Recent diagnosis of Fibromyalgia : I was diagnosed with... - NRAS

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Recent diagnosis of Fibromyalgia

Gjbrose profile image
14 Replies

I was diagnosed with Rheumatoid Arthritis in 2021 after nearly two years of pain initially in my left wrist and then progressing to both hands and feet.

I’m on so many medications and am awaiting the start of my second biologic as Imraldi only helped for 5 months.

I’m wondering if anyone else has both these diagnoses?

How do you manage them and what’s the best treatment for Fibromyalgia?

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Gjbrose profile image
Gjbrose
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14 Replies
Madmusiclover profile image
Madmusiclover

They are common commorbiditues. I’ve not been offered any treatment for Fibro. Good luck with new drug. A good systemic control of RA through drugs is the best control for that.

Jackie1947 profile image
Jackie1947

Yes they go hand in glove sadly. No actual treatment for Fibro in my case but since being on a biological med it's been well behaved

Hi. I have RA and Fibro. I take Amitriptyline 20mg for my Fibro. Works a treat. I sleep more soundly and it got rid of all my nerve pain.

I was prescribed it by my Consultant. No other pain meds ever worked for me, even steroid injections.

Deeb1764 profile image
Deeb1764

I have many autoimmune with RA being the main one with Raynauds/Sojourns/Diabetes but then was told I the had Fibro which does not come under autoimmune by NICE guidelines. My GP has put me on pregabalin to aid sleep but many on here take Amitriptyline. Its about finding one that assists the fibro. Many of us also find fibro kicks in with weather ie humidity rain and wind which seems to make it worse.

There are some very good books out there on trigger points to help assist pain days but its a hard one to sort as very different to RA as muscular from head to toes and random.

in reply toDeeb1764

Thanks for the reminder 🙄. My energy levels went on holiday last week with all this rain…. I am definitely solar-powered ☀️

Deeb1764 profile image
Deeb1764 in reply to

I have been off the charts with fibro past 2 weeks plus rain the RA kicks in my hands so its been non stop fun!

J1707- profile image
J1707- in reply to

me too 😂

Gjbrose profile image
Gjbrose

Thankyou for sharing and giving me advice and support I am hoping new biologic will calm things down, my sleep pattern is so disrupted.

Yes I have found recent weather is making my symptoms more acute, again I really appreciate your help 😊

Deeb1764 profile image
Deeb1764 in reply toGjbrose

healthline.com/health/rheum...

A good thing to read on Healthline differences and things the same

Kati66 profile image
Kati66 in reply toDeeb1764

Thats a really good article, thanks for sharing. I have both too 😞😞😞

Kati66 profile image
Kati66

I have both. Was diagnosed in 2014 and RA in December last year. It’s no fun having both! I have been on Amiltryptaline for quite a while and it really helps with sleep. Im also on gabapentin for fibromyalgia and nerve issues. I hope you are able to get the right treatment that helps 🤞🏻🤞🏻🤞🏻

J1707- profile image
J1707-

unfortunately I have both plus one too other AIs. When one kicks off the others joint in and who knows which is which.weather plays a big part especially Fibro which really is sensitive.RA hates humidity. I’m best when the weather is crisp and cold .

Gjbrose profile image
Gjbrose

thank you everyone for all your comments it really helps to know that you are not alone

Have you tried an anti-inflammatory diet?

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