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life after pneumonectomy
Hello everyone, I would be really interested to hear from anyone who has under gone having a whole lung (left) removed. This is my situation after a Carcinoid tumour was discovered in May this year. During the operation there was also nerve damage which paralysed the left vocal cord/fold leaving
Hello everyone, I would be really interested to hear from anyone who has under gone having a whole lung (left) removed. This is my situation after a Carcinoid tumour was discovered in May this year. During the operation there was also nerve damage which paralysed the left vocal cord/fold leaving
Imkerin
in
The Roy Castle Lung Cancer Foundation
2 years ago
Update on T3 blood results, any thoughts
Hi All After wonderful advice here 7 months ago contacted a private endo. I was prescribed T3 : 5mcg morning for 10 days then added 5mcg of T3 afternoon, reduced levothyroxine to 0.05mg from 0.075mg on endo request. Felt improvement first week but seem fatigued as much if not a bit more as weeks have
Hi All After wonderful advice here 7 months ago contacted a private endo. I was prescribed T3 : 5mcg morning for 10 days then added 5mcg of T3 afternoon, reduced levothyroxine to 0.05mg from 0.075mg on endo request. Felt improvement first week but seem fatigued as much if not a bit more as weeks have
pjed1
in
Thyroid UK
2 years ago
Dr. Chandramohan Wakade Niacin and Parkinson. Therapeutic properties of Niacin for slow down Parkinson
https://www.mdpi.com/1422-0067/20/18/4559/htm https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8245760/#:~:text=An%20average%20of%209%20%C2%B1,Additionally%2C%20secondary%20outcome%20measures%20improved. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4527813/
https://www.mdpi.com/1422-0067/20/18/4559/htm https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8245760/#:~:text=An%20average%20of%209%20%C2%B1,Additionally%2C%20secondary%20outcome%20measures%20improved. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4527813/
Victor1975
in
Cure Parkinson's
2 years ago
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Shingles vaccine to have or not to have
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
My rheumie has recommended that I have the shingles jab. and informed the vaccination centre. A lady from there phoned me regarding this and I said I would prefer the non-live vaccine as opposed to the live one. She said that I could not choose as the nurse would decide after seeing me. I was diagnosed
PatB1948
in
PMRGCAuk
2 years ago
I may have Lyme but I ain't no Lemon!
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
Hello all Follow up to my original post from six months ago! I was diagnosed with PMR back in March of this year. Despite pred my symptoms were still apparent and was referred to a rheumatologist in September. He thought it wasn't PMR but really didn't know what it was! However a blood test was
hib61
in
PMRGCAuk
2 years ago
Diabolical nails
SO fed up, my nails are in a terrible state, flaking and breaking. I’ve tried a nail varnish, nail oil nothing made any difference. I’ve even had biotin etc. I’m on Flecainide, Bisoprolol, Empagliflozin and Rivoxaban and convinced one or more are the culprits. any ideas and suggestions welcome as
SO fed up, my nails are in a terrible state, flaking and breaking. I’ve tried a nail varnish, nail oil nothing made any difference. I’ve even had biotin etc. I’m on Flecainide, Bisoprolol, Empagliflozin and Rivoxaban and convinced one or more are the culprits. any ideas and suggestions welcome as
LaceyLady
in
Atrial Fibrillation Support
2 years ago
DBS Surgery #2, a personal essay
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
DBS Surgery #2 by Gary Turchin On Nov 12, 2020, a good eight months into the pandemic, I found myself checking in to Kaiser Hospital, Redwood City, for brain surgery. I arrived at the hospital in terrible pain. I had stopped taking my medications for Parkinson
GaryTorch
in
Cure Parkinson's
2 years ago
NAD, Thiamine (B1) and Day 63 of TTDF 7/18/22.
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. *** Someone asked, if I ever heard of NADH? I believe when a cure is found for PD, it will a combination of factors. I take NMN which supposedly increases NAD which is the
Gcf51
in
Cure Parkinson's
2 years ago
Lumbar injection after shingles CLL
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
Hi everyone, I had shingles six months ago, leaving me with nerve problems in my left leg. I have received an appointment for a lumbar puncture which has left me a bit worried, is this because they think something is going on with the CLL in my spine? I can't ask the specialist as I have no follow-up
TOMMOHOODIE
in
CLL Support
2 years ago
My Current Stack - What is yours?
