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What next after chemo fails
Hi This is my first post, we live in UK and my husband Steve was diagnosed with aggressive prostate cancer in 2011 with lymph node involvement. PSA 14, Gleason 10, Started 3 monthly zoladex injections straight away which he still has and also 40 radiotherapy treatments which kept his PSA to around 0.6
Hi This is my first post, we live in UK and my husband Steve was diagnosed with aggressive prostate cancer in 2011 with lymph node involvement. PSA 14, Gleason 10, Started 3 monthly zoladex injections straight away which he still has and also 40 radiotherapy treatments which kept his PSA to around 0.6
JanJames
in
Advanced Prostate Cancer
6 years ago
Confused about results and symptoms
Hi, I am new on here. I was diagnosed hypothyroid in 2013. I have had many dose changes in the past, mainly because of the following reasons hyperthyroid symptoms despite high TSH and normal free T4 and normal free T3 (dose reduced) hypothyroid symptoms despite normal TSH and normal free T4 and normal
Hi, I am new on here. I was diagnosed hypothyroid in 2013. I have had many dose changes in the past, mainly because of the following reasons hyperthyroid symptoms despite high TSH and normal free T4 and normal free T3 (dose reduced) hypothyroid symptoms despite normal TSH and normal free T4 and normal
joeliza1
in
Thyroid UK
6 years ago
The St Thomas Hospital Transcobalamin testing service
Hello, Has anyone on this forum had experience for the transcobalamin testing service offered at St Thomas Hospital? I am to understand that it requires a GP referral letter to get an appointment but the patient only pays a £15+vat private blood-drawing charge? Have I got this right from the literature
Hello, Has anyone on this forum had experience for the transcobalamin testing service offered at St Thomas Hospital? I am to understand that it requires a GP referral letter to get an appointment but the patient only pays a £15+vat private blood-drawing charge? Have I got this right from the literature
bdole2018
in
Pernicious Anaemia Society
6 years ago
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Yonsa vs Zytiga
Why would anyone even want to take Zytiga now that Yonsa has been FDA approved?! "The Yonsa formulation of Yonsa is developed to have a smaller overall particle size. In prior studies, the fine particle size was found to increase dissolution rates and oral bioavailability while decreasing the effects
Why would anyone even want to take Zytiga now that Yonsa has been FDA approved?! "The Yonsa formulation of Yonsa is developed to have a smaller overall particle size. In prior studies, the fine particle size was found to increase dissolution rates and oral bioavailability while decreasing the effects
JLS1
in
Advanced Prostate Cancer
6 years ago
Were in trouble here ...
Hello all, My dad has been sleeping almost around the clock for several days. No appetite-very weak. 2-unit transfusion on Friday did nothing for him, except add exhaustion. I’m beating myself up pretty bad tonight, esp because of all the great posts here on this site. Great advice-great suggestions
Hello all, My dad has been sleeping almost around the clock for several days. No appetite-very weak. 2-unit transfusion on Friday did nothing for him, except add exhaustion. I’m beating myself up pretty bad tonight, esp because of all the great posts here on this site. Great advice-great suggestions
dadeb
in
Advanced Prostate Cancer
6 years ago
Ferrous Sulphate
Diagnosed Aneamic 13 weeks ago at 120 then went to 123 nit Anaemic Ferratin level at 12 so another 8 week course of ferratin Sulphate yuk. Now at 118 and Ferratin at 9 can someone explain why it went up a little now went backwards, I feel absolutely drained no energy but got a disabled husband to look
Diagnosed Aneamic 13 weeks ago at 120 then went to 123 nit Anaemic Ferratin level at 12 so another 8 week course of ferratin Sulphate yuk. Now at 118 and Ferratin at 9 can someone explain why it went up a little now went backwards, I feel absolutely drained no energy but got a disabled husband to look
norwegianjock
in
Pernicious Anaemia Society
6 years ago
Post op cough after Ivor Lewis
Hi, My Mum had her Ivor Lewis in Nov 2017, since then she has had an horrendous cough, especially when talking and eating? The upper GI specialist nurse said it seems it is a reflux cough? She is due to have a stretch in two weeks. After having a barium swallow, it showed things were moving slow through
Hi, My Mum had her Ivor Lewis in Nov 2017, since then she has had an horrendous cough, especially when talking and eating? The upper GI specialist nurse said it seems it is a reflux cough? She is due to have a stretch in two weeks. After having a barium swallow, it showed things were moving slow through
DeborahGale
in
Oesophageal & Gastric Cancer
6 years ago
Week 8 completed!! Week 9 I can’t wait!!!
