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Losing Lupus diagnosis
I was diagnosed in 2010 with lupus, and 2012 with secondary sjogrens, raynauds and antiphospholipid syndrome. I was also badly affected by light photosensitivity. I had in 1978 a pituitary apoplexy and as yet undiagnosed thyroid hormone resistance. There's been a total of 17 different diagnoses
I was diagnosed in 2010 with lupus, and 2012 with secondary sjogrens, raynauds and antiphospholipid syndrome. I was also badly affected by light photosensitivity. I had in 1978 a pituitary apoplexy and as yet undiagnosed thyroid hormone resistance. There's been a total of 17 different diagnoses
linda96
in
LUPUS UK
1 year ago
Historic results
I was diagnosed with Hashimotos in 2014 and because of having one auto immune condition I was consequently tested for others- including Coeliac. I tested negative but as you can see only just & due to a lifetime of IBS caused by wheat I was a low consumer of wheat based foods anyway. I gave up gluten
I was diagnosed with Hashimotos in 2014 and because of having one auto immune condition I was consequently tested for others- including Coeliac. I tested negative but as you can see only just & due to a lifetime of IBS caused by wheat I was a low consumer of wheat based foods anyway. I gave up gluten
Whatnow1973
in
Gluten Free Guerrillas
1 year ago
Carnivore Diet - Can't solidly recommend it
This conflicts with people like carnivore diet advocate Mahaila Peterson, who solved 100% of her horrible
autoimmune
diseases
, and there were many, by eating the most extreme version of carnivore, the Lion Diet. This is only Beef, butter and salt, no exceptions.
This conflicts with people like carnivore diet advocate Mahaila Peterson, who solved 100% of her horrible
autoimmune
diseases
, and there were many, by eating the most extreme version of carnivore, the Lion Diet. This is only Beef, butter and salt, no exceptions.
bassofspades
in
Cure Parkinson's
5 months ago
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M.E. or underactive thyroid?
I have a friend who has had an underactive thyroid for many years, she is on 75mcg levo. In recent years she has started suffering from fatigue. She is resistant to the possiblity it may be her thyroid as she has been hypo and on meds for years. Also GP has never suggested it may be her thyroid, because
I have a friend who has had an underactive thyroid for many years, she is on 75mcg levo. In recent years she has started suffering from fatigue. She is resistant to the possiblity it may be her thyroid as she has been hypo and on meds for years. Also GP has never suggested it may be her thyroid, because
AnneEvo
in
Thyroid UK
1 year ago
Research - support
Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I see from their communications that they are working on a lot of things at the moment including responding to the NICE guidelines on our behalf and funding research into lots of different things relating to pernicious anaemia
Hello, Im a member of the Pernicious Anaemia Society which hosts this forum. I see from their communications that they are working on a lot of things at the moment including responding to the NICE guidelines on our behalf and funding research into lots of different things relating to pernicious anaemia
LadyBothwell
in
Pernicious Anaemia Society
1 year ago
Recent diagnosis of Fibromyalgia
I was diagnosed with Rheumatoid Arthritis in 2021 after nearly two years of pain initially in my left wrist and then progressing to both hands and feet. I’m on so many medications and am awaiting the start of my second biologic as Imraldi only helped for 5 months. I’m wondering if anyone else has both
I was diagnosed with Rheumatoid Arthritis in 2021 after nearly two years of pain initially in my left wrist and then progressing to both hands and feet. I’m on so many medications and am awaiting the start of my second biologic as Imraldi only helped for 5 months. I’m wondering if anyone else has both
Gjbrose
in
NRAS
1 year ago
levothyroxine
I was diagnosed with underactive thyroid in April, i was initially put on 100mg of levothyroxide and dose has been increased steadily and am now on 175mg of levothyroxine, my main question is I have been getting severe joint pains a couple of weeks after taking the medication, the pains are now getting
I was diagnosed with underactive thyroid in April, i was initially put on 100mg of levothyroxide and dose has been increased steadily and am now on 175mg of levothyroxine, my main question is I have been getting severe joint pains a couple of weeks after taking the medication, the pains are now getting
alansing
in
Thyroid UK
1 year ago
Newly diagnosed
Hi All, I've just joined this group looking to educate myself following a recent 2nd positive lupus test. I am waiting for a pheumatology appointment but no idea when that is going to happen so a bit concerned I am losing time on getting a plan in place. 30 years ago I tested positive for Anti Phospholipid
Hi All, I've just joined this group looking to educate myself following a recent 2nd positive lupus test. I am waiting for a pheumatology appointment but no idea when that is going to happen so a bit concerned I am losing time on getting a plan in place. 30 years ago I tested positive for Anti Phospholipid
Autolupus
in
LUPUS UK
1 year ago
False negative ana?
