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Low battery Medtronic DBS increasing off time
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
I’m currently waiting for approval for the replacement of my DBS battery. Im having more off time issues despite a voltage reading of 2.54. Anyone else experience this? Thanks
etterus
in
Cure Parkinson's
6 years ago
Blood results! Please help!
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Can someone have a look at these please? I would really appreciate it xxx I’ve been so unwell for a long time now. I’m 41 and struggling everyday w drops in sugar levels, POTs, shaky, pale skin, recurring infections, chronic pain, thin hair, no energy, feeling of passing out, Lyme disease. Anyways recent
Emmafrank41
in
Thyroid UK
6 years ago
Shingles through December
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
Happy New year to every one. Well my remission that l was so thrilled about has collapsed. Look what happened to me at beginning of December. Right soded shingles. Has kicked off pmr like beginning. Rheumatologist on Friday. Now they want to keep me off steroids due to cataract and shingles. So watch
cmj33g
in
PMRGCAuk
6 years ago
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HDT for people who have had DBS
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
Just wondering if high dose thiamine is helpful for people who have had DBS? I contacted dr. Constantini regarding this issue, but I did not get a response from him. Tyia
MarciAC4
in
Cure Parkinson's
6 years ago
Meningitis
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
My mum is at risk of meningitis and I’m afraid that if she doesn’t recover I will have to look after her and my severely autistic brother by myself. On Saturdays I have to go to my part time job and am still in school. Does ANYONE have ANY reassurance??
Violet012
in
Meningitis Now
6 years ago
Decision made re shingles jab
Hi again. After reading all your helpful comments and having thought about it for days, I have just cancelled my shingles jab. On balance this is not the time to introduce further risks. Thanks everyone.
Hi again. After reading all your helpful comments and having thought about it for days, I have just cancelled my shingles jab. On balance this is not the time to introduce further risks. Thanks everyone.
Oxford8
in
PMRGCAuk
6 years ago
What tests should I ask for?
Going to be going back to retest (after waiting to see if my T3 levels would magically jump up to where they need to be without changing any medication), and I'm mulling what tests to ask for. Of course, TSH, T3, and T4. I have never been tested for antibodies, but if those come out positive, what
Going to be going back to retest (after waiting to see if my T3 levels would magically jump up to where they need to be without changing any medication), and I'm mulling what tests to ask for. Of course, TSH, T3, and T4. I have never been tested for antibodies, but if those come out positive, what
vocalEK
in
Thyroid UK
6 years ago
Diminished memory and DBS battery replacement
I am wondering if there is a connection with memory being diminished when the DBS battery is runnning low and/or out?
I am wondering if there is a connection with memory being diminished when the DBS battery is runnning low and/or out?
Parkiewife
in
Cure Parkinson's
6 years ago
Sore glands
Hi I posted here last week about my bloods and basically am now gonna try and go private as I tested positive for Thyroglobulin antibodies and my TSH went from 6.5 to 2.5 in a few mths yet i have lots of hypo symptoms so am thinking Hashis. My question is this- does anyone else get what feels like
Hi I posted here last week about my bloods and basically am now gonna try and go private as I tested positive for Thyroglobulin antibodies and my TSH went from 6.5 to 2.5 in a few mths yet i have lots of hypo symptoms so am thinking Hashis. My question is this- does anyone else get what feels like
sugarbee1981
in
Thyroid UK
6 years ago
2019: Will Medicare Cover Parkinson's ?
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
Here's where we stand as noted by Kirk Hall in his blog www.shakypawsgrampa.com. (Of course who knows what will happen over the next two years with the idiot in the Whitehouse backed by gutless members of the POT). Parkinson’s disease (PD) is a challenging condition as it is, but the fact that it is
FMundo
in
Cure Parkinson's
6 years ago
DBS hybrid: Medtronic leads with Boston Scientific stimulator
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
I have had effective control of my motor complaints of dystonia and dyskinesia for 4 years with the standard Medtronic unit implanted in my globus pallidus internus. The battery life has been limited due to the high output of 2.7 &4.8. I managed to get 30 months out of the initial battery but at current
etterus
in
Cure Parkinson's
6 years ago
Bad Taste
I've been having hemodialysis treatments for about 6 months. I'm 77 years old and otherwise doing well. My kidney problems began after a bad infection in my lungs and kidneys. Since my illness, food has tasted nasty and I'm finding it difficult to eat as I should. Up until the illness, I had a good appetite
I've been having hemodialysis treatments for about 6 months. I'm 77 years old and otherwise doing well. My kidney problems began after a bad infection in my lungs and kidneys. Since my illness, food has tasted nasty and I'm finding it difficult to eat as I should. Up until the illness, I had a good appetite
PracBob
in
Kidney Dialysis
6 years ago
Parkinsons and dental work
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Has anyone had extensive dental work after having DBS. I am needing implants and am concerned about possible heeating of DBS lead, etc.
Cbauer
in
Cure Parkinson's
6 years ago
140 mg imbruvica ,Lyme disease
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Sergi
in
CLL Support
6 years ago
Are you still looking for help?
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
janeb15
in
Thyroid UK
6 years ago
Stop taking vitamins before blood tests?
Hello! I'm new here. I've not been diagnosed, but I have many, many symptoms, so going to ask GP to investigate. I may have had thyroid tests done before as part of routine blood tests, so will ask for previous results when I go. I was wondering if I should stop taking vitamins before having blood tests
Hello! I'm new here. I've not been diagnosed, but I have many, many symptoms, so going to ask GP to investigate. I may have had thyroid tests done before as part of routine blood tests, so will ask for previous results when I go. I was wondering if I should stop taking vitamins before having blood tests
frizzfrazz
in
Thyroid UK
6 years ago
Anyone with symptoms like mine?
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
Chopper201
in
Meningitis Now
6 years ago
Shingles vaccine
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
barbthy
in
PMRGCAuk
6 years ago
How to Manage Your Type 2 Diabetes with Diet (an article)
Here's an article that was posted both on the https://healthunlocked.com/fatty-liver-nash
group and also on the
https://www.jenreviews.com
website
. The article was
written by: Jen Miller
and it
explains about what types of foods a person can eat to have better management
Here's an article that was posted both on the https://healthunlocked.com/fatty-liver-nash
group and also on the
https://www.jenreviews.com
website
. The article was
written by: Jen Miller
and it
explains about what types of foods a person can eat to have better management
Activity2004
Administrator
in
Diabetes India
6 years ago
forgot to stop taken my biotin and levothyroxine before a blood test
Hi People, Could you tell be how the thyroid testing is affected by Biotin and levothyroxine. I forgot to stop taking Biotin and I took my Levothyroxine at 4am on the morning of my bloodtest. How is the TSH affected - up or down?
Hi People, Could you tell be how the thyroid testing is affected by Biotin and levothyroxine. I forgot to stop taking Biotin and I took my Levothyroxine at 4am on the morning of my bloodtest. How is the TSH affected - up or down?
barb62
in
Thyroid UK
6 years ago
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