Laryngitis and lupus: Hi, I am having my 2nd bout... - LUPUS UK

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Laryngitis and lupus

pattypatchwork profile image
4 Replies

Hi,

I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist?

I am due to start on methotrexate next week so if it is caused by my lupus, hopefully this will help stop it happening again.

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pattypatchwork
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Graystar profile image
Graystar

Hi I suffer with repeated bouts of tonsillitis, laryngitis and pharyngitis, I’ve had more antibiotics this winter than any other. So I can really empathise with you.

I’ve added the link to help you understand what to expect from your medication rather than posting anecdotal information.

lupus?

Methotrexate treats joint pain and swelling in lupus patients. It can also treat the butterfly rash on the face (called malar rash).

lupus.bwh.harvard.edu › 201...

lupus medicines - immunosuppressants: methotrexate

I hope this link can take you to the correct page online. Good luck with the new meds 😊

pattypatchwork profile image
pattypatchwork in reply to Graystar

Thank you for responding to my post. My specialist has said that laryngitis is not caused by lupus but Dr Google says it is! ( but then my specialist argued that my blisters weren't caused by lupus even though a biopsy said they were, he has since diagnosed me as having chilblain lupus)

Thank you for the link for methotrexate, it interesting reading.

Graystar profile image
Graystar in reply to pattypatchwork

I think a lot of lupus suffers have similar issues with lack of knowledgeable specialists here in the UK, I’m so sorry that you’re having this experience. There’s a book written by a medical professional who now suffers with lupus which maybe of interest to you. I also find talking to others on sites such as these far more informative than any specialist. They generally don’t have any autoimmune diseases so everything they say is out of their textbooks. If only they listened to us, they could be then become real experts.

The book is called Lupus: In the Jaws of the Wolf by Niranjana Parthasarathi, it’s very good and it may help you navigate your consultant appointments. You are the one with more knowledge in this regard, as you are living and breathing with lupus every single day.

pattypatchwork profile image
pattypatchwork in reply to Graystar

Thank you, I'll look the book up and get it x

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