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Join us for a Black History Month & Lupus Awareness Month event on 7th October
Join us for a combined Black History Month & Lupus Awareness Month event on 7th October! A great opportunity to meet other people with lupus & learn more about the disease from some excellent speakers. All welcome. Get your free ticket at: https://docs.google.com/forms/d/e/1FAIpQLSeobrCw70Ivwsjb2hLKYOOoafeO07g1sw3cz1Xcw9jUpWiBxQ
Join us for a combined Black History Month & Lupus Awareness Month event on 7th October! A great opportunity to meet other people with lupus & learn more about the disease from some excellent speakers. All welcome. Get your free ticket at: https://docs.google.com/forms/d/e/1FAIpQLSeobrCw70Ivwsjb2hLKYOOoafeO07g1sw3cz1Xcw9jUpWiBxQ
Debbie_kinsey
Administrator
in
LUPUS UK
10 months ago
Help me so anxious
I take methotrexate a chemo drug for my
autoimmune
diseases
so my immunity is compromised. Today I went to urgent care found out I have oral thrush from antibiotics I took. They gave me a rinse and amvsupposed to swallow it after I am afraid to I fear something bad happening .
I take methotrexate a chemo drug for my
autoimmune
diseases
so my immunity is compromised. Today I went to urgent care found out I have oral thrush from antibiotics I took. They gave me a rinse and amvsupposed to swallow it after I am afraid to I fear something bad happening .
Nervousnancy
in
Anxiety and Depression Support
10 months ago
underactive thyroid
Hi there, I am 41 and current being treated for an underactive thyroid of TSH 12.3. I have been prescribed 50mg of Levithyroxine which I have taken for the last couple of weeks. Not really seeing a huge difference to tiredness etc but wanted to ask how long it takes for the levels to reduce, is it a
Hi there, I am 41 and current being treated for an underactive thyroid of TSH 12.3. I have been prescribed 50mg of Levithyroxine which I have taken for the last couple of weeks. Not really seeing a huge difference to tiredness etc but wanted to ask how long it takes for the levels to reduce, is it a
Cloud77
in
Thyroid UK
10 months ago
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T4 Only, Low TSH
Hi, I recently had blood tests with my GP and now have a phone call appointment scheduled. My latest blood results 16/9/23 are as follows, with reference ranges. FT4 = 18.7pmo/L (9 – 23) or 69.29% through the reference range FT3 = 4.5pmo/L (2.4 – 6) or 58.33% through the reference range TSH = < 0.01
Hi, I recently had blood tests with my GP and now have a phone call appointment scheduled. My latest blood results 16/9/23 are as follows, with reference ranges. FT4 = 18.7pmo/L (9 – 23) or 69.29% through the reference range FT3 = 4.5pmo/L (2.4 – 6) or 58.33% through the reference range TSH = < 0.01
sukismum
in
Thyroid UK
10 months ago
Wednesday's Word
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
[i]
Autoimmune hepatitis (AIH)
[/i] This is an autoimmune disease where the attack is on the hepatocytes (cells of the liver) rather than the biliary cells (bile ducts). It presents very differently and is treated very differently as well. When both diseases are present this is called 'AIH overlap
DonnaBoll
Administrator
in
PBC Foundation
8 days ago
"Your thyroid's fine"...what do you think?
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Hi. I've been told by a GP that my thyroid is fine. I don't think it is. I'd be grateful for your opinions. Like many others here, I'm fed up with Dr.s saying it's my age, the menopause, or there's nothing wrong. Medichecks results: May 23 Thyroglobulin Antibodies: 423.000 kIU/L (Range: <115
Sleepysparrow
in
Thyroid UK
10 months ago
Shoulder pain and lupus
I was diagnosed with antiquagulant lupus last year and am suffering with severe shoulder pain. Physio doesn't help. Any advice would be great
I was diagnosed with antiquagulant lupus last year and am suffering with severe shoulder pain. Physio doesn't help. Any advice would be great
Barbeydo
in
LUPUS UK
10 months ago
dizziness and lupus
hey all, I hope you’re all as well as you possibly can be. I feel so bad moaning when I know I could be a lot worse but I was recently diagnosed with Tumid Lupus (a chronic rare form of cutaneous lupus) but I’m presenting symptoms of SLE. I’ve been referred to rheumatologist but still waiting. I have
hey all, I hope you’re all as well as you possibly can be. I feel so bad moaning when I know I could be a lot worse but I was recently diagnosed with Tumid Lupus (a chronic rare form of cutaneous lupus) but I’m presenting symptoms of SLE. I’ve been referred to rheumatologist but still waiting. I have
JLAR01
in
LUPUS UK
10 months ago
Help with blood results
Morning everyone, I wonder if any of you could help me. I have many symptoms of lupus for years but also symptoms of fibromyalgia. I have been diagnosed with fibromyalgia for 4 years but no treatment. I had autoimmune blood tests done which I do not understand. Does a medium Positive mean I have lupus
