Laryngitis and lupus

[pattypatchwork]

Hi,

I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist?

I am due to start on methotrexate next week so if it is caused by my lupus, hopefully this will help stop it happening again.

[Hidden]

Hi I suffer with repeated bouts of tonsillitis, laryngitis and pharyngitis, I’ve had more antibiotics this winter than any other. So I can really empathise with you.

I’ve added the link to help you understand what to expect from your medication rather than posting anecdotal information.

lupus?

Methotrexate treats joint pain and swelling in lupus patients. It can also treat the butterfly rash on the face (called malar rash).

lupus.bwh.harvard.edu › 201...

lupus medicines - immunosuppressants: methotrexate

I hope this link can take you to the correct page online. Good luck with the new meds 😊

[pattypatchwork in reply to Hidden]

Thank you for responding to my post. My specialist has said that laryngitis is not caused by lupus but Dr Google says it is! ( but then my specialist argued that my blisters weren't caused by lupus even though a biopsy said they were, he has since diagnosed me as having chilblain lupus)

Thank you for the link for methotrexate, it interesting reading.

[Hidden in reply to pattypatchwork]

I think a lot of lupus suffers have similar issues with lack of knowledgeable specialists here in the UK, I’m so sorry that you’re having this experience. There’s a book written by a medical professional who now suffers with lupus which maybe of interest to you. I also find talking to others on sites such as these far more informative than any specialist. They generally don’t have any autoimmune diseases so everything they say is out of their textbooks. If only they listened to us, they could be then become real experts.

The book is called Lupus: In the Jaws of the Wolf by Niranjana Parthasarathi, it’s very good and it may help you navigate your consultant appointments. You are the one with more knowledge in this regard, as you are living and breathing with lupus every single day.

[pattypatchwork in reply to Hidden]

Thank you, I'll look the book up and get it x

[Wajb2024]

Hi

I developed a rash on my face while on a Caribbean Cruise and was told by the ship’s doctor that I had Rosacea and it would improve when I returned to the dreary weather in the U.K.

To cut a long story short and after several visits to my GP the symptoms became much worse and I developed a rash on my face, ears, chest and shoulders- pretty much everywhere I had sun exposure. He started me on Prednisolone 30mg daily reducing it to 20mg the following week and then 15mg when I had started to improve. It was a short lived response and flared up again so he increased the dose to 20mg and referred me to Dermatology.

The wait to see a dermatologist either private or nhs would have been months so I opted to see a private GP who specialises in dermatology. Following a consultation and blood tests she advised me to see a Rheumatologist as she was pretty sure I had something autoimmune related.

I eventually saw a Rheumatologist privately who agreed clinically it looked like cutaneous lupus and that my bloods and renal function were normal it was unlikely to be SLE. but felt a biopsy would add more weight to the diagnosis. He started me on Hydroxychlorquine and reduced my prednisone dose down from 20mg daily to 15mg. I had a severe rash to the Hydro and ended up covered in ? Hives and had to stop the Hydro. I had biopsies taken by dermatology but they have not confirmed a diagnosis. I have had numerous symptoms but the most puzzling one is laryngitis like symptoms which I associated with taking Prednisolone since March this year. Reading your blog has made me feel it is more likely to be due to the lupus. So encouraging to read I am not the only one with quirky symptoms. It seems that Lupus can cause almost anything 😢 all a bit scary at first .