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Sjogren's and eyes
I suffer with sjogren's and have been seen by many eye Dr's at my local hospital that is Addenbrooke's Cambridge. The last Dr I saw told me I had tried everything I could try. My eye's have been reasonably good on very calm days but a windy day upsets them and now the colder weather. The thought
I suffer with sjogren's and have been seen by many eye Dr's at my local hospital that is Addenbrooke's Cambridge. The last Dr I saw told me I had tried everything I could try. My eye's have been reasonably good on very calm days but a windy day upsets them and now the colder weather. The thought
Bailybiscuit
in
NRAS
1 year ago
buprenorphine is not that harmless: sum
. ## KOR and Remyelination In the context of
autoimmune
diseases
like multiple sclerosis, KOR activation has been shown to promote oligodendrocyte-mediated remyelination, alleviating symptoms of experimental autoimmune encephalomyelitis (EAE). ## Conclusion In summary, KOR blockers enhance microglia-mediated
. ## KOR and Remyelination In the context of
autoimmune
diseases
like multiple sclerosis, KOR activation has been shown to promote oligodendrocyte-mediated remyelination, alleviating symptoms of experimental autoimmune encephalomyelitis (EAE). ## Conclusion In summary, KOR blockers enhance microglia-mediated
snoemata
in
Restless Legs Syndrome
5 months ago
Just a quick one. Been caught off guard
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
At surgery now for a separate issue to thyroid and GP has slotted me in for a blood test here for rheumatoid arthritis, Can’t remember the Metavive protocol; I took it last night at bedtime, is it ok to do the test now
Noelnoel
in
Thyroid UK
1 year ago
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New to RA /methotrexate looking for advice.
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Been diagnosed with rheumatoid arthritis a few weeks ago and starting methotrexate tomorrow which I’m starting on 10mg for 2 weeks then 15mg for 2 weeks then 20mg from there, also 5mg of folic acid the other six days and 5mg of prednisone for now but reducing it. Do I need to worry about anything ?
Alan7690
in
NRAS
1 year ago
World Mental Health Day
Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has explored in A History of Pernicious Anaemia the socioeconomic changes that occurred from the 19th Century which shaped the geopolitical arena. This impacted on science, medicine and technology. Please also note that in this
Today is World Mental Health Day. The CEO of the PAS, Katrina Burchell, has explored in A History of Pernicious Anaemia the socioeconomic changes that occurred from the 19th Century which shaped the geopolitical arena. This impacted on science, medicine and technology. Please also note that in this
Narwhal10
in
Pernicious Anaemia Society
1 year ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
Do you have or have you had menopausal symptoms?
Did it affect your Rheumatoid Arthritis? Has any healthcare professional talked to you about the Menopause and RA? NRAS and the Royal College of Nursing (RCN) Rheumatology Forum’s survey seeks to find out what your experiences are to further inform healthcare professionals. What do they need to know
Did it affect your Rheumatoid Arthritis? Has any healthcare professional talked to you about the Menopause and RA? NRAS and the Royal College of Nursing (RCN) Rheumatology Forum’s survey seeks to find out what your experiences are to further inform healthcare professionals. What do they need to know
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Voclosporin for lupus nephritis now approved in Scotland
We are very pleased that voclosporin, a treatment for lupus nephritis, has now been approved for use in Scotland. This follows approval for use in England and Wales by NICE earlier this year. Check out our website to find more information about voclosporin & how it may be used: https://lupusuk.org.uk
We are very pleased that voclosporin, a treatment for lupus nephritis, has now been approved for use in Scotland. This follows approval for use in England and Wales by NICE earlier this year. Check out our website to find more information about voclosporin & how it may be used: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
8 months ago
Vitamin and mineral deficiencies/Thyroid dysfunction.. Chicken or Egg?
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
Before I spend my hard earned money on going to a private ENDO because the NHS is failing me I wanted to ask what you all thought about the problem of iron deficiency and vitamin D deficiency and how this relates to underactive thyroid . I read a lot here about how these vitamins should be optimal for
doingitfordad
in
Thyroid UK
1 year ago
Pernicious anaemia, no stomach acid and pain
I have had pernicious anaemia for 18 years and injections every 10 weeks. I have suffered with reflux, heartburn and congestion for many years. Last year a 24hr manometry test revealed I had zero stomach acid. Doctors offer me no advice at all to help with my digestive issues. This includes when I have
I have had pernicious anaemia for 18 years and injections every 10 weeks. I have suffered with reflux, heartburn and congestion for many years. Last year a 24hr manometry test revealed I had zero stomach acid. Doctors offer me no advice at all to help with my digestive issues. This includes when I have
Suesue246
in
Pernicious Anaemia Society
1 year ago
Anti-nuclear factor levels
Hi all, this is my first time posting here. I'm wondering whether anyone can help me make sense of blood results. Anti-nuclear Factor DNA states positive. Specifically Anti-RO60 which is 26.0.I have some typical symptoms of Lupus including butterfly rash on face and develop itchy rash on exposed skin
Hi all, this is my first time posting here. I'm wondering whether anyone can help me make sense of blood results. Anti-nuclear Factor DNA states positive. Specifically Anti-RO60 which is 26.0.I have some typical symptoms of Lupus including butterfly rash on face and develop itchy rash on exposed skin
Funkyweirdo
in
LUPUS UK
1 year ago
Anyone has this issue
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
I was given my B12 injection today and told I need to book a review with a GP as my B12 level is good and that I could now take oral B12 instead. My experience before on oral B12 is it didn’t work for me. Every bit of research I have read states Pernicious Anaemia doesn’t go away and you need B12 injections
1998cd
in
Pernicious Anaemia Society
1 year ago
Devon and Cornwall Lupus Group Information day - Saturday 14th October - Everyone welcome!
Come join the Devon and Cornwall Lupus Group for our next Information day, next Saturday. It will be a great opportunity to learn, network and support LUPUS UK and those affected by the disease. If you would like more information or to RSVP, please contact DCLG.secretary@gmail.com.
Come join the Devon and Cornwall Lupus Group for our next Information day, next Saturday. It will be a great opportunity to learn, network and support LUPUS UK and those affected by the disease. If you would like more information or to RSVP, please contact DCLG.secretary@gmail.com.
michaellasmith
Administrator
in
LUPUS UK
1 year ago
Nasal flu vaccine transmission
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
For anyone who has children, or close contact, and is on immunosuppressants, have you been around children who have had the live flu vaccine and been ok? They gave to my sister's son at school today (against her consent as she's on methotrexate for rheumatoid arthritis, so she wanted him to have the
Grizzly-bear
in
Vasculitis UK
1 year ago
Finding meaning in life with lupus through seeds and beams of light
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
HISTORY OF PERNICIOUS ANAEMIA
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
PAScomms
in
Pernicious Anaemia Society
1 year ago
frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
1 year ago
Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
michaellasmith
Administrator
in
LUPUS UK
1 year ago
Poem on MS (from artificial intelligence)
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
anaishunter
in
My MSAA Community
1 year ago
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