artinson This is my latest stack. I have not been diagnosed with PD. I have REM Sleep Behavior Disorder, a sore left shoulder, sore left leg, not the best balance in the world (it never was great) and some involuntary muscle movements (nothing big or repetitive. A few times a day). 1. 8 ounces of
artinson This is my latest stack. I have not been diagnosed with PD. I have REM Sleep Behavior Disorder, a sore left shoulder, sore left leg, not the best balance in the world (it never was great) and some involuntary muscle movements (nothing big or repetitive. A few times a day). 1. 8 ounces of
Bolt_Upright
in
Cure Parkinson's
2 years ago
I saw my first neuro after over five years
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
Today I saw the MDD who diagnosed me in august 2017. Before him I saw other doctors who could not figure what I had. So after over five years I saw him again. That time my score was 17 and today 23. He was surprised to find out my progression was very small. I told him I think the Thiamine helped me
ion_ion
in
Cure Parkinson's
2 years ago
Coping with heat
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
I need your advice my friends. We live in the north of England and rarely get a heatwave but this summer we had 2 and my HWP, who is in his 29th year of diagnosis, really suffered. I looked on HU and saw this can be a problen in PD. I told him what I had read and dealt with it with fans and cold packs
JeanieBeanie
in
Cure Parkinson's
2 years ago
Muscle pain and DBS
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Has anyone experienced muscle pain in your arms, legs, etc. after DBS? Do settings have anything to do with it?
Sherry1960
in
Cure Parkinson's
2 years ago
I know there’s been much discussion on Ibrance Letrozole and hair loss- does it stop
Hi all, Everyone here is so helpful, I’ve read many posts about Ibrance, Letrozole and xcheva and hair loss. My question will it stop? Taking Biotin not helping, wash hair only a few times a week. I “had” extremely thick hair and it’s so fine now. Hoping it stops and re-grows I’m on my 6th month
Hi all, Everyone here is so helpful, I’ve read many posts about Ibrance, Letrozole and xcheva and hair loss. My question will it stop? Taking Biotin not helping, wash hair only a few times a week. I “had” extremely thick hair and it’s so fine now. Hoping it stops and re-grows I’m on my 6th month
DDIL1
in
SHARE Metastatic Breast Cancer
2 years ago
Blood results
Hi SeasideSusie The reason I am back on Levo is because my endocrinologist point blankly refused to give me a consultation or blood tests unless I was taking the prescribed meditation - which originally was 175mcg levothyroxine. (she doesn’t trust NDT!) Yes, I had been taking Thyro-Gold for quite some
Hi SeasideSusie The reason I am back on Levo is because my endocrinologist point blankly refused to give me a consultation or blood tests unless I was taking the prescribed meditation - which originally was 175mcg levothyroxine. (she doesn’t trust NDT!) Yes, I had been taking Thyro-Gold for quite some
bluehaven201
in
Thyroid UK
2 years ago
hydrocephalus
Hi folks , I am 42 and have battled hydrocephalus since age 20.This was caused by a presumed tectal plate tumor of some kind.after a period of battling bad headaches and vision issues etc.Been through a 3rd ventriculostomy which controlled things for a few years.This eventually failed and had a vp shunt
Hi folks , I am 42 and have battled hydrocephalus since age 20.This was caused by a presumed tectal plate tumor of some kind.after a period of battling bad headaches and vision issues etc.Been through a 3rd ventriculostomy which controlled things for a few years.This eventually failed and had a vp shunt
versa2508
in
Headway
2 years ago
Normal Meds: is this it?!
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
I say normal because up until recently I’ve used a cocktail of normal (Rasagaline, Requip and Madopar) alongside Mucuna. The Mucuna was my go to stuff if I needed an immediate lift as it worked so quickly. But I promised my neuro that I’d leave it out: it’s difficult to measure and rationalise when he
jeeves19
in
Cure Parkinson's
2 years ago
Saliva Cortisol Test - do I need to stop biotin?
I’m doing a 4 point saliva cortisol test this week sometime and wondered if I need to stop biotin or anything else in prep. Any help appreciated.
I’m doing a 4 point saliva cortisol test this week sometime and wondered if I need to stop biotin or anything else in prep. Any help appreciated.
Jamima
in
Thyroid UK
2 years ago
Should I be concerned?
My recent blood test results:- Serum vitamin B12 level 956 ng/L [197.0 - 771.0] Above high reference limit Interpretation of haematinics: https://tinyurl.com/BiochemInfo Weblink also available via VoY RSS Pathology tab. High B12 may be due to supplements or fortified food. High levels can be observed
My recent blood test results:- Serum vitamin B12 level 956 ng/L [197.0 - 771.0] Above high reference limit Interpretation of haematinics: https://tinyurl.com/BiochemInfo Weblink also available via VoY RSS Pathology tab. High B12 may be due to supplements or fortified food. High levels can be observed
Everdean
in
Pernicious Anaemia Society
2 years ago
Deep Brain Stimulation
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?
Ostap
in
Ataxia UK
2 years ago
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