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Finding meaning in life with lupus through seeds and beams of light
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
How a columnist holds on to hope amid the challenges of her illness by Candace J. Semien | October 4, 2023 Our paths to a lupus diagnosis can vary extensively. The symptoms that trigger a crisis may differ, as do the number of hospital stays and near-death experiences we endure before discovering
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
10 months ago
HISTORY OF PERNICIOUS ANAEMIA
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
our new CEO has written a blog post about the history of Pernicious Anaemia and you can read it here https://pernicious-anaemia-society.org/pernicious-anaemia/one-history-of-pernicious-anaemia/ we have an impressive list of guest bloggers for the future too so watch this space!
PAScomms
in
Pernicious Anaemia Society
10 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
3 months ago
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frustrating!!
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
so I posted my sons blood results being concerned over his very low active b12 and having to wait weeks for an appointment with Gp. Finally seen Gp who question the private bloods and ordered her own. She tested for pernicious anaemia apparently. Other blood results have returned and are Ferritin
Blister4
in
Pernicious Anaemia Society
10 months ago
Black History Month and Lupus Awareness Month event this Saturday 7th October - some tickets still remaining!
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
Its almost time to celebrate Black History Month & Lupus Awareness Month, this Saturday and there are still some tickets left! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday 7th
michaellasmith
Administrator
in
LUPUS UK
10 months ago
Poem on MS (from artificial intelligence)
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
I asked ChatGPT to write a poem about MS: Multiple sclerosis, a disease unknown A monster that lurks and leaves people alone It attacks the body and the mind Leaves its victims feeling confined It strikes without warning, no time to prepare Leaves us stranded and without a care It takes away
anaishunter
in
My MSAA Community
10 months ago
Functional autoantibodies, a new paradigm in autoimmunity?
I came across a reference to "functional autoantibodies" in
autoimmune
diseases
, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract.
I came across a reference to "functional autoantibodies" in
autoimmune
diseases
, and started going down rabbit holes on the web to see if I could find out more. I came across this paper which mentioned hypothyroidism and hyperthyroidism in the abstract.
humanbean
in
Thyroid UK
1 year ago
Black History Month and Lupus Awareness Month Event - This Saturday 7th October - Tickets still available!
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
There is still time to get your free ticket and join us this Saturday to celebrate Black History Month & Lupus Awareness Month combined! It will be a great opportunity to meet other people with lupus and learn more about the disease from a range of excellent speakers. Everyone is welcome. Details: Saturday
michaellasmith
Administrator
in
LUPUS UK
10 months ago
Long term Steroids.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Many thanks for all your replies to my post.As I stated before, I am due to see my new Rheumatoid Consultant next week, so I'm very hopeful that she will help me on my journey and give me a suitable Rheumy drug that will suit me. I can then hopefully, slowly come off the Predisolone.
Chanelady
in
NRAS
10 months ago
Pernicious Anaemia
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
Hi all, following conversation on here I asked my doctor for a blood test to check for Pernicious Anaemia. These are the results. They all look good. Could someone please point out which ones the pernicious anaemia tests are? TIA 😊. Results in comments as I can’t figure out how to attach multiple
EllsBells591
in
Thyroid UK
10 months ago
Drinking & Thyroid
Just wondered if many of you with an underactive thyroid drink alcohol? Not an excessive amount but a few drinks perhaps. Of late and since being diagnosed with one I feel like my tolerance for it is terrible and one or two glasses of wine can wipe me out the next day. Is there any link? Be great to
Just wondered if many of you with an underactive thyroid drink alcohol? Not an excessive amount but a few drinks perhaps. Of late and since being diagnosed with one I feel like my tolerance for it is terrible and one or two glasses of wine can wipe me out the next day. Is there any link? Be great to
Cloud77
in
Thyroid UK
10 months ago
Best endocrinologist in South East ***Please Private message Doctor names & do not post on forum***
Hi everybody,So hoping you can help me with some advice. I am a 38 year old woman who has always struggled with severe tiredness, however more recently this has escalated to frequent sore throat, dry skin, thinning hair. It has escalated quite rapidly in the last 10 months where I got a full body red
Hi everybody,So hoping you can help me with some advice. I am a 38 year old woman who has always struggled with severe tiredness, however more recently this has escalated to frequent sore throat, dry skin, thinning hair. It has escalated quite rapidly in the last 10 months where I got a full body red
Uniarook
in
Thyroid UK
10 months ago
Would you like to give feedback on a new "healthy eating with lupus" booklet for Lupus UK?
