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Gene Therapy: A possible future rival to DBS (and even stem-cell therapy)?
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
jeffreyn
in
Cure Parkinson's
6 years ago
continuing dizziness after cranioplasty
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
LindsayJo
in
Headway
6 years ago
THAT HAIR ISSUE AGAIN!
Hello, MBC friends taking Ibrance. I’ve been on the Ibrance/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop? Is there ever any regrowth
Hello, MBC friends taking Ibrance. I’ve been on the Ibrance/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop? Is there ever any regrowth
SeattleMom
in
SHARE Metastatic Breast Cancer
6 years ago
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Endo appt
Hi all iv got my endo appt in the morning. And I forgot and took my supplement with biotin in yesterday. Is it really not worth me getting my bloods done until iv got the biotin about 5 days out my system?
Hi all iv got my endo appt in the morning. And I forgot and took my supplement with biotin in yesterday. Is it really not worth me getting my bloods done until iv got the biotin about 5 days out my system?
MMAndrea52
in
Thyroid UK
6 years ago
ANYONE HEARD ABOUT THE NEW 2 HR. DBS?
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ktbate
in
Cure Parkinson's
6 years ago
Tests after Biotin stopped
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
vocalEK
in
Thyroid UK
6 years ago
Head pain in back of head after Gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
Kit-kid
in
Headway
6 years ago
Effect of vitamins on thyroid blood test
When I have my next thyroid blood test I have read that you shouldn't take biotin for 4 days before the test so I will stop the vitamin b complex. Are there are other vitamins or minerals that impact the result. Curently I take Selenium and vitamin D. Do I need to have a so many days interval between
When I have my next thyroid blood test I have read that you shouldn't take biotin for 4 days before the test so I will stop the vitamin b complex. Are there are other vitamins or minerals that impact the result. Curently I take Selenium and vitamin D. Do I need to have a so many days interval between
carer999
in
Thyroid UK
6 years ago
upping vits... what to do?
So a few weeks back i posted my (private) results which showed me as possibly a poor converter of t4 to t3. I had been re-experiencing; hair loss; tingly scalp/mouth/tongue and hands; really stiff muscles and really sore tendons. My vits were also low... Folate
16
(8.83-60.8) Ferritin
63.1[
So a few weeks back i posted my (private) results which showed me as possibly a poor converter of t4 to t3. I had been re-experiencing; hair loss; tingly scalp/mouth/tongue and hands; really stiff muscles and really sore tendons. My vits were also low... Folate
16
(8.83-60.8) Ferritin
63.1[
Gilbo72
in
Thyroid UK
6 years ago
New here.
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
talynn
in
Dystonia Society
6 years ago
Losing toe nails is it par for the course
Hi everyone, I have now lost two toe nails. Is this a symptom of hashi. Diagnosed in April this year on 100 levo. TSH 0.20 T4 19. I take b12 D3 K2 biotin slippery elm, s boulardii,zinc, betaine HCl, tumeric, selenium, magnesium, l glutamin. Should I visit the doctor or is it a waste of time?
Hi everyone, I have now lost two toe nails. Is this a symptom of hashi. Diagnosed in April this year on 100 levo. TSH 0.20 T4 19. I take b12 D3 K2 biotin slippery elm, s boulardii,zinc, betaine HCl, tumeric, selenium, magnesium, l glutamin. Should I visit the doctor or is it a waste of time?
barb62
in
Thyroid UK
6 years ago
Thiamine dosage
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
Gailsnail
in
Cure Parkinson's
6 years ago
Flying after suffering a brain abscess
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
LittleDiddle
in
Headway
6 years ago
Unusual test results
Hi everyone, I was recently diagnosed with Hashimoto's (by a private doc), and he asked my GP to prescribe me 75mcg of Levothyroxine. I decided, before I started it, to get my bloods done privately by Medichecks. I wanted to do this so that I could then get my bloods done again *after* taking medication
Hi everyone, I was recently diagnosed with Hashimoto's (by a private doc), and he asked my GP to prescribe me 75mcg of Levothyroxine. I decided, before I started it, to get my bloods done privately by Medichecks. I wanted to do this so that I could then get my bloods done again *after* taking medication
un_piacere
in
Thyroid UK
6 years ago
cymbalta and rivotril
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
Maryankyle
in
Anxiety Support
6 years ago
Hair loss
I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have some). I've take biotin, I use rogaine. I don't wash it as often. I have to vacuum daily. I just walk across the room and hair is falling out. When I get up from
I am wondering if anyone has experienced hair loss? I used to be recognized by my thick hair. ( I guess that's the only reason I still have some). I've take biotin, I use rogaine. I don't wash it as often. I have to vacuum daily. I just walk across the room and hair is falling out. When I get up from
Nousernames
in
The Australian Sjögren's Syndrome Association
6 years ago
I am wondering if anyone had their DBS done in gainsville Florida by dr Foote and dr okum?
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
Lheinlel
in
Cure Parkinson's
6 years ago
DBS and head-aces
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
imani100
in
Cure Parkinson's
6 years ago
Higher the ANA more likely it’s Lupus?
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
Hursty77
in
LUPUS UK
6 years ago
Niacin
Helloooooo fellow sufferers, so, been trialing Niacin for the last 8 nights, am having varying results but the jist of it is, if i take 2 at bedtime i am away after 5 mins, i usually wake 2 hours later, cannot get my head round that one because legs and feet seem ok, anyway, quick wander about for a
Helloooooo fellow sufferers, so, been trialing Niacin for the last 8 nights, am having varying results but the jist of it is, if i take 2 at bedtime i am away after 5 mins, i usually wake 2 hours later, cannot get my head round that one because legs and feet seem ok, anyway, quick wander about for a
vinnybob777
in
Restless Legs Syndrome
6 years ago
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