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Kidney Transplant
Has anyone else here had more than one transplant?
Has anyone else here had more than one transplant?
Leekee
in
Kidney Transplant
2 years ago
Joining the Group
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
tleachhsv
in
CLL America Support
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
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How to become an advocate for kidney health
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
ATG treatment /Rabbit antigens
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Platelets2022
in
Leukaemia Support
2 years ago
blood test bingo!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
Scaredy_cat
in
MPN Voice
2 years ago
My wife has a Bilirubin of 43 which has increased from 16 in February.
My wife is suffering from none alcoholic cirrhosis (PSC). Her consultant is carrying out all the right procedures to determine the level of scaring/damage to her liver (Blood tests, CT scan, MRI etc.,). These tests are carried out 6 monthly, and my wife, who is 75, has been advised that she would
My wife is suffering from none alcoholic cirrhosis (PSC). Her consultant is carrying out all the right procedures to determine the level of scaring/damage to her liver (Blood tests, CT scan, MRI etc.,). These tests are carried out 6 monthly, and my wife, who is 75, has been advised that she would
Ron111
in
British Liver Trust
2 years ago
after kidney transplants
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
Porter20
in
Kidney Transplant
2 years ago
Brain tumor from liver?
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
Springbunny
in
British Liver Trust
2 years ago
waiting for diagnosis, so scared…
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
Springbunny
in
The Brain Tumour Charity
2 years ago
we are waiting for diagnosis. And I am so scared…
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
Springbunny
in
Meningioma Support
2 years ago
UNOS Regions
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
horsie63
in
Kidney Transplant
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Prostate Cancer Network
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Anyone else have double nephrectomy w Kidney transplant?
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
Rocknlily
in
Kidney Transplant
2 years ago
Low Sperm Counts
Hi there. I received a kidney transplant 6 months ago. We want to have one more baby (we had three pre transplant and conceived them very easily) but a recent test showed I pretty much have zero sperm. Has anyone encountered this, and if so, did you find any causes related to kidney transplant...medications
Hi there. I received a kidney transplant 6 months ago. We want to have one more baby (we had three pre transplant and conceived them very easily) but a recent test showed I pretty much have zero sperm. Has anyone encountered this, and if so, did you find any causes related to kidney transplant...medications
crusher2021
in
Kidney Transplant
2 years ago
Kidney Transplant Aug 25
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
frebusmaxwell
in
Kidney Transplant
2 years ago
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