A team at University College London (UCL) have been working hard on a new version of Lupus UK's diet & healthy eating booklet. They have a first draft and want to hear what people think so they can make sure it has all the information people want, presented in the way that's most helpful to them.
A team at University College London (UCL) have been working hard on a new version of Lupus UK's diet & healthy eating booklet. They have a first draft and want to hear what people think so they can make sure it has all the information people want, presented in the way that's most helpful to them.
Debbie_kinsey
Administrator
in
LUPUS UK
10 months ago
M&S Ground Coffee - Coeliac Symptoms
Hi, I've joined up to ask the bizarre question if anyone else has been made ill by the most banal and unlikely of things, i.e. ground coffee? I normally use Lavazza or Taylors, or even local Co-Ops own brand, and all have been entirely fine. For years coffee is the one thing I have been able to trust
Hi, I've joined up to ask the bizarre question if anyone else has been made ill by the most banal and unlikely of things, i.e. ground coffee? I normally use Lavazza or Taylors, or even local Co-Ops own brand, and all have been entirely fine. For years coffee is the one thing I have been able to trust
Hidden
in
Gluten Free Guerrillas
10 months ago
From RA to Lupus. High dose pred questions.
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Hello everyone. My partner was diagnosed with inflammatory arthritis in 2015 and has been receiving treatment of various sorts for it ever since. The most long lasting of those treatments being Benapali (Etanercept) which he has been taking for 6 years. After a recent major flare and switching to
Chickenkeeper2015
in
LUPUS UK
10 months ago
Gum disease
I've been diagnosed with rheumatoid arthritis since the beginning of 2023, but I've had symptoms for probably a year or more before that. Only been taking methotrexate for 5 months. The last couple of visits to my dental hygienist have not been good at all. I'm being told I have gum disease with periodontal
I've been diagnosed with rheumatoid arthritis since the beginning of 2023, but I've had symptoms for probably a year or more before that. Only been taking methotrexate for 5 months. The last couple of visits to my dental hygienist have not been good at all. I'm being told I have gum disease with periodontal
Purplemusic
in
NRAS
10 months ago
lupus ?
I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,low grade fevers ,photosensitivity ,hair loss and generally feeling rubbish and fatigued and chronic autoimmune urticaria and most recently I am unable to stand for long periods of time as I have horrendous pain in both my
I've been unwell for 5 yrs on and off ..whole body rash,widespread joint pain ,low grade fevers ,photosensitivity ,hair loss and generally feeling rubbish and fatigued and chronic autoimmune urticaria and most recently I am unable to stand for long periods of time as I have horrendous pain in both my
shell9518
in
LUPUS UK
10 months ago
Doctor thinks not pmr
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Hi just short story, I was diagnosed with PMR in March 22 I'm now on10mg of prednisolone, with the recent bloods I had taken the Dr thinks it's not pmr but rheumatoid arthritis, should I still be on steroids or something else?Thanks for reading Peter.
Petertaffy
in
PMRGCAuk
10 months ago
Intercranial hypertension
Hi All,I recently have had issues with migraines. I have had two in the past 8 weeks. The first my vision went blurry in right eye and now I have had a Blind spot (scotoma) ever since. I am currently on hydroxychloroquine and pregabalin. I am being investigated for idiopathic intracranial hypertension
Hi All,I recently have had issues with migraines. I have had two in the past 8 weeks. The first my vision went blurry in right eye and now I have had a Blind spot (scotoma) ever since. I am currently on hydroxychloroquine and pregabalin. I am being investigated for idiopathic intracranial hypertension
BellaC79
in
LUPUS UK
10 months ago
Ocrevus?
I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they recommended ocrevus over tecfidera. I admit to being a little freaked out about the whole getting sick situation while on a B cell depleter. Can any
I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they recommended ocrevus over tecfidera. I admit to being a little freaked out about the whole getting sick situation while on a B cell depleter. Can any
Szs3eb
in
My MSAA Community
10 months ago
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