hi, never posted on anything like this before but you all look so nice. I am 39. I developed an unprovoked DVT at the age of 16 had another when I was 19. Have various clotting problems through both my pregnancies too. No underlying cause was found. Ive had psoriasis since I was 8 and was treated for
hi, never posted on anything like this before but you all look so nice. I am 39. I developed an unprovoked DVT at the age of 16 had another when I was 19. Have various clotting problems through both my pregnancies too. No underlying cause was found. Ive had psoriasis since I was 8 and was treated for
Flakeyy
in
LUPUS UK
1 year ago
help with blood test results…
Hi, I’ve been taking levothyroxine (125mcg) for an underactive thyroid for 3 years. Had a private test done and got the results today. My TSH is 0.52 (range 0.27 - 4.20) and anti-thyroidperoxidase is 94 (normal range less than 34). Everything else was in normal reference range as per the image. Can
Hi, I’ve been taking levothyroxine (125mcg) for an underactive thyroid for 3 years. Had a private test done and got the results today. My TSH is 0.52 (range 0.27 - 4.20) and anti-thyroidperoxidase is 94 (normal range less than 34). Everything else was in normal reference range as per the image. Can
Jemmawilliams
in
Thyroid UK
1 year ago
Coeliac test
Hi All, Just looking for some advise. i have been having issues with my eating and stomach for years. I went to the doctors for years and and an investigative surgery done to see if i had Endo and that was causing the problem but that came back negative. The advise from my doctor was to change my diet
Hi All, Just looking for some advise. i have been having issues with my eating and stomach for years. I went to the doctors for years and and an investigative surgery done to see if i had Endo and that was causing the problem but that came back negative. The advise from my doctor was to change my diet
Iszabella
in
Gluten Free Guerrillas
1 year ago
Are there any holistic remedies for LUPUS?
My wife has recently been diagnosed with LUPUS. She had been in an accident in Florida back in March. She was treated poorly by the police/ handcuffed/ spent two nights in jail with low lives. She became a nervous wreck, and couldn't sleep lost appetite and became extremely reclusive. I'm hoping that
My wife has recently been diagnosed with LUPUS. She had been in an accident in Florida back in March. She was treated poorly by the police/ handcuffed/ spent two nights in jail with low lives. She became a nervous wreck, and couldn't sleep lost appetite and became extremely reclusive. I'm hoping that
TOPAZ455
in
Cure Parkinson's
1 year ago
Hives on scalp
I haven't posted for a while but I developed Hives on my scalp, few itchy spots on my upper body and itchy ears in February. Was given fexofenadine and lotion which calmed the itching down but never went away, every time I've tried to stop the antihistamine I have to start it again. I've got oral lichen
I haven't posted for a while but I developed Hives on my scalp, few itchy spots on my upper body and itchy ears in February. Was given fexofenadine and lotion which calmed the itching down but never went away, every time I've tried to stop the antihistamine I have to start it again. I've got oral lichen
Oraney
in
Thyroid UK
1 year ago
Can anyone explain about soy please
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
Can someone please explain if it is fermented or unfermented soy that is ok to eat if you have an underactive thyroid. I have to make adjustments to what I eat and have been looking at tofu and tempeh but am not sure if they are ok to eat. Apologies I am a bit forgetful at the moment after long surgery
carnation
in
Thyroid UK
1 year ago
Hello everyone!
My name is Michaella and I am the new Volunteer Coordinator for LUPUS UK. Before joining the wonderful lupus family I worked in offices carrying out various administrative roles. Then in 2018, I went on to begin a degree in Midwifery and while I love supporting women and their families, in recent months
My name is Michaella and I am the new Volunteer Coordinator for LUPUS UK. Before joining the wonderful lupus family I worked in offices carrying out various administrative roles. Then in 2018, I went on to begin a degree in Midwifery and while I love supporting women and their families, in recent months
michaellasmith
Administrator
in
LUPUS UK
1 year ago
Vitamin B12 deficiency in over 16s: diagnosis and management
Draft of NICE B12 deficiency guidelines has been put online. [i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread
Draft of NICE B12 deficiency guidelines has been put online. [i]
Vitamin B12 deficiency in over 16s: diagnosis and management
[/i] [i]In development [GID-NG10176] Expected publication date: 16 January 2024 [/i] https://www.nice.org.uk/guidance/indevelopment/gid-ng10176/documents There is a thread
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Arthritis podcast season 2 launches
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
arthritis_action
Partner
in
Arthritis Action
1 year ago
RA OR LUPUS
Morning, sorry for the long post :) I am new on here and awaiting an appointment from Rheumatology after some blood results. My doctor suggested Rheumatoid arthritis however indicated it could possibly be Lupus. Also bloods showed kidney function is abnormal but not too concerning. So for context
Morning, sorry for the long post :) I am new on here and awaiting an appointment from Rheumatology after some blood results. My doctor suggested Rheumatoid arthritis however indicated it could possibly be Lupus. Also bloods showed kidney function is abnormal but not too concerning. So for context
jsacha33
in
LUPUS UK
1 year ago
sharing a Hot Tub ok with Lupus
Hi I’ve had Lupus for 30+ years now diagnosed with Hasimoto 6yrs ago. Read somewhere a long time ago thatLupus suffered should avoid a shared Hot tub due to our immune system compromised. Is that correct do you think?
Hi I’ve had Lupus for 30+ years now diagnosed with Hasimoto 6yrs ago. Read somewhere a long time ago thatLupus suffered should avoid a shared Hot tub due to our immune system compromised. Is that correct do you think?
LittleWoodChip
in
LUPUS UK
1 year ago
Depression, anxiety higher in lupus patients at risk of heart disease
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
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