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Autologous stem cell transplant
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First time Kidney Transplant
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
LillyBear09
in
National Foundation for Transplants
2 years ago
First Time Kindey Transplant
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
LillyBear09
in
Kidney Transplant
2 years ago
Lemon water
Can you drink hot lemon water after having a kidney transplant
Can you drink hot lemon water after having a kidney transplant
Sally03
in
Kidney Transplant
2 years ago
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Emphysema and liver transplant
Is it possible to have a liver transplant if you have mild emphysema?
Is it possible to have a liver transplant if you have mild emphysema?
Davideo
in
British Liver Trust
2 years ago
anyone living in Singapore/india post kidney transplant ?
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
Hidden
in
Kidney Transplant
2 years ago
best Cereal options / veg breakfast options in US for a kidney transplant patient?
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
PatientWhizbang
in
Kidney Transplant
2 years ago
can I go abroad for studies after a kidney transplant
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
sanath
in
Kidney Transplant
2 years ago
ET accelerated progression
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
hi. I have had ET since 2004, treated with varying doses of HU and in later years also Peg. Apart from unstable platelets I have been relatively symptom free. Until this year! I have definitely struggled with HU, getting terrible mouth sores. I had a bone marrow biopsy recently which has confirmed
Smdg
in
MPN Voice
2 years ago
Coping with Pediatric Kidney Disease
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Candy girl
liver transplant the effects on family
liver transplant the effects on family
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Candy girl 👧
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Gallbladder issues
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
Ziggydoodah
in
Kidney Disease
2 years ago
Follow up on my liver cancer HCC
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
Comparison can be good for the soul...
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
I do not often write on here but it seemed these musing may be of interest to others so here goes... ONE of the great advantages I find from attending the courses run by the Pulmonary Rehabilitation Service (PRS) is comparison. And after today's session I feel encouraged. Not that I am significantly
Timberman
in
COPD Friends
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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