Well what a strange week!! Did my 2nd run on Sunday with no problems then had my sore foot while out for a stroll with my son that evening. It felt like I was walking in a large pebble every step. I really thought I was going to be out of action for a while. I soaked it in Epsom salts, rubbed Voltarol
Well what a strange week!! Did my 2nd run on Sunday with no problems then had my sore foot while out for a stroll with my son that evening. It felt like I was walking in a large pebble every step. I really thought I was going to be out of action for a while. I soaked it in Epsom salts, rubbed Voltarol
limberlou
Graduate
in
Couch to 5K
6 years ago
Oww!! And I was only walking !!!
Well I had a pretty good run this morning after setting off with a dodgy left knee and an aching right thigh which got better as I plodded along so went home had my bath and pottered gently round the house, watched a film with my daughter before she went home and then my son asked if fancied meeting
Well I had a pretty good run this morning after setting off with a dodgy left knee and an aching right thigh which got better as I plodded along so went home had my bath and pottered gently round the house, watched a film with my daughter before she went home and then my son asked if fancied meeting
limberlou
Graduate
in
Couch to 5K
6 years ago
After 16 years, Chemo last line of treatment.
Im 65 years old. Anybody do Chemo for prostate cancer after going through 16+ years of various treatments? Surgery Feb 2002 came back a year later, Lupron + casodex failed 2 years later, Meyers protocol Leukine + Ketoconozale + Estrogen patches worked for a very long time, Zytiga did not work, Radiation
Im 65 years old. Anybody do Chemo for prostate cancer after going through 16+ years of various treatments? Surgery Feb 2002 came back a year later, Lupron + casodex failed 2 years later, Meyers protocol Leukine + Ketoconozale + Estrogen patches worked for a very long time, Zytiga did not work, Radiation
abmicro
in
Advanced Prostate Cancer
6 years ago
Oh joy...
49, just got diagnosed last Wednesday. Go for Bone scan and CT tomorrow. Gleason 8/10. PSA was a 5.4 two months ago, 6.7 now. Of course worried about the whole bone thing. Not looking forward to drinking the barium (vanilla, what a joke) tomorrow (so gross). I'm kind of addicted to this whole breathing
49, just got diagnosed last Wednesday. Go for Bone scan and CT tomorrow. Gleason 8/10. PSA was a 5.4 two months ago, 6.7 now. Of course worried about the whole bone thing. Not looking forward to drinking the barium (vanilla, what a joke) tomorrow (so gross). I'm kind of addicted to this whole breathing
YouGottaBeKiddingMe
in
Advanced Prostate Cancer
6 years ago
Amphetamine for methadone withdrawal???
What's working for me is dextroamphetamine. I've tried Gabapentin for RLS at 1000mg nightly and I have been going through hell. Was on methadone 160mg daily for 16 years for opiate addiction I got when I had cancer surgery. Over one year tapered to 25mg methadone daily then quit cold turkey. I was desperate
What's working for me is dextroamphetamine. I've tried Gabapentin for RLS at 1000mg nightly and I have been going through hell. Was on methadone 160mg daily for 16 years for opiate addiction I got when I had cancer surgery. Over one year tapered to 25mg methadone daily then quit cold turkey. I was desperate
BromazepamBrother
in
Restless Legs Syndrome
6 years ago
Hi to all-
Dad and I (Deb) have been following the site but first time for posting. Thank you all for sharing. I’ve been taking care of Dad since his diagnosis in 2011. We held steady with Lupron for the first two years or so, but since then, it’s been an aggressive battle. I don’t want to go back and second guess
Dad and I (Deb) have been following the site but first time for posting. Thank you all for sharing. I’ve been taking care of Dad since his diagnosis in 2011. We held steady with Lupron for the first two years or so, but since then, it’s been an aggressive battle. I don’t want to go back and second guess
dadeb
in
Advanced Prostate Cancer
6 years ago
My doctors will drive me to... death due to conflicting medications.
