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Covid and flu vaccines
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
I unexpectedly had Covid and flu vaccinations today whilst at the doctor's for something else. Was putting it off but glad it's done now. Today is the day I usually inject my MTX and one nurse said give it a miss this week whilst another said to do it as normal. I decided to give it a miss. Is there
Manzana1
in
NRAS
7 months ago
Retuximab
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
Hi guys, Hope you all had a happy healthy New Year :) Unfortunately I had flu, then Covid and what seemed like a virus :( I just started Rituximab infusion 26th September therefore according to the information booklet I’m not meant to have live vaccines (flu, Covid) for 6months after, hence probably
jopo280886
in
LUPUS UK
7 months ago
FLU SYMPTOMS
Has anyone ever had flu symptoms , eg; achy, with vague headache could this be a symptom of not enough medication of Levothyroxine any answer would be appreciated.
Has anyone ever had flu symptoms , eg; achy, with vague headache could this be a symptom of not enough medication of Levothyroxine any answer would be appreciated.
13vc
in
Thyroid UK
5 months ago
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Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 Data is starting to roll in on Covid-19 vaccine inequities this fall
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
Vaccine disparities are worse post-emergency KATELYN JETELINA NOV 28 https://yourlocalepidemiologist.substack.com/p/vaccine-disparities-are-worse-post?utm_source=post-email-title&publication_id=281219&post_id=139105358&utm_campaign=email-post-title&isFreemail=true&r=dr96q&utm_medium=email - Oof.
lankisterguy
Volunteer
in
CLL Support
9 months ago
New to Texas, lok long for advice on insurance and doctor selection
Hi, I landed in San Antonio texas two weeks back and may stay here for a year for work reason. I am advanced prostate cancer patient since March 2023, aged only 45 now, but veteran of 10 chemo abd currently on generic abiraterone, triplet therapy keeps me in remission till now, see details in my bio.
Hi, I landed in San Antonio texas two weeks back and may stay here for a year for work reason. I am advanced prostate cancer patient since March 2023, aged only 45 now, but veteran of 10 chemo abd currently on generic abiraterone, triplet therapy keeps me in remission till now, see details in my bio.
Soumen79
in
Advanced Prostate Cancer
3 months ago
what to do - advice please
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
afternoon all, one of my very occasional posts for some advice basically I am feeling rubbish! (Aren’t we all they say) This time last year I note that I was going down from 7mgs to 6.5mgs but put myself back up to 12 mgs because I was aching and then 15mgs, caught a mild dose of COVID as well, with
Billiebobdog
in
PMRGCAuk
9 months ago
Laxido longterm use
Hi all,I've been taking 1,sometimes 2 laxido sachets daily for the past 3 months and this has helped.My gastroenteritis has suggested swapping for prucalopride 1mg but this gives me all day stomach ache.My question is,is laxido safe to use daily long term?
Hi all,I've been taking 1,sometimes 2 laxido sachets daily for the past 3 months and this has helped.My gastroenteritis has suggested swapping for prucalopride 1mg but this gives me all day stomach ache.My question is,is laxido safe to use daily long term?
Ladydaff1
in
IBS Network
10 months ago
autoimmunity
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
rebtar
in
Cure Parkinson's
10 months ago
Cold Agglutinin
Another test in my continuing saga. I am now being tested for cold agglutinin. Dr's note below. "A prior DAT was negative, but a second one conducted on Feb. 14 was positive. Subsequently, a monospecific DAT was performed, which was positive for CD3 and negative for IgG, suggesting the possible presence
Another test in my continuing saga. I am now being tested for cold agglutinin. Dr's note below. "A prior DAT was negative, but a second one conducted on Feb. 14 was positive. Subsequently, a monospecific DAT was performed, which was positive for CD3 and negative for IgG, suggesting the possible presence
rcusher
in
CLL Support
6 months ago
Companies that test liver biospy tissue to see what immunotherapy, parp inhibitors or ATK inhibitors would work?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
as above, so far pca Adenocarcinoma in liver biopsy tissue…. Anyone have a list?
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Wish me luck.
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
We are having our Thanksgiving dinner today (a day late) with my husband's side of the family. Last year we had Thanksgiving dinner with them and it turned out to be a Covid superspreader event. Ten out of the twelve people in attendance came down with Covid. The two that didn't had it a few months
punkster
in
Anxiety and Depression Support
9 months ago
Cold water swimming
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
Hi all, I have been toying with cold water swimming for some time. ... (Now I'm no longer on the brink of chilblains at all times it seems like it could be a reasonable endeavour!) Does anyone do cold water swimming (or similar) and feel any benefit? I've done some very brief reading about brown
WitchingHour2point0
in
Thyroid UK
6 months ago
ANyone taking Prolia for osteoporosis?
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Hi! I have been dealing with osteoporosis for more than 20 years and taken all the pills and Forteo shots. I have Lupus, Hyperparathyroidisn, Low Vitamin D and low body mass that all contribute to the problem. Unfortunately, it has continues to get worse. I have been hesitant to take Prolia as it will
Pumpkin2009
in
LUPUS UK
10 months ago
Pneumonia vaccination
Thank you everyone who replied, i hope i missed no-one out . It’s reassuring to have ‘friends’ on here who understand. I shall be having my jab next week. I had no problem after the flu and covid jabs, i really don’t know why i’m worrying. Fear of the unknown i guess,
Thank you everyone who replied, i hope i missed no-one out . It’s reassuring to have ‘friends’ on here who understand. I shall be having my jab next week. I had no problem after the flu and covid jabs, i really don’t know why i’m worrying. Fear of the unknown i guess,
Collie4
in
COPD Friends
6 months ago
Covid
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Hi I’ve just tested positive for Covid . I’m on 5 mg of prednisone and 15 mg methotrexate. Is there any advice about how to manage meds while having Covid. I feel very achy and it feels like I’m having a flare. Thanjs in advance for any advice.
Belfastman
in
PMRGCAuk
9 months ago
MSA-C with ataxia rebound
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
I have not been diagnosed as yet. A neurologist I am seeing is committed to finding out what is causing the symptoms. I was diagnosed with large fiber polyneuropathy with ataxia in 2021. Since then dysautonomia has presented itself. Exercise for balance has really helped but unfortunately my ataxia is
rideabike
in
Multiple System Atrophy Trust
9 months ago
covid 19 December 2023
Hello and Happy new year to all 😀 has anyone else had Covid recently and after testing negative after 7 days of positive and going back to work for few hours for two days as felt improved suddenly now got worse!! cough and chest tight with bad guts and headache sore throat and cold and hot need to
Hello and Happy new year to all 😀 has anyone else had Covid recently and after testing negative after 7 days of positive and going back to work for few hours for two days as felt improved suddenly now got worse!! cough and chest tight with bad guts and headache sore throat and cold and hot need to
Geeforce99
in
Fibromyalgia Action UK
8 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
6 months ago
Ginkgo - possible adverse side effect: Nervous anxiety
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
It's me again. On about Ginkgo as usual... Having taken Ginkgo for over 6 months, and having planned relief from Tinnitus by doing so, I may have experienced a side effect. Recent bouts of nervous anxiety. This is not the kind of anxiety you might experience in a dentist waiting room. No, this is
Ray200
in
Tinnitus UK
3 months ago
Hearing aids and work
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
GillyA
in
Tinnitus UK
3 months ago
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