me a curve ball and decided to go with Verzenio faslodex and xgeva. Because i had higher % of Ers1 mutations then Pik3ca mutations. So this past thursday i
Justme153
in
SHARE Metastatic Breast Cancer
6 months ago
Indigestion symptoms
Hi … I’m still waiting on results of colonoscopy biopsies- it will be 3 weeks on Monday - I’ve chased results with secretaries and results were in last week so waiting on appointment with gastro consultant. Secretary said she will send email for me as I am having really bad symptoms that are sometimes
Hi … I’m still waiting on results of colonoscopy biopsies- it will be 3 weeks on Monday - I’ve chased results with secretaries and results were in last week so waiting on appointment with gastro consultant. Secretary said she will send email for me as I am having really bad symptoms that are sometimes
Lastboyscout6
in
IBS Network
2 months ago
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