Health insurers hate me. I am on about 15-10 medications. At age 53, I had a small heart attack. I was born with a defective heart valve that was replaced 7 years ago (Afib was the sign it needed replacement). I thought the afib was gone. Then, 2 months ago, that valve was again replaced along with
Health insurers hate me. I am on about 15-10 medications. At age 53, I had a small heart attack. I was born with a defective heart valve that was replaced 7 years ago (Afib was the sign it needed replacement). I thought the afib was gone. Then, 2 months ago, that valve was again replaced along with
Fish109
in
AF Association
6 years ago
Post Ivor Lewis Mucus
Hi, I’m really hoping someone can help me find a solution to the excessive mucus that causes coughing and then retching it up every time my husband moves around. He’s 5 weeks post Ivor Lewis...which followed 28 radiation treatments & 7 carbon platin infusions. Surgeon says everything looks great on chest
Hi, I’m really hoping someone can help me find a solution to the excessive mucus that causes coughing and then retching it up every time my husband moves around. He’s 5 weeks post Ivor Lewis...which followed 28 radiation treatments & 7 carbon platin infusions. Surgeon says everything looks great on chest
Nancyinabif
in
Oesophageal & Gastric Cancer
6 years ago
RLS Help, no drugs
When I first developed RLS 10 years ago I got rid of it by limiting saturate fat in my diet and completely cutting out gluten. Gluten was the big trouble-maker (I made repeated attempts to check this out, it all confirmed it). However, I developed it again in a big way when I cut dairy out of my diet
When I first developed RLS 10 years ago I got rid of it by limiting saturate fat in my diet and completely cutting out gluten. Gluten was the big trouble-maker (I made repeated attempts to check this out, it all confirmed it). However, I developed it again in a big way when I cut dairy out of my diet
wlippincott
in
Restless Legs Syndrome
6 years ago
Getting no where with drs
My journey has been a long one since 2012 my drs have suspected that I have something going on with my liver. My enzymes remain at 50AST, 54 ALT 112ALP and have stayed this way for the whole year. At one point they went back down to completely normal. I have had my ANA and AMA tested twice both negative
My journey has been a long one since 2012 my drs have suspected that I have something going on with my liver. My enzymes remain at 50AST, 54 ALT 112ALP and have stayed this way for the whole year. At one point they went back down to completely normal. I have had my ANA and AMA tested twice both negative
mtk0925
in
PBC Foundation
6 years ago
Extreme Tinnitus (ear infection?) - Help!
Something very strange has been happening to me since late February, and I'm rather worried. I wondered if anyone here has any suggestions (I'm seeing an ENT tomorrow). Timeline is this: Feb 21st: A nightclub decides to move into my head with an array of thumping-banging-booming sounds IN MY HEAD (
Something very strange has been happening to me since late February, and I'm rather worried. I wondered if anyone here has any suggestions (I'm seeing an ENT tomorrow). Timeline is this: Feb 21st: A nightclub decides to move into my head with an array of thumping-banging-booming sounds IN MY HEAD (
Godstopper
in
British Tinnitus Association
6 years ago
MIGRAINE SUMMIT Notes - NON MEDICINAL TREATMENTS
ROBERT COWAN - NATURAL TREATMENTS. FROM THE CURRENT MIGRAINE SUMMIT. CONTINUES TODAY https://www.migraineworldsummit.com I thought these notes from his talk were interesting for people to see. He talked about non-medical treatments, a really interesting chat for those of us who don't want to swallow
ROBERT COWAN - NATURAL TREATMENTS. FROM THE CURRENT MIGRAINE SUMMIT. CONTINUES TODAY https://www.migraineworldsummit.com I thought these notes from his talk were interesting for people to see. He talked about non-medical treatments, a really interesting chat for those of us who don't want to swallow
designer111
in
National Migraine Centre
6 years ago
Results/question after passing of Dad
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
We have finally received the Foundation One results. They listed 3 genomic findings of CDKN2A/B loss, microsatellite status MS-Stable, Tumor Mutation Burden-intermediate; 8 muts. There were no FDA approved or potential clinical trials. We have about 30 pages of medical terminology that we dont understand
SaratogaNYAnthony
in
Advanced Prostate Cancer
6 years ago
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