Morning everyone, I wonder if any of you could help me. I have many symptoms of lupus for years but also symptoms of fibromyalgia. I have been diagnosed with fibromyalgia for 4 years but no treatment. I had autoimmune blood tests done which I do not understand. Does a medium Positive mean I have lupus
Sammy114
in
LUPUS UK
10 months ago
hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
10 months ago
PMR and MS
I was diagnosed with PMR in 2014 and put onto 15mg Prednisolone. I struggled to reduce the dose over the next 6 years never getting below 3.5. In 2020 my Rheumy Consultant sent me for a brain scan as “it’s the only bit of you we’ve never looked at!” Scan showed I was in the Secondary Progressive phase
I was diagnosed with PMR in 2014 and put onto 15mg Prednisolone. I struggled to reduce the dose over the next 6 years never getting below 3.5. In 2020 my Rheumy Consultant sent me for a brain scan as “it’s the only bit of you we’ve never looked at!” Scan showed I was in the Secondary Progressive phase
Linnetbird
in
PMRGCAuk
10 months ago
Vitamins
Hi I have rheumatoid arthritis, had it since December 2022 I was just wondering I've been trying to look into any vitamins that could help my body I was just looking for some advice if anyone else takes vitamins and what they take? Thank you 🙂
Hi I have rheumatoid arthritis, had it since December 2022 I was just wondering I've been trying to look into any vitamins that could help my body I was just looking for some advice if anyone else takes vitamins and what they take? Thank you 🙂
Moulinr
in
NRAS
10 months ago
tingling feet and hands
I have a tingling/buzzing feeling in feet and hands. I also get a burning leg sensation at night in bed which I've always put down to menopause. The tingling is a lot worse since covid mid july. Also have treated underactive thyroid and fatigue. I'm aware that B12 should ideally be higher for T4 conversion
I have a tingling/buzzing feeling in feet and hands. I also get a burning leg sensation at night in bed which I've always put down to menopause. The tingling is a lot worse since covid mid july. Also have treated underactive thyroid and fatigue. I'm aware that B12 should ideally be higher for T4 conversion
lolajone
in
Pernicious Anaemia Society
10 months ago
Unexplained Vertigo
Hi .I have Lupus and MS. I only take hydroxychlorequin .but since the end of july beginning of August i have been suffering with vertigo, its been over 6 weeks now and its a real bugger to shift. Does anyone know if its Autoimmune related and how can i get rid once and for all its horrible, i couldn't
Hi .I have Lupus and MS. I only take hydroxychlorequin .but since the end of july beginning of August i have been suffering with vertigo, its been over 6 weeks now and its a real bugger to shift. Does anyone know if its Autoimmune related and how can i get rid once and for all its horrible, i couldn't
jahlioness
in
LUPUS UK
10 months ago
No diagnosis but lots of symptoms
I have been diagnosed with hypothyroidism and am only a very low dosage of levothyroxine - which I don't think is managing my symptoms. However, I think that I may have lupus symptoms. I have been diagnosed with dry eyes and suffer badly with discomfort, grittiness, pain and light sensitivity. I have
I have been diagnosed with hypothyroidism and am only a very low dosage of levothyroxine - which I don't think is managing my symptoms. However, I think that I may have lupus symptoms. I have been diagnosed with dry eyes and suffer badly with discomfort, grittiness, pain and light sensitivity. I have
scool
in
LUPUS UK
10 months ago
Garlic and Autoimmune
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
I have antiphospho lipid antibody syndrome (CAPS) and a very high intolerance for Garlic, within 20 minutes of ingesting garlic I start vomiting and my intestines blow up like balloons and I have extreme pain. My daughter who has lupus was told by her doctor not to eat Garlic as it activates
Thick_Blood
in
Hughes Syndrome APS Forum
10 months ago
Unexplained vertigo
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
sunmoon_
in
LUPUS UK
10 months ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
private consultation
so today I had my consultation… I do feel slight disheartened coming away from this appointment. I was told there is a small chance it could be endometriosis however it is more than likely a bowel issue due to my symptoms but they also cross wire with endo symptoms. I haven’t had any findings on scans
so today I had my consultation… I do feel slight disheartened coming away from this appointment. I was told there is a small chance it could be endometriosis however it is more than likely a bowel issue due to my symptoms but they also cross wire with endo symptoms. I haven’t had any findings on scans
Moll2309
in
Endometriosis UK
10 months ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
6 months ago
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